I have recently been diagnosed with Behcets syndrome, having been diagnosed with Sarcoidosis for 7 years prior to that.
I have been on 200mg of Plaquanil per day to help my joints, for over 6 years now. I have been advised to come off it now, as my symptoms are less, and as a sufficient amount has built up in my system to potentially cause eye problems...?
My problem is that on the 5 occassions I have attempted to come off it, or reduce it to alternate days, or half a day, over the past 3 years...I have experienced changes in my vision and/or pain in my eyes within a day or two!
No one seems to think there should be any problems coming off it, yet I am experiencing this consistenly, and have had to visit the eye hospital on 2 of the occassions.
Do you have any advice with regards coming off plaquanil? Should this be happening? What should I do?