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fordyce's condition/hpv problem (lip line - white bumps/redness)
hi everybody, this is my first time posting here, although i have read through different forums for a couple of months now and have found this site extremely helpful.
ok so here is my problem: about 4 or 5 months ago i contracted hpv. i wasnt completely sure i actually contracted it until a couple months ago when i noticed a wart in my genital area and had it frozen off. this whole ordeal, although it stressed me out a lot, went relatively smoothly.
however, the thing is, that about a month after i believe i contracted hpv, i noticed two small white dots on the border of my top lip. i assumed they were just white heads because i have had semi-frequent pimples on the borders of my lips before. So i put some tazorac on them to cure the problem. however all that happened was a real pimple showed up right next to the dots, got big, popped, and went away leaving a slight scar. while the pimple got big, the two dots seemed to fade away, but after the pimple went away the dots came back. so now i have these two white dots on the edge of my lip on top of a scar that is a little darker than the color of my lips.
I was worried for a while that they could be the beginnings of warts on my lips, but judging from the what i have read and from the fact that i did not engage in oral sex with my partner, i doubt this is the case. My dermatologist took a very brief look at them and said they are either clogged pores or sebaceous glands. Then when he saw the sebaceous glands actually on my lips (which i'm absolutely sure is fordyce's condition) he said they're probably just more sebaceous glands and there is nothing i can do about them.
however in this last month or so i have noticed many more of these small white dots appearing along the edges of my lips and a little above. i wasnt too worried at first but then they became more and more visible, and started having lots of redness around them, which is the worst part, making them even more visible. this is causing me to start to doubt that these dots are sebaceous glands.
they seem to be worse after i wash my face or if i stretch my lips a lot or anything like that, and sometimes appear very oily and shiny. i find at times the red area seems to sting/burn until i pat it down with a paper towel.
they seem to blend into my lip more and not be as visible when i drink LOTS of water, right after sleeping, or when i drink alcohol.
i apologize for the length of this post, but i thought it would be best to include as much information as possible in order to clear up any vagueness or over generalizations of conditions.
if anyone has experienced anything like this, please let me know what has worked/not worked for you, or your ideas on what it might be?
i am assuming that the timing of these bumps and the hpv are just coincidence, but if there is any reason they may be connected, i am open to hearing it.
again, i apologize for the length, but hopefully some of you can relate and we can help each other out. i wish good health to all of you, thanks.
ok so here is my problem: about 4 or 5 months ago i contracted hpv. i wasnt completely sure i actually contracted it until a couple months ago when i noticed a wart in my genital area and had it frozen off. this whole ordeal, although it stressed me out a lot, went relatively smoothly.
however, the thing is, that about a month after i believe i contracted hpv, i noticed two small white dots on the border of my top lip. i assumed they were just white heads because i have had semi-frequent pimples on the borders of my lips before. So i put some tazorac on them to cure the problem. however all that happened was a real pimple showed up right next to the dots, got big, popped, and went away leaving a slight scar. while the pimple got big, the two dots seemed to fade away, but after the pimple went away the dots came back. so now i have these two white dots on the edge of my lip on top of a scar that is a little darker than the color of my lips.
I was worried for a while that they could be the beginnings of warts on my lips, but judging from the what i have read and from the fact that i did not engage in oral sex with my partner, i doubt this is the case. My dermatologist took a very brief look at them and said they are either clogged pores or sebaceous glands. Then when he saw the sebaceous glands actually on my lips (which i'm absolutely sure is fordyce's condition) he said they're probably just more sebaceous glands and there is nothing i can do about them.
however in this last month or so i have noticed many more of these small white dots appearing along the edges of my lips and a little above. i wasnt too worried at first but then they became more and more visible, and started having lots of redness around them, which is the worst part, making them even more visible. this is causing me to start to doubt that these dots are sebaceous glands.
they seem to be worse after i wash my face or if i stretch my lips a lot or anything like that, and sometimes appear very oily and shiny. i find at times the red area seems to sting/burn until i pat it down with a paper towel.
they seem to blend into my lip more and not be as visible when i drink LOTS of water, right after sleeping, or when i drink alcohol.
i apologize for the length of this post, but i thought it would be best to include as much information as possible in order to clear up any vagueness or over generalizations of conditions.
if anyone has experienced anything like this, please let me know what has worked/not worked for you, or your ideas on what it might be?
i am assuming that the timing of these bumps and the hpv are just coincidence, but if there is any reason they may be connected, i am open to hearing it.
again, i apologize for the length, but hopefully some of you can relate and we can help each other out. i wish good health to all of you, thanks.
I think I have the same condition, and I'm concerned its HPV as well. I contracted the genital wart strain of HPV around the same time I noticed the bumps (even though I used protection). I think I performed oral as well. Now I have a small cluster of white bumps on the inside of my upper lip towards the corners. It seemed to spread a little bit at first if I can recall correctly, then remain seemingly stagnant at some point.
