as you can see this forum is rathher slow that it just begun not long ago.
Since it is sa patient to patient forum the dorctors are not on it.
Has your darling son has been seen by pediactric neuros? If not, i would make that number one your next step and priority, and best seen at a larger hospital or university.
While p.t. do see array for patients, they can nott make his diagnosis.
The National Ataxia FioundTION may be a good place to look aorund , there is alot of info at the site from Ataxia of all kinds., and there are ALOT of typpes of ataxia that can be disease itseelf or a syptom of other reasons.
Sorry, but I wouldn't be able to make any kind of assumptions about his prognosis. I know it must be hard for you all, and fightening to say the least.
Until he has been seen by doctors who can compeletly evaluate him, try not to get too far ahead of yourself.
I hope this was any kind of help. Let us know what you think and find out.
be well and love that baby uup ! amo
have him general check up so that you can assure with his health.