Shot 15 on Friday August  19th.  Today is Sunday August 21.    
33 weeks sounds so much longer than 9 weeks.  It is so much longer.   I dont even like looking at it written down.  My family acts like since Im not totally incapacitated like I was for the first 12 weeks that everything is just great.  Im sure I appear better since Im up and moving around.  I did get sick on This past Thursday for the first time in a while. My husband and two sons were at a music camp this past week and I was looking forward to getting some things done around here but all I could do once again is go to work and come home and get in bed.   I am anemic again.  They have started me on procrit again.  I just feel bad, tired, down.  frustrated.   I felt like I was fluish all weekend.  The boys are starting school monday and Im not even sure if they are ready.  I am so sic of this illness.  Im sic of having it, thinking about it, fighting it, studying it, explaining it, feeling it, worrying about it.   Jesus just get me through it.   I really dont have much more to say right now.  

Monday August 15th  2011

Well, I got a call from the study and they said my Platelets are down to 99.  They have just been bouncing around but mostly headed south.  Now they want me to go back on procrit once a week starting tonight.  My hgb has fallen back down to 10.1.  They had me on potassium for 5 days and then wanted me to go in and have the blood drawn to see where that was, but they did not have the test for me ordered when I got to Quest last week so I just did the CBC.  Im starting to wonder wonder wonder.   I am feeling ok.  I did post my private lab results on my photos for week 4 VL and 8VL   if anyone wants to look at them.    uggggh!       I will check back in at the end of the week.  

Well, today when I got home  I got this in my email   This is my 12 week results.     Just a reminder I am in the incivek dosing trial.  

We just received your laboratory results: you will continue Peg/RBV treatmen for 48 weeks.
Based on the report notification it means that your HCV RNA  at TW4 and TW8 were <1000. At TW12  you must be "undetected" ( HCV RNA<25 ) to even continue treatment, so it means you are undetected now.
The longer treatment is  based on slower respond on TW4 and TW8.

I have had my own private blood tests done that showed undetected at week 4 and 8.  Or so I thought.  I really dont know what to say right now, but I think it is sinking in that I really have no smart choice but to do the 48.  If I stop at 24 it is to risky.  If I relapsed, I would be on a whole new road and have to treat again anyway at some time.    
I am very sad but determined to do the right thing.  I guess I'll go eat some ice cream or something

Today is Monday August 8.  I did my 13th shot on Friday the 5th.  I did my 12 week blood draw a day early on the Thursday the 4th.  I was also able to stop the incevik a day early because the docs were not going to be in the office on Friday.   My hemo is up to 12.1 and they have stopped the procrit this week.  It was weird because I had to say something to the study nurse about it myself.  I know you shouldn't be 12 or over on procrit or that is when the possibility of the heart and stroke problems creep in.  All of us patients need to be proactive about our treatment by studying our meds, knowing our disease.  We cant expect the docs to catch everything.  I am in a trial and these docs deal with this all the time and still miss things. That is the second time I have caught something with meds that they missed.   BEWARE folks!   They did call me today and my potassium levels are low so I have to take a potassium pill for 5 days.   my platelets  are down to 113,000 so I need to ask about that next phone call.  They have just been steadily dropping.  I have been doing pretty well.  not a lot of nausea, or fatigue.  Still irritable.   Loving not having to take the incivek!  I havnt been real steady with the times on the Riba.  My doc said it has such a long 1/2 life that it didnt matter when you took it as along as you get in the required mgs in the 24 hour period.   I take three when I eat my first meal sometime in the am, and the second dose with a snack before dinner.   That had better be ok.  I have to say that I have slacked up since stopping the incivek.  But I havnt missed any doses.  I just feel more relaxed.   The strict dosing regimen was really getting to me.    I really dont have many complaints except for the weather in Fort Worth.  uggggg!