Jan 24, 2009
I`ve always been pretty well and fit,I work as a Postman and have done so for 21 years now,the only time I ever had to go to hospital was in my 20`s for a sinus operation which was just a day job.
All was fine until I turned 40,first I started with having pains in my stomach and it always felt like my stomach was full of acid,so I went to the doctors he gave me some pills,I was off work for a couple of months though until I felt well enough to return,that was in March 07.
I was okay till the end of July 07 when I started noticing that my eyes seemed to be having trouble reading the house numbers or house names across the street,I also always seemed to have a bad headache but I was having alot of trouble sleeping at the time and just put it down to lack of sleep,after another week or so I decided to go to my opticians it was here where they spotted I had Papilledema in my right eye,they said I would have to go and see a specialist eye doctor but it would take a few weeks.
During that time I carried on working with a banging headache,nothing seemed to touch it and I also had started with a very annoying noise in my ears which was worse at night,I went into work feeling even more drained of sleep,then one day I collapsed at work and came to in the Accident and Emergency Ward,the Doctor said I had to have a CT scan and as I had Papilledema he suspected a Brain Tumour,I think that was the worst moment of my life waiting for the results...they came back normal.
I then spent 10 days in hospital having a MRI scan,field test on my eyes and a Lumbur Puncture..now he`s the oddity it was only 15 so the doctors said I probably didn`t have IIH but I would have to see a Neuro and see what he said.
My Neuro said I had Intercranal Hypertension as it couldn`t be anything else,I had all the `classic` symptoms,whooshing in the ears,Papilledema and headaches he put me on Diamox 500mg a day.
I started with the Diamox in Oct 07 and had to stay off work,the side effects where just horrible,I felt like a Zombie,had terrible tingles and felt sick all the time,there was no way I could get to the local shops nevermind go to work,but having also just moved house in Nov07 ended up having to go back anyway as I was broke,lucky for me my work let me work indoors,in March08 I decided that the Diamox effects were wearing off and I went back on my post round,all was well until June when I woke up with a burning feeling in the right side of my back,the Dr was called and he said I had Kidney Stones and that the Diamox had probably caused them!
Once again after awhile I felt better until Aug08 and then started with bad headaches which was alarming as I was still on Diamox,I went upstairs as I was felling horrible to have a sleep and woke up a week later in Hospital I had a brain abscess,the Drs didn`t know wether having had Kidney Stones had something to do with it or I was just unlucky and caught a virus.I guess it was just one of them things.
Fast forward to a new year Jan13(yikes) once again I had a collapse at work,once again I`m in hospital thankfully this time only for 5 days,once again I have to have CT scans,MRI etc all normal,I`ve been ordered not to return to work and my Diamox has been upped to 1000mg,so once again I`m back to feeling like a Zombie,feeling alone as the family don`t understand this condition or anybody else as you look ok on the outside.