A related discussion,
Proctitis/Ulcerative Proctitis was started.
i'm 30 years old i was diagnosed with endometriosis 3 years ago 3 months after i got married and went through a telescopie to remove the cyst and endo , i had constant severe rectal pain and pressure for 3 years other than the endo attacks that kept me checking in and out of imergancy rooms after i got pregnant it disappeared and now my baby is 5 months old and i have rectal pressure and pain again
most of the month during ovulation, the day after sex ,during periods ( i do not have rectal bleeding )
can't sit can't walk my marriage is in trouble my life.. well i guess this pain kills whatever life we have it seems i'm not alone and this is getting very popular i think the doctors should do a better job finding the reason and cure Christ i mean cancer is being treated and we still don't know what we've got ....
my gynecologist says it couldn't be the endo back so soon after giving birth and i don't know what to do i don't want to go back in time those 3 years were hell ...
i'm sorry for all of us and i wish they'd find us a cure
Hi there, I had just what you are describing for 6 months almost non-stop, except when I was sleeping. The pain was driving me nuts. Mine started in January with an ovarian cyst that was pressing on my rectum. I had the cyst and left ovary and tube removed (benign) in March, but the rectal pressure and pain was still there. Went and had a colonoscopy in June and that revealed 1 medium sized internal hemorrhoid. My primary care physician was willing to try a muscle relaxant called flexeril which I was able to take only at night (it made me sleepy). This has relieved the spasms to the point that now I only have them occasionally and much milder. I am no longer taking anything for the pain, and hope the problem does not return.
I am posting this in the hopes that you too can find some relief. I know exactly how you are feeling because every morning I would get up hoping the pain would be gone only to find it was still there.
Please post again and let us know how you are doing.
Linda J
I hope everyone is feeling better or at least found out some news! I still havent,ended up in er Fri nite severe pain ,felt like appendix acting up..had symptoms..urge to pass stool or gas ,and couldnt,nausa fever,and worst stomach pain,but after bloodwork and another catscan dr said it isnt that. 2 more days till my laparoscopy,still unable to eat or sleep..this is so #$_+(@! miserable,how do you all deal with it? I told my dr if im not on some pain managment i swear i'm about to shoot myself! ( I know I wouldnt or couldnt do that) but I guess when your in so much pain you reach point you cant take nomore.I think I reached the point I cant eat no matter how hungry i am,just been living on liquids.Anxiety attacks kick in few times a nite,thinking im not gonna wake up cuz im starving to death ,my heart is gonna stop blah blah...this really does take a toll.I use to have high tolerance for pain,this is going on for 6 months!Can endometriosis really be this painful,and make you sick? good luck to everyone!
CLK5........
I know exactly how you feel! Your symptoms are almost like mine to a T. I cried when I read your post. The "nothing in your rectum" after you finally have a bowel movement. the constant pain, the "tolerable days", The thinking that tomorrow will be better, only to wake up with the terrible agony again.
My life has also turned to utter ****, cause the only thing that makes me feel normal is lying in my easy chair on a heating pad, and doing absolutely nothing all day. And of course that makes the constipation worse, our bodies need exercise to make our guts work right. But my God what a catch 22, cause even walking at work is sometimes utter agony. I have to take pain pills just to make it thru somedays, and those cause constipation too.. so what the hell are we supposed to do?!?! I don't want to live the rest of my life like this either. I wake up in the morning and waste so many hours of my life waiting for a bowel movent, trying again and again so the pain will go away, or give me some freaken relief. And my sex life is practically non existant. It wasn't that great before, because sometimes it hurt, but now, it hurts all the time. I get no joy whatso ever out of it. I feel bad for my husband and sometimes cry and think he deserves so much better than me, this lump of **** that lies around all damn day.
For those following my particular story, I wish I could give you all some good news. But I still have no answers from my rectal specialist. I have two more tests to go thru. One is an MRI, and the other the defogram thingy.
I usually don't post on these either but after reading this post I feel it's my duty... And Might I add, I'm so glad to have found you people.
I am a MALE (we too have this problem) and I have had this problem for 3 years now. I know that sounds bad knowing the pain, however, the good news is I've done tons of self research and thought alot about this problem and seen many doctors, accupuncturists, and herbal medicine people for this problem and I have some help to offer you poor suffering souls! ;)
As far as this problem is concerned, I'm just like all the rest in as far as I too once could only think about my rectal problem, the feeling, the pain, etc. I still focus on it a bit (hence tonight my searching on the net found this site) but it isn't all encompassing, one can live a good life. Since this problem started I've been around the world and lived for long durations in foreign countries with this problem.
I believe for me this problem is caused by weak or stretched ligaments the support the rectum. The doctor I saw at Bumrungrad in Thailand also felt this to be the case and went so far as to say it looked like (from the cheap cheap tests they do in Thailand for all of us broke people in the states) the there was some abnormal descension in the region of the rectum (perianal?). This would be why when we need to go to the toilet we REALLY feel the large mass and pain and after we've gone to the toilet the heavy feeling subsides after going. The weight of the feces really puts a weight on the rectum. The complete solution to this problem I haven't found, YET!, but I will. And until then we all must keep our chins up and search inside and, importantly, outside the medical system. Obviously there's not a lot of interest for western medicine in fixing this problem. The doctors in the states really can't diagnosis it (and the ones in Thailand struggle as well but they are nicer and will try really diligently to diagnose the problem unlike some experiences I've had in the USA.
OK, so here are some things to do to relieve the pain and constipation:
1. Metamucil. 6 capsules every night. The next morning drink hot water (or coffee if you must) to push through the metamucil. This help relieve the constapation and clear out the bowel in the morning. The metamucil also isn't so bad for your health. And the hot water pushes it through. You might have to have 2 or three cups of hot water, maybe more.
2.Water jet enema! My favorite! Basically, after you deficate, take a water jet from some source (get creative) and shoot some water up into the rectum. Then expell the water. Repeat this a few times until you feel like you have gotten rid of that "mass". I discovered this solution staying in a 5 star hotel room that had a bidet. If there's no bidet then I make a home made bidet. I went to the local store and bought a spray water bottle that will produce a strong stream. After I deficate, if I'm not near a bidet, I will use my bottle of water to clean out my rectum. It really helps.
3.Yoga. It's one of the few things I know of we can do to strengthen those inner muscles in the bowel area. I did this reliegiously for 5 months and I can tell you it helps.
4.Pay attention to the foods you are eating. Cut out the junk, the sugars, the low fat high calorie foods over processed foods. Try to eat very natural whole foods. I find a diet based on brown rice and vegetables really helps with the problem as well. If I eat junky food, I can tell my symptoms get worse.
*IF ANYONE FINDS A SUCCESSFUL CURE OR REAL DIAGNOSIS MAKE A PROMISE THAT YOU WON'T FORGET THIS BOARD AND YOU WILL POST THE "CURE" OR DIAGNOSIS. Too often people moan and groan on these sites, but when they feel better that forget all about the posts.
I hope this has helped a few of you struggling out there.