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Getting A Life

Jun 15, 2009 - 0 comments
Tags:

Thalysimia

,

tired and weak

,

ALL LIMBS FEEL TIRED

,

extremely tired

,

sleep

,

fatigue

,

Blood

,

anemia



I have just recently discovered I have the blood desease THALYSIMIA. It is a type of anemia which has left me, for the better part of my life, chronically fatigued. Every morning I wake to start a day that my body feels i've just finished. I have no desire or gumption to push myself past the limits of completing a work shift on my job. Any extra activities I engage in is always over-shadowed with the expectation of retribution from my body within the next few days. Usually in the form of additional sleep requirements or a complete days rest. The worst case scenario being an inabilty to revive myself from sleep even though i'm aware of the fact that i'm trying to wake-up. Immediately followed by an extended period of feeling weighted down & moving through a watery bog. I've never associated my tiredness with anything but laziness. My religion teaches overcoming your bodies natual desires so this was just an ongoing battle for me. A battle I thought was being fought by the better part of the worlds population. I now know that "having energy" is the norm for most & not just a luxury enjoyed by a few. I have just now began the process of tending to my discovery through the only means I have available aside from prayer; the Family Doctor. My 1st appt was blood tests & a B12 shot. I felt like a human being for the 1st time in over 20yrs. I could stay woke for an entire day without the need for naps or time outs. I stayed focused & alert through-out my work shift. I could devote time to my kids on a daily basis for more than just an hour at a time. I had energy for my wife & extra chores around the house. This lasted for 5dys. I was told that some people come in regularly for B12 shots so I thought this was probably my answer. Traveling once a week to my doctors office would be a drag but the 'energy' pay-off would be worth it. Or so I thought. The second B12 shot I recieved appx 8dys later had no effect. The blood tests came back confirming me having THAL along with her inability to treat it & low Vitamin D. I got a px for the low VitD which i've been taking for the past 2wks but my fatigue remains. Coffee has never been an option for me simply because my body treats it like any other beverage, only occasionally giving me a boost. My only other option has been ENERGY PILLS/DRINKS. The downside to these have been the inconsistancies of their energy-hightening-effects on my body & their enevitable crash, which for me lasts about a day. So the Pills or Drinks are only rational in emergencies & only when I can assure the appropriate recupperation period. I need a better solution.

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