You should see a neuro-endo at a pituitary center and get treated properly for your pituitary tumor. You need to get the testing to understand what type of tumor you have and then get it treated. Too many doctors just judge them by their size - and not by their effect.
If you go the brain/pituitary tumor forum, there are links in the health pages there that can help you.
I found that my pain was mostly over my left eye even though it would go just about anywhere in my head, my primary point of pain was still over that left side. The neurologist kept telling me it was sleep apnea - which I do have; but I knew it was something else. I spoke with my cardiologist who got me hooked up with the right agency for my sleep apnea and even though that part of my life was finally straightened up - I still had the migraines. My migraines took on a new twist a year earlier when it started affecting my blood pressure and diabetes from the immense pain. Still, it took another year and another 3 week bout of migraines before I was so sick, I couldn't drive that I was taken to the er and I don't remember much after that until I woke up 4 days later. I still don't feel like I have the whole story. I am still having some headaches but I think when I get tired that's when it hits.
I don't know about all that stuff but your husband has the same symptoms I had. My migraines had gotten so bad after fighting it for over 2 weeks that I ended up in the er and somewhere along the lines, they discovered I had a pituitary tumor (benign). It is said that tumors that start in the brain are typically benign. Im not experiencing any of the symptoms any longer. My mood is stablized, I don't feel any depression; I'm a little slow on the up-take but I think that will come back. It seems as though I have a peacefulness that I never had before. I had a lot of what I would call paranoid thoughts, unable to focus, seeing the negative side to everything to feeling calm. I could only hope that's permanent. I had posted earlier that one of the signs of pituitary tumor is your pee looks like water instead of yellow and you urinate alot. Also pressure in your head from the tumor even though your pituitary is the size of a dime can cause a lot of pain/headaches. I was told if you have a pituitary tumor, it needs to come out especially if you're showing symptoms. I hope this helps.
Do you have a copy of your husband's ACTH stimulation test results ? If so... what were his cortisol levels ?
There is primary adrenal insufficiency (Addison's) and secondary adrenal insufficiency. I've learned that some Endocrinologists do not diagnose secondary adrenal insufficiency, although our own government discusses this condition on their website:
I have read that a lot of endos don't know how to properly interpret the Stim test. Try posting your q on 'real thyroid help' (google it) as there are a lot of people on there with pituitary problems.