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my time fighting the dragon Journals
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Shot #9

Jul 08, 2011 - 2 comments

Today is Friday July 8, shot number 9.  I am still on reduced dose of 135mcg of interferon and 600 mg of ribaviran.  One interesting thing I was told is that with  the triple treatment, dose reductions like I am experiencing  has not shown to make a difference in SVR rates.  Before the 3rd drug was added to SOC it was not good at all to dose reduce either interferon on Ribaviran.  SVR chances were affected with of breakthrus or relapses. Now, with the triple therapy,  one thing is that you cannot reduce the incivek at all.   So I am feeling a little more confident.  I did have my own 8 week Quest HCV RNA QN TMA test done.  It is sensitive to <5.  I should find out I guess by Wed or Thurs next week.  I am feeling pretty nauseated again today but have been taking meds for that.  I did go see one of my clients today for a couple hours.  I was ready to come home and get in bed.  I am not going to my sister in laws 50th B-Day party tomorrow.  it is going to be above 100 degrees in the shade and It is just too draining.  Plus it is almost 100  miles away.
Just a good idea to lay low and rest rest rest!  

New Side effect: Bone Pain   yeah!

Jul 05, 2011 - 4 comments

Well, since Saturday I have had sudden onset of hip and femur pain making almost impossible to walk.  i sort of waddle.  I had to call all my clients and tell them I would be out for a week at least to give me some time to get this straightened out.   That was hard!  Now they are really worried.   Just seems one thing after another.  I went and had blood drawn again today and should know how things are tomorrow july 7.   I dont know if they can give me some pain med for the bone pain which Im hoping is from the Procrit.  I guess I hope that.  Right now if something normal went wrong I wouldnt know what the heck was what....  

shot 8 and hemo back down to 8.7

Jul 01, 2011 - 13 comments

Well, Today is Friday July 1, 2011, I had my blood drawn on Thursday and the results came back that my hemo had dropped back down to 8.7.  I guess that is why I have been feeling bad again.  They keep changing how many times a week they want me to do the procrit.  Im getting confused.  I did a shot on Thursday which I believe makes the end of the 2nd week.  I wonder if I am not responding to the procrit or something.  Tomorrow we will see how I feel .  Last Saturday's energy boost could be coming from the interferon shot on Friday.   I have been feeling pretty negative emotionally.  It probably shows in my posts and journals.  This is the 7th weekend I have spent sick in bed pretty much So I have had a couple of good days in a full 7 weeks.  Im getting so weary of all  this but I know I must keep going the best I can.  I have never wanted to leave this earth before my time, but I can understand why many of my saved brethren say they cant wait for the rapture to happen.  The first time today I was wishing it to come along.  

taking a dive

Jun 29, 2011 - 1 comments

Well Saturday I felt pretty good, Sunday not as good as Saturday, lower Monday, Tues, and Wed.  Spent Mond, Tues and Wed in Bed if I wasnt at work. about 5 hours each day.  It has been yucky, but better still then a couple of weeks ago.  My hemo is up to 10.0.   Just cant get rid of the nausea.