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The Beginning

May 23, 2013 - 3 comments

I've always been independent, self reliant, apparently living off nervous energy. At least that what my iris shows... Joining Hep C of Victoria has been a positive experience. It has heightened my awareness and stimulated me to find out more about the illness, Hep C. I remember the thoughts I had when I discovered a boyfriend had Hep C, feelings of concern, curiosity, need to know how it is transmitted etc.  I wasn't involved in heavy drug taking then.  OK, so years have passed and here I am, preparing for an appointment at Monash tomorrow in Gastroenterology Unit as I have had the Hep C virus for approximately 15 years.  I contracted it using needles. Why did I use needles? I discovered that heroin was the panacea for my Restless Leg Syndrome.  I maintain that anyone suffering the sort of sleep I did, also would have stooped so low to try heroin. It wasn't what I was thinking at the time.  I wasn't thinking if I take this 'drug' I'm going to be able to sleep. It was a surprise to me and to David that I could sleep under the drug, like a normal person.  RLS had been a chronic problem and nobody understood how difficult it was for me.  Having partners, sharing my bed with people was avoided. I preferred to Slam Bam Thankyou Ma'am...... David was a user and when he got into bed, he could sleep but was aware of my restless nights, tossing and turning, slamming my head against the pillow. It nearly caused a fatal accident too complicated to go into here. What is important to say here, is that Labella put me onto Med Help last night in the online chat. Knowing so much more about Hep C now but still so much more to know.....   Also got some good tips and will take advice, ie. get copies of all test results, get friendly with the nursing staff.....

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4950316 tn?1394184585
by asle, Jun 05, 2013
So glad you joined this forum. Like most things in life, it isn't perfect, but it has been my friend. I am all alone here treating. I looked after my partner of 28 years through his treatment, and the day he finished, he walked out to be with a girl he had never met that he had been wooing on farcebook. I needed to treat, so I chose to stay here in gods forsaken place, but I made myself become knowledgable about this virus and the treatments available. when I got scared and sick, I found this site, and some very smart people helped me through. I don't ask very easily for help. I don't say very often I'm scared. But I found solace and concern and support.
You know nothing is perfect. But there is gold and diamonds amongst these people. Spend time to go back through pages. Read as much as you can. Ask questions through the box on the right hand top of the pages. If you really want to learn and control your journey through this illness, you WILL find all you need to know. trust.



4950316 tn?1394184585
by asle, Jun 05, 2013
I'll help you.


5524415 tn?1372332390
by FiFiLamour, Jun 06, 2013
Thanks for your moving comments Asle...  It's nice that we already have connection, and I, like you, find it hard to ask for help.  When I do, I probably scream for it.  So I feel it's better if I don't!  Or do....  I was raised in a non communicative family, albeit privileged...  Lots of suppressed expectations. priority setting, I realized that there are more important things in life.  I knew I didn't want to waste my life on drugs.  But, I was confronted by a lifestyle, I despised from a distance, and then loved/hated the irony of having a habit.  Hep C is probably only one part of a lot of problems I face as a consequence of the self destructive lifestyle. having said that, I feel that I have been incredibly luck.  I gave birth at 40... After many terminations.  Not because of the drugs, as that happened before. I was a late starter. I had successfully refused taking heroin for about three years into the relationship with a chronic user who was 11 years younger than me, who was resolved to a life of drugs and gaol.  I, on the other hand fought tooth and nail to avoid gaol. And did.  he didn't care about me.  he used me. But we had a son together, who lives with David's parents. Last thing I heard they had an intervention order out against him but he had gone around to the home..  Just like he always found a way to get back into my life when I thought I had eluded him....   Dear oh dear, thank God it's not 15 years ago.   It hurts, been used. But we all do in a way and I realize it's going to take a miracle to find someone to share my life with now, romantically. Jamie is the centre of my universe but we have to contend with the Godfatherr of the Macedonian Community, Jamie's grandfather and all his village folk, who probably think I'm an evil woman...  The day I ran from David, I ran from fear, degradation, hostility, and so many other negatives you just can't imagine, to start my new life.  

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