Isnt the stuff your talking about in the packet, off bran name for Questran. I have tried that stuff for my diarrhea and it seems to make me worse. I got bloated and terrible cramps, and it didnt seem to help much.
Would love to talk to you. What meds are you on? I ALSO have IBS. I am constanly running to the bathroom.
Please email me at ***@****.
Marcie
Would love to talk to you. What meds are you on? I ALSO have IBS. I am constantly running to the bathroom.
My email is ***@****.
Marcie
WOW, finally I found a website where people are just like me. I had my pain start in feb, they took my gallbladder out in april, and it made things worse. I thought I was nuts at first, everyone I knew that had their gallbladder out said I should of felt great but I didnt. After alot of test and doctors visits they said SOD. My gastro doctor frowns on ERCPs, says theres alot of compalcations and doesnt help SOD very often. He put me on three medications, and most of the time they help. I was having alot more attacks, but now there just here and there. I have put on 20lbs from just laying around and not feeling good. I also got IBS from having my gallbladder removed, pretty much has ruined my life. I have three children and a great husband, they help out a lot. Its very depressing thinking that my life is going to be this way forever. Wish I still had my gallbladder, I think alot of doctors are to quick to cut, and should check into things more before taking out one of your body parts. No one ever told me that I could get IBS from getting my gallbladder out, found that one out later. One of us should come up with a chat line on yahoo or something. See whos doing what, and whats helping some people. If anyone wants to just post reply and we will put one together. I would love to chat to other people on how bad I feel, and know they feel the same. I know my family has to be getting sick of hearing me complain LOL.
I had my Hidascan done yesterday. The radiologist was wonderful and gave me the results. If you read above, you will see my post and my story. The scan was no problem and they could find nothing wrong. Everything is fine, no blockages, obstructions. So we are on to the next round of tests. I have a CT scan on Monday. I will let everyone know how that goes. Please let me us know the results of your Hidascan.
Honeslty for people who have this disorder ask yous specailist about.
CHOLESTYRAMINE 4G PK.
This has worked for me, it's a grainy powder that helps collect
the bile, and helps you digest your food, which stops the pain,
attacks, and feeling lousy. It was created for people with high
cholesteral, but has worked for me, and people with Sphincter of
Oddi Dysfunction. Please give me some feedback, I hope Ive helped
you. I'm only a 17 year olds, and I understand the depression
part of it, I've had my gallbladder out for 2 years now. Although
we have to go threw so much. This medication honestly helps for
the attacks.
*After, or during an attack I ussualy drink it, and truthfully after about 2 minnutes it's gone. It comes in two flavours. Orange or a lemon flavour. I ussualy mix it with pulp orange juice and you can hardly taste the grainyness.
PlEASE LET ME KNOW HOW THIS WORKS FOR YOU OR WHAT YOUR DOCTER RECOMENDS> This has actually changed my life.
Thanks, Erin :)
Good luck