gastroenterology mystery illness

[mematrix]

My 40 year old daughter has been very ill for about 2 years now with something that none of the many Dr.s she has seen have been able to identify.  She has upper right sidded abdominal pain, severe enough to require 30mg oxicodone to take the edge off and make it tolerable.  She also has constant nausea and vomiting and has lost 70 pounds in the past year due to the fact that everytime she eats (doesn't seem to make much difference what she eats) she has pain, nausea and diarrhea.  She had her gall bladder removed about 3 years ago and it was somewhat better for about 6 months but has gotten consistantly worse since that time.  She had a surgery about 6 months ago in which the surgeon tightened the upper stomach opening and opened the bottom.  Since then she has had constant diarrhea, nausea and pain.  The surgeon has given up and said, "Maybe this is just who you are."  She has been unable to work and is exhausted with the slightest efforts.  She is now being treated for depression since she is nearly housebound and having financial worries since she can't return to her job.  Her disability insurance is about to run out and she is very ill.  Please, can anyone help?

[mematrix]

Thank you so much for your response.  Remember...It's not me who is ill but my daughter, Memanatrixkid.  I don't know if she has been tested for celiac but she has tried staying off carbs and that didn't help.  I'm having trouble getting her to check her messages.  She is so frustrated and hopeless, as I'm sure you understand well.  Thanks again for your encouragement.  Her next step is to get another opinion but she has had several and they are so demeaning it is hard for her to follow through with and no one can do that for her.  

[yeboca]

I too am suffering from Right upper quadrant pain post gall bladder surgery 10 years
ago they have removed sludge and stones, but for 6 months have lost almost 28 pounds
and loss of apetite i was also told it is me, I am a RN and i believe there is a reason
for pain. Can a spincteroctomy re occur, they have put in a stent before which helped
but it also blocked,
let me know your thoughts and wish you well

[mematrix]

Thank you for your comments.  It seems like so many people have this problem following a gall bladder removal yet the Dr.s don't seem to have a clue about the cause.  memanatrixkid was supposed to have (yet another) endoscopy yesterday but after 3 hours of waiting they couldn't get their equipment to work so she went home.  The associate Dr. (primary gastro was out of the country...again) read from the chart aloud and he said, "Maybe this is the best she will be.")  Constant pain, still losing weight (lost 70 pounds so far), constant nausea and diarhea and very low blood sugars, 60 sometimes.  This is the best she will be?  I can't accept that and neither can she!  She  is a young woman with children and a husband who have been on hold for nearly 2 years because the Dr.s don't seem to know or care what is wrong.  Sorry for the rant...I'm at my wit's end.  Hope you feel better.