Feb 19, 2009
I realized today while looking at the hep c tracker that I actually only treated for six months, possibly a little less on the riba when you count the times I cut back just a little due to hemolysis. Plus, I'm not certain if I ended in March or April (it got REAL foggy at the end there, lol), so I'm going to put April 6th, 2008 as the end date just to be safe - although it may have been before that. I started on Oct 5, 2007. Geno 1b - but I was an acute, so it really doesn't count that it only took me six months of riba and interferon I guess, you can't go by that.
So I'm almost a year out from the end of tx. I feel truly spectacular. I am still SVR as far as I know, although of course I will check again in April to make sure I got my year in. I did check at six months and I was good. I have full energy back, and I've regained my strength and, as far as I know, my mind. lol
Through a kind of complicated process, it was having hep c that helped me to find out that I had antiphospholipid syndrome. In fact, except for having been on tx, I probably would be suffering chronic headaches daily for the rest of my life. There. The silver lining. A little aspirin and blood thinner daily now and its like I'm a new person. No more of this mind shattering chronic pain in my head. No pain meds or opoids necessary. No annoying and expensive cocktails of topamax and namenda. It's very nice. I still have anemia, but hey. We've all got something, right? And its really pretty easy to manage on epogen most of the time.
The residual negative effects of tx that I see in my own case are fortunately very small, and involve mostly some pain in my joints (hands to some extent, but mostly hips and knees) - usually if I'm immobile for too long. Certainly, it wasn't there before, so it is a side effect. (Not sure what's up with it though, my ana shows negative. Neuropathy from the chemo perhaps or a chemo induced inflammatory arthritic process of some type? Who knows.)
I think my thyroid may also have been affected to some extent - but I also think that I have to get in the back of a very long line to join that club because a lot of you have had such utterly profound thyroid issues from the chemo. My thyroid problems are hardly worth mentioning in comparison, just a little sluggishness. All in all, I think I've been so fortunate here. If I could be as grateful about the way I'm doing fiscally as I am about my health I'd be in really good shape. Still trying to get my financial house back in order and boy is this some economy in which to try to accomplish that.
I hope everyone is well, and for those who are treating, stay strong. It does end at some point.