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Cautiously hopeful

Feb 08, 2009 - 0 comments

The more I read about this mastocytosis, the more it fits.
Here is the web address for more info on it: http://www.aafp.org/afp/990600ap/3047.html
I developed an allergic asthma out of no where about 9-10 years ago. I was sitting in a computer class at college and just all of the sudden, I could hardly breath. My hubby and I were just dating at the time, he came and picked me up and took me to the docs. That's when I found out it was allergic asthma. I had never had asthma in my life prior to that! I've also had a chronic "runny nose" for as long as I can remember. The acid reflux, I've had a problem with it since I was in High School. The skin lesions developed around the same time as the asthma, but the itch wasn't as bad back then. That has progressed over the years. About 4 years ago, is when it started getting bothersome enough to have to take Benadryl at night so the itch wouldn't wake me up. They are rather faded now, but under my arms I have what I believe to be urticaria pigmentosa and the pics I've found on the web look exactly like it when they flare up. http://www.medhelp.org/user_photos/show/65671?personal_page_id=205819 - sample image They haven't been too bad this winter cause I'm not working so don't layer my clothes as much. They always were worse in the winter because of the friction of all the layered clothes. (work was always kept around 68 F, too cold for me)

Anyway, this disorder pulls all my symptoms together. I even read something about a niacin test to see if your body produces too much histamine. You're suppose to take 50mg. niacin and if you get flushed from that low a dose, you have too much histamine. I've never been able to take niacin, at any dose, since I was a kid because the flush is just too bothersome! Add all this to the fact that my mom's docs told her she has high histamine levels... it just makes too much sense to ignore it. In fact, it has the potential to be life threatening because one could go into anaphylactic shock...

I'm calling the Cleve Clinic on Monday and seeing if under the circumstanses, a dermatology appointment would be considered "medically neccessary".


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