*UPDATE*
I will be having a Decompression Lumbar Laminectomy on the 25th. I am scared, but this is my only hope at having some relief. I will let y'all know how it goes. I am scared.
I am sorry/glad to see others have the same problem with feet twitching/cramping at night. It keeps me up for hours (like to night). Pain meds help, muscle relaxers sometimes but not always help. Clonazepam aka Klonopin oral disintigrating tabs work the best. With 10 minutes they stop.
I broke my neck, C6specifically , and had to have c4 to c5 to c6 fusion with discetomy between c4/c5 and c5/c6 replaced with donar bone since mine was pretty much gone. C6 was nice enough to have pinched/poked my spinal cord enough to cause these foot twitching and cramps, plus tingling in my fingers and toes for, from what doctors gather the rest of my life.
I would love to find a home remedy to stop this.
Bananas before bedtime do help, but to many backup the plumbing.
Cheating and a shot of vodka helps, or make me just not care about them, but when they start I am willing to try anything to make it stop. I can't sleep once it starts.
*UPDATE*
The Amitryptaline stopped working in the Spring and it made me gain a ton of weight. My doctor switched me to 60 mg of Neurontin, which controls the localized lower back pain, but does not really help with the sciatica. I had my second round of bilateral epidurals 2 weeks ago. I have yet to see improvement. The first round lasted for 2 months. That was it. I am beyond frustrated. I am ready to tell my orthopedic spine specialist that I am going to a neurosurgeon. I want to fix the problem, and not mask it with drugs and epidurals. The procedure in which you get an epidural was extremely painful and very very uncomfortable. I love how people on other sites make it out to not be a big deal. I cannot stand the thought of going through this procedure every few months for the rest of my life. I feel like I was robbed of my 20s (I'm 26). I will be damned if I am robbed of my 30s too. Do y'all recommend going to a neurosurgeon? I have tried everything. I did the whole "conservative treatment" for a while now. I cannot stand this pain. Most of my life is spent lying in bed because it hurts to stand/sit/walk. It still hurts lying down, but the pain is lessened when I do lie down. My next dr. appt. is in December. I will keep y'all updated.
I had L/3 L4 L5/s1 fusion a year and a half ago and I'm pain-free in the back now but have the leg twitching and body jolting problem. The last time I asked about it I was told it wasn't going to go away (it started before the surgery). When I touch my left leg on the outside (by the hip), I feel ripples up my spine (which is downright creepy but bearable), and I'm starting to think I might have a touch of caudal equine syndrome (where you don't feel sensations "down there") - for me it's hard to determine when I need to have a BM....I feel a funny sort of tingling in my groin in general and it's taken me a long time to figure out that's a sign to go to the bathroom. It's hard to know because my BM's were so messed up being on all the previous pain meds. I also think I'm not sexually aroused as well as before (but this might be due to being on an SSRI)....but anyways....it's a year and a half out, I was turned down for disability too but am doing pretty well now. I'm not on any pain meds. I lost all the weight I gained when I was couch-bound and reading your story about not being able to lay clothes out on the bed brought back some memories (not good ones).....I also had a 1 year old when the severe pain started and it really hampered my ability to care for him.
Hi there,
I to have been suffering with similair complaints ,.I have a badly missaligned spine ..
Have had shooting pains regular ..I,m now having power assisted micro -manipulation..Its somethin new and is very good ..I have had 3 treatments up to know and I can walk properly again the pains are going .. please google it and try it ..Love to you all ..Brenda..
***UPDATE***
Well, Its Rather funny...Back on Nov. 2008, There was a post, Rather long post made by Queenfroggee1, looking for some advice. Well, I found this message board looking for some advice on my problem and I hope someone helps me out. Well, as I read that other post it occurs to me...That was me way back then. How funny is that. Well, so here is my update. Well, I found a new primary Dr. down here in Lake Geneva closer to where im living now, actually only since Nov. of 09. Its been a year as of Feb that I have been unable to work due to my back.
Well, I found a nurse that saw my MRI results from Sept. 08, yes no new scans or xrays....My regular dr. who i have recently fired for lack for care and other things associated with lack of time spent on his each of his patient. He kept telling me he couldnt get me into see the surgeon any earlier because of my insurance(being that it is state insurance) yet this nurse called the same surgeon and got me an appt. 2 wks after i went in for pain and saw her. Nearly a full 2 months before his set appt for me.
So I went in and seen the surgeon in Nov of 09, He came into the room after looking at the only MRI film i had ever gotten done, he looked at the results from my nerve test, and the report from the 2nd spine doctor and the first thing and pretty the only thing he said was, Since what I have read and looked at, the only conclusion i can come up with is that since you were born with these conditions, and have tried several things...its gonna be surgery. I said wow. Finally, Im thinking someone is actually doing something for me.
So on January 19th, 2010. I had L4-5 fusion with a PLIF procedure. Except and this is the scary part. The surgeon told my fiancee that he was taken back for a minute when he opened up my back, my spine was so compressed, he said it looked like someone took a vice grip to it. He couldnt believe how i managed to function and get around like i was all this time. He ended up adding 4 spacers and I had not just 1 pinched nerve I had ****6**** severly pinched nerves...
So now, Ive applyed and been denied ssi/ssdi bennifits, but i have since then reapplied and am waiting to hear back. my recovery is a year. But the reason i came on here is I too get those ghost pains...No fun...
***But, I need help....Ive been getting these severe and painful massive jolts/spasms. They start like on one side of my body and then they work there way up and around and down the other side. Its like they when you think your gonna fall out of bed and you try to catch yourself. But this is hard and it hurts something fierce. and then sometimes is my hole body like someone shook my whole body all at once. Im hoping someone understands cause its really hard to explain. Also, my legs, lower back(by the insicion) and butt check almost feels like a numb not my own body feeling. like i know im touching it but all i feel is pressure sometimes not nessicarily the actual touch. and then sometimes its just pain and pins and needles. And ofcourse i still have the severe rls.
***Now my question is...I know i still under 30 days post-op and I know that Im gonna have new feelings for awhile or lack of feeling for awhile. And I know that i had an extreme amount of damage due to the shape of my spine and how long it was damage for, but are these normal for the time frame...Whatcha think?? Please anyone
Tis Me Froggee....(Kelly)