MedHelp.org will cease operations on May 31, 2024. It has been our pleasure to join you on your health journey for the past 30 years. For more info, click here.
Thought that you all might like to see this. It shows the tonsils seperately and herniatied at different lengths. They are also kinked and notched around the brainstem. Dr.Walsh sent this to me so I could see what he was talking about. He even magnified it so I could see it better.
Your welcome :) I just thought it was pretty cool.I have never seen a chiari pic like this. The right tonsil which looks like the left is 31mm and the other is 26mm. He said that it may actually be longer than he estimated and mmeasured, because it will dpend on how much they are kinked and how long and wide they are once he opens it up.
Apparently it is rare that they are the same length.
Yes, most people do not realize that as most times they r given one size and it is usually the longer of the 2.....mine were 6mm and 4mm..so it shows it is not the length but how it is affecting ur CSF and u.
I know. That's why when I see Dr's that say oh,it's not chiari because it is only 1 or 2mm. Well that does not matter. Someone with a 2mm herniation may have more blockage and it could much wider and cause MANY symptoms. On the other hand someone with a lenght like mine may be bery narrow and cause no problems...andthey could never have a single problem. Too bad I wasn't one of those .. :p I really liked that my NS wanted me to see exactly where the problem was and explain that the surgery would take longer. Between the retroflexed odontoid and the kinking stuff, he wants to make sure that he takes care of everything so a second surgery is not needed. He magnified this peice and said the flow is blocked all but a hairline and that we should not wait on surgery becasue of the way the tonsils are lying it could cause paralysis and since my legs already stay pretty much numb....he does not want to take a chance.
We are supposed to go over all of that at pre op. But from what I understand he doesnt use anything but a patch my from your own pericardium. We slightly touched on the subject when I voiced my problem with the other NS refusing to do that. He said well, that is unacceptable.
Comment
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker.
