Very very very low cortisol, less than 1 in the morning, what does this mean?

[oliviamarie12345]

I have had symptoms for two years of severe fatigue, headaches, muscle pain, muscle weakness, very thirsty all the time, etc. Exercise makes it worse, not better. My endo just tested my cortisol and it is less than 1 when tested in the morning. She said normal is at least a minimum of 6. What does this mean? She thinks I could have hypopituitarism. My pituitary is a little enlarged on an MRI. She just had me go friday for an ATCH stimulation test. What does this low cortisol mean? Please help!

[KonaRose]

Dear Lord, why have they let you suffer for so long? I, too, have gone through something similar, and I am a registered nurse. I have been so sick, fatigued, cloudy-thinking, waves of heat and pins and needles, too tired to walk across my house. My cortisol is between 3 and 4 and last week I was started on Cortef. I have adrenal insufficiency big time symptoms. Since the adrenal glands are responsible for over 100 hormones, I don't have hardly any and almost went into a type of Addison's crisis with cardiac symptoms. Even now my blood pressure goes way up, then the bottom falls out and it plummets to like below 80/50 and I feel like I am going to lapse into unconsciousness. I take a Cortef and 30 minutes later I am back among the living again. So this is not a disorder you want to take lightly. I am having an MRI of the pituitary tomorrow morning and if that is negative, next is a scan of the adrenal/kidney areas, looking for a mass or something. Please explain to your doctor how serious you are feeling, ok? Do not wait until you are in a crisis.
Aloha,
KonaRose