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Desha Jean Miller (2/19/2013) NICU Journey

Feb 22, 2013 - 6 comments








**Will try and update daily**

Entry 2/21/2013: Today we are finally getting some answers for the concerns we have been asking Woodwinds to observe that didn't seem normal. Since she was born she had not produced a bowel movement and also stoped taking a bottle and breast 2/20/2013 2:30 AM. It took until we received a new pediatrician and tour discharge day for them to show any concern. So she was transferred to Children's hospital NICU in Saint Paul. So I guess this is were my LO's journey in life will start.

Update 2/22/2013: They didn't move forward with the second contrast enema. Instead they opted for a second opinion. The new radiologist suspects that Desha has "hirschsprung disease". De-Angelo and I are devastated. The bright side is since they caught it early enough if this is what they suspect then there is a great out come once the surgeries are performed. The biopsy that will be performed will be the determination. Please keep my LO and family in your prayers.

Update 2/23/2013: So today Desha was able to pass more stool, was very active and had lots of fits since she was hungry. We found out the results of her biopsy which confirms that she has hirschsprung disease. This breaks my heart but also relieves it at the same time because now we can start the process of making her better. Things like this are nothing a parent ever wants to hear or happen to the LO. She will be going for surgery at 10 AM tomorrow morning to attempt taking out the part of the colon which doesn't have the nerves needed to pass a bowel movement and reconnecting the other end to it which will have the nerves. Wish us luck!!

Update 2/24/2013: Day 1: The count down until her big surgery is almost over. A most an hour away the anxiety of waiting on the surgeon alone to come in and discuss the plan is just as intense. Desha mommy and daddy will be praying even harder today for you and hoping for a fast recovery. If everything looks good and its only a small portion she may not need a stoma. Fingers crossed. PMy second biggest moment of the day: They let me hold and rock Desha. #AllSmiles

Update #2 Day 1: Desha's surgery went great. It took about 45 mins to 1 hour after they got her to sleep. If everything goes right we should be out of here in no time. The next surgery will be in. 3-4 months then we can stay away from hospitals for awhile. Today should be a pretty calm day as she will be sleeping for the majority of it.

Update 2/25/2013: Day 2: So a recap of how last night would be great. Desha pretty much slept but woke up for about a half hour. Sh eras very calm and relaxed. Part of it may be due to the pain meds but let's just say it was a huge relief.

UPDATE #2: Day 2: 2/25/2013:
This little one is already passing another milestone on her recovery. They said this morning that it would still be a couple of days until she can't eat. But to much surprise this one was ready today. Mommy is so proud of you Desha. At this rate will be home, cuddling with Miss Mer in no time. :o)

Update Day 3: 2/26/2013:Woke up this morning to one of the doctors coming into the room. Desha's stoma changed colors from a red dark pink to a darker pink maroon. I'm scared / nervous. The progress looked very promising.

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by retta483, Feb 22, 2013
Keeping you both in prayer . I'm so glad they are finding out why so they can fix it .  She is beautiful congrats on the baby girl :)

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by melimeli, Feb 22, 2013

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by khawkins, Feb 22, 2013
Your little girl and family are in my thoughts and prayers!!

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by Moma_Cher, Feb 22, 2013
prayers for you and baby

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by trustGodHeWilldoit, Feb 22, 2013
Your lil girl nd your family are in my prayers..

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by KTowne, Feb 23, 2013
Praying for your baby girl and your family!

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