Hi, I'm 33. My dxs are eds, chiari, autonomic dysdunction, raynauds, basilar invagination, possible lupus, etc.... I am curious if anyone with eds has issues with pain/swelling in shoulderblade and up neck into top of shoulder and down top of collarbone area? I have had this for 6 years but now its constant and extreme pain. None of my drs do anythibg except perscribe drugs. Curious if this is from my eds or one of my other dxs? Thanks, Dana