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40 days post op

Mar 20, 2012 - 6 comments

Hi everyone I just wanted to say hi:) I haven't been on much mostly because you go through a funk....it's depressing to sit at home.  If you get out to much you pay later.  You worry about things that havent gone away ... like neck pain.  When familiar things pop up like achillis pain or eye twitching you think oh no.  I am thankful that the headaches are gone....yet when I over do it I get miserable so I am anxious about work.  So anyways I am feeling good as long as I take it easy.  I hate to hang out in a chair...I get depressed.  It's 80 degrees I would love to go ride roller coasters with my kids and as you know that never again will happen.  I am blessed I do feel my surgery was successful yet I do not yet know what that means.  I am so thankful for the skill of my NS as I do read and know I am doing far better than many I am praying for all of you.  This road is different for all of us and I am in the phase of waiting game.  I go to the Dr on 4/9 and anticipate by what I have read that he will send me to work so we shall see:). It looks like this should be a journal entry....I will copy it there LOL

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1903798 tn?1333905288
by Rylanesmom, Mar 20, 2012
I decided this should be here too:) My chiari specialist (Oro) diagnosed me ith EDS.  The problem is that you then need another specialist.  I finally found a rheumo Dr that treats EDS in my area and he was a waste of my time.  He really did not help a lot and said that since it is not vascular (based on testing I had one) the others are not life threatening and they would only treat symptoms.  The problem is ... Which pain and symptom are my EDS and how do we treat them urg.  I old like to know hat kind regardless of what that means.  So again I though I did the leg work to get a Dr to help .... and not so .... after chiari healing I will find EDS Dr.  

1827123 tn?1383865276
by jiggle93, Mar 20, 2012
Glad to see you on here, I was actually thinking about you quite a bit yesterday. God put you on my heart and mind, so know that you were being prayed for yesterday. Im sorry to hear all that you are struggling with. I guess this another example of Psalm 49:10 speaking loudly. Hoping your 4/6 visit gives you what you are asking for, and also that you do find that Dr. that knows just how help you. Thanks for keeping us posted.
XO, Jiggle

1903798 tn?1333905288
by Rylanesmom, Mar 20, 2012
Thank you:)  What verse? I think this might be a typo LOL.  I would love to hear the one you are thinking of.  

Since it ends in 10 it made me think of this one:)

Psalm 51:10

10 Create in me a pure heart, O God,
   and renew a steadfast spirit within me.


1827123 tn?1383865276
by jiggle93, Mar 20, 2012
Wooooops!!!!  46:10, not 49:10....Be still, and know that I am God. But 51:10 works well too!  Sorry about that, can I add deslexia (sp) to my issues too? Hahaha.
Oh Boy, major face palm!  Enjoy.
Jiggle

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by toughilou, Mar 21, 2012
Hi. I'm new to this forum, but I'd like to say that you don't sound ready for work, yet. Will be thinking of you, and hope your recovery is full, but I don't think it sounds like it is, yet. Hang in there and do what you are able to. Hugs

1903798 tn?1333905288
by Rylanesmom, Mar 21, 2012
I knew when it talked about dying and leaving your wealth that wasnt it LOL.

Thank you so much for sharing:)

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