All Journal Entries Journals

Update on Baby Ariana....(long post)

Oct 16, 2011 - 7 comments

320053?1319894671
Hello Everyone,

Sorry I havent written in so long, I've been coming back and forth from the hospital, and have barely been on the computer to give you all an update on my baby girl.

As you know my baby was born on Aug 23, 2011, at 29 wks bcs I had preclamsia. She was thriving on the NICU, 4 days after she was born, they took her out of her C-Pap and was put on a canula, she was gaining weight and almost on full feedings. Then on the morning of my birthday, Sept 1st, we got a dreaded call from the NICU, she was diagnosed with NEC, Necrotizing Entercolitis. A gastrointestinal disease that mostly affects premature infants, NEC involves infection and inflammation that causes destruction of the bowel (intestine) or part of the bowel. Although it affects only 1 in 2,000 to 4,000 births, or between 1% and 5% of neonatal intensive care unit (NICU) admissions, NEC is the most common and serious gastrointestinal disorder among hospitalized preterm infants. (http://kidshealth.org/parent/medical/digestive/nec.html#)

We were blessed with a wonderful nurse who was able to diagnose it really quick. She was transfered to a different hospital, with a higher level NICU, just in case she needed surgery. Seeing my baby gone from feisty, eyes open, and fighting with the nurses, to sleeping all day and night, limp, lethargic, and pale, had my heart on pins and needles. Many sleepless nights, waiting for the result of the bloodwork, hoping for numbers to go down.They were taking more blood out than what her body could replenish so she had to be transfused at least 3 times. Finally almost two weeks later she pull through, her bowel did perforated in a tiny spot, but her body heal itself and she was able to start her feedings.

We were ecstatic, she started eating, but it got to a point where she was not toleratng her feedings. This whole process of starting and stoping feedings lasted three weeks, until finally Drs did a contrast exam and where able to find the obstruction. Surgery was schedule for Sept 27th. The obstuction was because when the intestine healed itself created scar tissue that was pulliung together her colon and her appendix. Surgeon got out her appendix, and cut off a tiny piece of her colon, surgery was a success according to surgeons, but they way her tiny body reacted to surgery, was another story.

Although Drs didnt wanted to say anything especific, buy they were dealing on a matter of life and death or even permanent damage. Her body was not able to expel carbon dioxide, making her blood acidy. Dr spent more than 12 hours trying to stabilize her, moving her from a ventilator to an occilator, medication, etc. I took several days for her blood gas to be considered normal, and be put back on the ventilator. After 2 days on the ventilator, she decided it was time to get it out, and at 3:00am, they found her with the tubes on her hands..! Dr decided to put her back on the canula, and on the 5th of october she was breathing on her own again.

Right now shes on full feedings, taking them by bottle, and tolerating her feedings no problems. She has an ostomy and in aproximately 6 weeks they'll do a follow up surgery to reconect her. She's weighting 5lbs 7ozs and measuring 18inches. Feisty, strong and gorgeous, as much it hurt me to see her being poke, she never complained, wouldnt even cry. When they tell you that the NICU is a rollercoaster ride, they're not lying.....,

Drs. are even considering to let us take her home before the second surgery, if she keeps progressing the way she's doing.

Thank you all for your thoughs and prayers, and sorry for such a long post...

Comments
Post a Comment
919101 tn?1368109937
by anxiouslywaiting910, Oct 16, 2011
Oh that does sound like a roller coaster...glad she is doing well!!

Avatar universal
by Kricket212, Oct 16, 2011
Sounds like you have a fighter.  I will continue to pray for her.  I should have my boys in about 12 days on 10/28.

1473300 tn?1397588529
by renny320, Oct 16, 2011
I am so glad that she is doing better now. What a stong baby girl you have. I am praying that all goes well with her 2nd surgery.

1571146 tn?1399909692
by Moma_Cher, Oct 16, 2011
Oh my goodness, I happened upon your journal and just let me say, I am soooooo happy she is doing so well! I was reading and thinking *please let her be okay, please let her be okay* and tWas so happy after reading that final paragraph!  She is def a fighter! Wishing you continued blessings!!

1427484 tn?1334789201
by CarlaLP, Oct 28, 2011
Your daughter is gorgeous. My Charlie has been through so much too.. I know what the NICU and surgery are like. Watching your baby suffer is like being caught in a bad dream. I will pray for your little angel and I just know that she will be okay. It is amazing how resiliant babies are. My very best wishes to you and your miracle girl.

Avatar universal
by wishing805, Oct 28, 2011
wow. Im praying for you and your family. You guys are so strong!!!

790669 tn?1465189099
by Des_a_rae, Oct 29, 2011
Good gracious hun.  You have a fighter on your hands and I'm SO proud of her!!  Just hang in there, things are going to be okay!!  Look what she's pulled through!!  Praying for you all!! :)

Post a Comment