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Updatey stuff

Dec 31, 2008 - 0 comments









brain lesions

Hadn't realized it's been so long since I visited this site.  Anyhoo, here's what's been going on....

Got the thyroid u/s results back.  Herbie's still there, but "stable", so that's a good thing.  Leveling out at a comfy 3.7cm.  Still need to see a surgeon, but that's kinda down on the list for now.  Have more immediate concerns.

And those would be the continuation of the neuro stuff.  Seizures are happening during the daytime now.  Not grand mal, but simple partials and (I think) sometimes complex partials.  Also have right-sided weakness which has been going on for 2 months.  Loss of some fine motor skill function in my right hand as well.  Fun stuff, huh?

My current neuro is an idiot or at least does a very good impression of one.  I called him when the right-sided weakness started and he said it was nothing to worry about.  I called him when my seizures changed and he said since I didn't lose bladder control or bite up the inside of my mouth they weren't seizures.  Apparently, he's never heard of simple partial seizures.  He also said my sleep study was "normal".  I got my hands on a copy and it sure as he** ain't normal!  Less than 1% delta sleep ain't normal!  The average is about 20% a night.

I tried the Provigil he rx'd.  Was only on it for a few weeks.  It didn't do diddly.  Maybe the dosage was too low at 100mg.  It also triggered microtremors in my jaw and right arm, the same places that tremor when I get seizures.  Coffee doesn't do that, so it's back to the java.  Yay coffee!

I have an appt with an epileptologist on the 15th and an appt with a brand new shiny neuro on the 29th of next month.  This'll be interesting.  I'm hoping one of them will order a thin-slice MRI.  Very curious to see if the lesion in the left lobe of my brain has changed at all.  The last MRI was done before the seizures started and the slices were so thick they'd have been good for making french toast.  Mmmmmmm...... french toast.  *Drool*  But I digress.......

I've been off the lyme meds for a little more than 2 months now.  I'm feeling considerably better these days.  Still somewhat tired, but the bone-crushing fatigue is gone.  And I don't feel 'sick' anymore.  Most of my physical symptoms are completely gone.  The meds were doing a serious number on the ol' bod.

Feeling sort of like the other shoe is going to drop any day now.  I'm really afraid of a relapse, provided it was lyme in the first place.  Then again, since my neuro symptoms continued to progress while on meds and nothing got better, I'm wondering if it wasn't lyme at all.

Will post again once I see the epi.

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