However, its about 3 months later. Now my lips often feel constantly chapped, and I think it may be causing swelling on the center of my upper lip, where it is more visible. I'm hoping its not a wart forming on my actual lip, just constant swelling, cause as you said, it seems to go away with water, alcohol, after sleep, or when i put on some cortisone. Im starting to freak and out and this is causing me a lot of stress. It was much more manageable when it was hard to see.
I am wondering if anyone has had any follow up with this topic to further determine what was wrong, or if anyone has had any successful treatment. Further, does anyone know if there are any effective treatments for oral HPV. It seems like a lot have people in this thread have verified my suspicions, but no one has offered a remedy, or follow up, which is what I think most people who stumble on to this are looking for.
someone help!! :(
However, its about 3 months later. Now my lips often feel constantly chapped, and I think it may be causing swelling on the center of my upper lip, where it is more visible. I'm hoping its not a wart forming on my actual lip, just constant swelling, cause as you said, it seems to go away with water, alcohol, after sleep, or when i put on some cortisone. Im starting to freak and out and this is causing me a lot of stress. It was much more manageable when it was hard to see.
I am wondering if anyone has had any follow up with this topic to further determine what was wrong, or if anyone has had any successful treatment. Further, does anyone know if there are any effective treatments for oral HPV. It seems like a lot have people in this thread have verified my suspicions, but no one has offered a remedy, or follow up, which is what I think most people who stumble on to this are looking for.
someone help!! :(
I too have these horrible white spots on my lips. I got them from my not so faithful lover. He had them first then a few months later I got them and now my five year old daughter has them. I've had them for five months now and since I noticed them have been trying to get a diagnosis. I know they are very contagious since my five year old got them and my lips constantly are chapped and so are my daughters. They are more noticeable when the lips are stretched ans they are only on the top lip.my dermatologist said it could be a fungus so I used the medicine she gave me and they never went away. So then I went to a family doctor and she called another doctor in the room to look and they were both completely stumped. She gave me a steroid to try and it didn't work. So then I went to my dentist and he thinks they are fordyce granules. The only problem is fordyce isn't contagious although my lips do look similar to the fordyce pics. Along with the white bumps on my lips I started getting little white ulcers in my mouth and muscle twitches all over my body that are worse during my time of the month. They all came at the same time and that was when I trusted and tried to work things out with the idiot I was with. The only problem now is that I've gotton three different diagnosis but nobody is real sure and I'm wasting money left and right just to end up at a dead end street. I'm scared everyday and even seperate my silverware and toothbrushes from my other two kids because I don't want them to get this mystery diagnosis too. I'm sad because I won't kiss my kids and I feel like my lips are so ugly.these little things changed my life forever. If anyone has any luck please post back on here so I can at least now what's going on thanks
I too have these horrible white spots on my lips. I got them from my not so faithful lover. He had them first then a few months later I got them and now my five year old daughter has them. I've had them for five months now and since I noticed them have been trying to get a diagnosis. I know they are very contagious since my five year old got them and my lips constantly are chapped and so are my daughters. They are more noticeable when the lips are stretched ans they are only on the top lip.my dermatologist said it could be a fungus so I used the medicine she gave me and they never went away. So then I went to a family doctor and she called another doctor in the room to look and they were both completely stumped. She gave me a steroid to try and it didn't work. So then I went to my dentist and he thinks they are fordyce granules. The only problem is fordyce isn't contagious although my lips do look similar to the fordyce pics. Along with the white bumps on my lips I started getting little white ulcers in my mouth and muscle twitches all over my body that are worse during my time of the month. They all came at the same time and that was when I trusted and tried to work things out with the idiot I was with. The only problem now is that I've gotton three different diagnosis but nobody is real sure and I'm wasting money left and right just to end up at a dead end street. I'm scared everyday and even seperate my silverware and toothbrushes from my other two kids because I don't want them to get this mystery diagnosis too. I'm sad because I won't kiss my kids and I feel like my lips are so ugly.these little things changed my life forever. If anyone has any luck please post back on here so I can at least now what's going on thanks
I'm a 30 yo man. I have the dots too. They look EXACTLY like Fordyce's spot but aren't, I can claim the same progression of the condition as previous posters:
In september of 2010 I had sex with a girl who was a little aggressive and bit my lips too hard / ran her tongue deep in my mouth. I had what I would consider sore in my roof palate a few days later, that I attributed to my eating extremely hot/spicy noodles, but it might have been that my sensitivity was accentuated due to the condition morphing. The next couple of weeks my lips went through extreme dryness and peeled continually, particularly the upper lip. At the time I attributed it to the harsh dry climate conditions (tibetan desert.)
