Jan 25, 2012
It all started with a tingling/numb big toe, and then slowly spred to all the other toes and to the other foot and at the same time I had strange pain all around in the legs. My left is though always worse.
This was happening from June 2010, but in Nov 2010 I also started to feel simular pain in my hands/arms but dit not think it was related at first, because there were no tingling and I thought the stuff with my feet must be related to backproblems. So for a long time Nov2010-Mar2011 I just would not think of it. But in Mar I did get the first tingling/numb feeling in two fingers on the left side, and my feet had been getting worse, now I was numb to the ankle. Then soon it were all the fingers on that side and so it started on the other side and the palms too, but it is not as bad though.
Soon after this I got tingling on the left side of the face, lips and then got strange pain just above my right eye one day and few days later beside my nose (right side) and then under my chin (right side). So tingling on left side and nervepain on right side.
Then I decided to go see a neuro, he sent me to MRI of the neck and then of the head, the neck showed nothing and the head MRI only showed a little bright changes in the periventrucular area, but neuro said it was just normal „could be my age“ (43 then). That summer (2011) I started having more symptoms, fasciculations, some kind of chills in strange places, like over my head and wider.
Also many times I have had a very high tone in one ear, and when I was typing one day, my hand fell down like I lost control of it. I think compairing with many other peoble, like you all, that my symptoms is maby not very bad, they are still „mild“, but my tingling/numbness is always there and worse somedays and they‘re all over, but still the pain is not interupting me too much.
My EMG was ok, my balance is ok and I think my eyes are normal (trouble focusing sometimes, but that must be the age). We have been looking into many thing's, like polyneuropathy, B12 is ok.
Food goes the wrong way sometimes, also just the water in my mouth (don't know the english word) going the wrong way and me then couching? Was eating some little candy gum (?) one day and it often feels like the upper part of my neck is tight, and one got stuck like where the tongue ends for awhile?
I‘ve had the urine leaking for more than a week one time. Sometimes it I feel painful cramping in the stomack area like the intestines are turning and twisting. My right arm is heavy and week very often.
I also get muscle twitching all around, and I get this in my face and on the top of my head!! But this is not painful, just unconfortable. I have had painful muscle cramps more now lately. Also strange symptoms like my tongue was like burned on the tip for a whole month, and like a spider on my ear for some weeks, twiching left side of lips for weeks, strange dizziness for two weeks in Dec and then again nearly two weeks in Jan. The first dizziness felt like my brain was small in my head and not following my eyes, like it was going in very small circles, then the second one fellt like big circles?
Today I‘m just having myoclonus in my left thumb (since yesterday) and all the regular stuff. I sometimes feel like I could be having many of the typical cognitive issues and the fatique, but that is something that is easy to think that I am just imagining, so I sometimes just think I am getting a little crazy ;). All my testing for other stuff has been ok.