my time fighting the dragon Journals

Middle of Week 37

Jan 24, 2012 - 1 comments

Hi Everyone, I havnt posted in awhile, just reading posts lately.  

Well, here is my  update. tx naive geno1A  week 37  treatment . incivek dosing trial.   Study results showed by   tagman test showed det. at 4 and 8. I would imagine that would be somewhere under 25.    (The study wont let me know the amounts if any registered)
I had my private tests done and  week 4 was <43 pcr, week 8 heptamax <5.    but oh well, better safe than sorry and do the full 48.  Glad to do it.
  by study results,   und at week 12 to present time.  

If anyone is interested  You can read the early months of treatment to see the sx  I was dealing with at that time in my journal entries.  No need to even try to repeat all that!!

  Most physical symptoms has mellowed to the well known slow grind. Fridays are my best days.  I take my shot on Friday night, if Im lucky I can do some things on Saturday but  I do still spend most of the weekend sleeping.  Monday, Tues Flu like aches and pains, like your just getting the flu but it never comes on.  headache etc. Wed, thurs getting better and Friday can hardly tell Im on treatment.  
I explain it to the layman by saying dead in the water, emerging into the baton twirling, crazy, mad ,white,woman!

  Im getting used to going around on hgb around 10.  I am still on procrit 40,000 units once a week.  My other blood work looks good .  I still have brain fog but if I work at being organized I can usually get along pretty good with that.  

The most pronounced  side effects for me at this point in treatment  are the emotional ones.    even though I cry pretty easy  the anger issue is severe.  I have had to get on a anti-psycotic called zyprexar. I have always been hotwired,  no need to go into any detail but things at home are usually very rocky as soon as I enter the picture.   I can handle my self in public fairly well.   (but the idiots I live with)   ....

I have been on Lunesta, zanax, tramadol, citaprolam,zoloft,  and now this!..  But you know, I am feeling better.  There has been several times I would have blown my lid and have been able to stay intouch.  So we will see what happens. So, those of you with severe Riba rage , and nothing else is working,  you might want to look into it and put it in your knowledge file.  I will keep you posted on the anger results..   Of course what works for one my not work for another.   But some of us need an arsenal to fight this at our disposal.  What ever it takes to get through this works for me.     Hope you all are fairing well,  hang in there.    I only have 10.5 weeks to go.  I thought this time would never get here.   Getting down to the single digits!!   Come on Springtime!!  April 6 is my last shot and last pills on April 13.  This is also posted on the forum.  

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1856494 tn?1340542614
by libzo2, Sep 04, 2012
Hi again,  I am filling in where you did not get a response.  I know how that feels - when one throws something out to the Universe and it just keeps on going, probably to a parrallel cosmos that I have heard about.  That's probably where all the things we misplace go to.  haha  

Your journals, that you are kind enough to share, show how incredibly strong you are.  I am really proud of you and in awe of your strength.  

PS - it doesn't matter if you are blue or purple of 'white'.  Just saying.

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