A few dots showed up. I looked it up and found out about Fordyce's spots, thought of it no more and figured "hey I'm getting old, it happens." They aren't the first thing you notice, but on closer inspection they are clearly there. They appear to form an under-layer directly under the surface. They appear clearly when stretching the lips. Furthermore they appear in the inner cheek layer in my mouth, where the dark red / clear white contrast makes them more obvious.
Disclaimer: I had genital HPV before this. I'm looking into those white spots and believe the OP when he says this is an underlying CONTAGIOUS disease. My theory is that skin has to be broken for this to take root in the inner membrane of the mouth. My fear is that it might slowly spread to all of one's skin, adding rough patches. I am calling it contagious because this is a condition which I was entirely clear of prior to it showing up. It is a rather extreme change from a "always healthy" upper lip to one that looks like it has been exposed to a dry wind for 2 hours continuously. Add to that the awkward looking white patches on the lip (that if stretched are made of white dots) and I'd rather it have the "dry lip" look than the more noticeable "hydrated but visible patches on lips" look.
To doctors and others who are like me doubting their condition:
REALIZE that AIDS was unheard of until 1981 (http://treasuresoftheinternet.org/health/aids/intro/aids_intro.shtml)
New diseases can be discovered even NOW that no doctor have a prior knowledge of. Share your story with others, append your experience, and only when enough have done so will we have people actually pay attention to the issue. If you are a doctor, ask your peers about the condition.
In september of 2010 I had sex with a girl who was a little aggressive and bit my lips too hard / ran her tongue deep in my mouth. I had what I would consider sore in my roof palate a few days later, that I attributed to my eating extremely hot/spicy noodles, but it might have been that my sensitivity was accentuated due to the condition morphing. The next couple of weeks my lips went through extreme dryness and peeled continually, particularly the upper lip. At the time I attributed it to the harsh dry climate conditions (tibetan desert.)
A few dots showed up. I looked it up and found out about Fordyce's spots, thought of it no more and figured "hey I'm getting old, it happens." They aren't the first thing you notice, but on closer inspection they are clearly there. They appear to form an under-layer directly under the surface. They appear clearly when stretching the lips. Furthermore they appear in the inner cheek layer in my mouth, where the dark red / clear white contrast makes them more obvious.
Disclaimer: I had genital HPV before this. I'm looking into those white spots and believe the OP when he says this is an underlying CONTAGIOUS disease. My theory is that skin has to be broken for this to take root in the inner membrane of the mouth. My fear is that it might slowly spread to all of one's skin, adding rough patches. I am calling it contagious because this is a condition which I was entirely clear of prior to it showing up. It is a rather extreme change from a "always healthy" upper lip to one that looks like it has been exposed to a dry wind for 2 hours continuously. Add to that the awkward looking white patches on the lip (that if stretched are made of white dots) and I'd rather it have the "dry lip" look than the more noticeable "hydrated but visible patches on lips" look.
To doctors and others who are like me doubting their condition:
REALIZE that AIDS was unheard of until 1981 (http://treasuresoftheinternet.org/health/aids/intro/aids_intro.shtml)
New diseases can be discovered even NOW that no doctor have a prior knowledge of. Share your story with others, append your experience, and only when enough have done so will we have people actually pay attention to the issue. If you are a doctor, ask your peers about the condition.
I have the exact same experience as all of you. It started with a white dot on my top lip after kissing a gay guy when I was 18 (He was also 18). It has slowly spread along my top lip since then. Now 17 years later I just learned to live with it. It looks bad under certain light. If my lips are hydrated the white dots are more noticable so I prefer the dry look too but they do feel more chronically chapped and dry. I also concluded that it is an HPV that my healthy immune system is controlling but not completely. I know it would be diagnosed as fordcythe but am sure its some kind of viral transformation based on the fact that it appeared a month after kissing and has been spreading slowly ever since, likely ...it would be great to come up with a treatment for it...is there any research?? The other thing I noticed is that ton of people have it and i think its pretty much unavoidable if you are a normal human being doing normal human being things like kissing. i still get great modeling gigs and its not the end of the world, but really would be nice to treat!! a good starting point would be to look for HPV genes in tissue biopsies from the site. I don't think you need more than a scratch of skin to get results from a PCR reaction...why isnt this being done? it coudl be related to cancers etc...
Add me to the list. My story is the same, spots on the upper lip that look like Fordyce but aren't. I get a burning sensation from time to time and they always feel chapped and puffy. This first occurred about 10 years ago after physical contact with a shady character I met at a bar. I know it isn't Fordyce, I think it is viral in nature and contagious. I'm convinced it is some kind of STD but I've been tested over and over again and results are always negative.
Has anybody out there got any new information? I've given up seeking a mate and am living a hermit-like existence for fear of giving this to someone else.
Has anybody out there got any new information? I've given up seeking a mate and am living a hermit-like existence for fear of giving this to someone else.
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