Feb 26, 2012
Some days, I come out of the house ready to tackle anything, and then just run myself into the ground! Other days, my fatigue hits just after breakfast, and I play it by ear, but still wind up doing too much.
Last week started out as a pretty strong week. I went for a hike with friends Sunday, worked Monday and Tuesday, got myself a new city bike Wednesday and rode around town a bit, and by Thursday, I was totally SPENT!! I'm still shot!
With work, scanning anybody over 100 kg is just getting too difficult. My hands spasm while I scan the patient, and I come away shaking, unable to write, unable to concentrate while writing the preliminary report. I'm not sure how much more of this I have left in me... my fatigue hits me at the most inopportune moments, and it's really difficult to concentrate on any task at hand. I may have to leave work sooner than later.
I guess I already know my answer - I really need to PACE myself better. In the mean time, I have all these grand plans for the summer, and I really need to have a "Plan B" ready for any activities.
I've been diagnosed 2 1/2 years, now, after over 20+ years of symptoms. My neuro and I were talking last month, and I told him of stuff that happened in my teens and early 20s that may have been just coincidental, but he doesn't dismiss the idea that I may have had MS all this time. I'm progressing, slowly (hey, I'll take slow over fast!), and my neuro exam shows it. We've discussed the possibility of transitioning to SPMS, but he won't go there officially, because that would limit medication possibilities.
So I just keep on keepin' on, and trying to have fun when the opportunity presents itself.