Dear hopelesshopeful05
I agree with Rumpled,
The other aspect is that it is not clear to me if you had a brain/pituitary MRI and the results.
How about your prolactin levels? Are they under control.
Thank you
Daniel
Please find a pituitary center and a neuro-ENDO to get treatment. You also need to find a neuro-optho to get visual fields.
It does not seem that your endo is treating you properly for your pituitary lesion and it may or may not be a prolactinoma. As a fellow patient, I advise always getting copies of your tests and to get testing on ALL pituitary hormones just in case others are effected. It sounds by your symptoms that you could have other issues.
BTW stopping medication means the tumor grows and that means it could have effected your vision. You should have regular MRIs to monitor as well as regular lab work.
Thanks to your advise.! But just want to ask what may be the best Pain reliever for a patient like us with pituitary tumor.?
It is hard to say. Pain is not easy (live with it myself). I have used many meds and use acupuncture long term as I don''t like the pills and side effects. I did pain mgmt for a while but did not like how it made me feel with all the pills. I would rather eliminate the source. People react differently. I know one of my docs liked ultram - but you should only do pain meds short term and under supervision.
Before I stopped taking my cabergoline I had my menstruation normal but as I stopped it since August 2012 upto now my menstruation doesn't visit me yet.. Because of loosing hope I am not seeing any of my doctors anymore and also because that I don't have enough money for m treatment ..
Dear Hopelesshopeful05
High levels of prolactin prevent the menstruation to happen. It may not be a good idea to stop the dopamine agonists (bromocriptine, cabergoline etc). Have you done a pituitary MRI?
I just had my MRI once,, it is when my endo diagnosed me with tumor,, but never did it again because we do not have that lots of money for my medication expenses..
Have you contacted the manufacturer for assistance in paying for the scripts? There are sometimes programs to helps. I know my neuro-endo office has information on programs and some medications have even formal programs where they assign you a person.
Your pharmacy or the internet may be able to help you as well.
Dear hopelesshopeful05
It is very important that you have followup imaging, particularly with thoughts about stopping the medication. You do not want stop if the tumor is large.
Although the prolactin level can give an idea if the medication is working. There are cases (mix cells) that the tumor respond only partially to dopamine agonist even with the numbers going down.
Any attempt to stop medication should be supervised by your doctors.