With my dad it is getting more noticeable as his skin thins with age....but he had one or 2 that were obvious yrs go...and as I said I have them but I can only feel them, they can not be seen....very odd these things we have with EDS....
The ones on my hands have gotten really big and less hard so I am hoping they are on their way out. I had lost all bumps on my hands after chiari surgery and was sad when they returned.
Well the one I had on my eyelid for yrs is gone it was weird as I always felt it as I rubbed my eyes, and this one time I did so, I felt this odd thing and here the stuff came out of it...it was solid...so now that one is gone and has not come back..it has been a few months too....so hopefully it was the right situation for it to release...I had just had a warm shower...so how knows...lol...
hmm I have had one on the top of my nose on the side by my eye for years! Maybe it will go away:)
Oh I know what u mean I have those, but can only feel mine...my dad has them like u have them...fibroid cysts...I think....mine just r not as noticeable....but I can feel them....not sure if they r Sebaceous cysts are small lumps or bumps just under the skin. To be more specific, they are closed sacs that contain keratin -- a "pasty" or "cheesy" looking protein...as I do not think I have ingrown hair in the places I get these...hmmm but this best describes what they r like.....I know I was told it was keratin filled....and was a EDS issue, but heck if I can find the info now...lol...I had one that was oval shaped on my eyelid for yrs and one day it was bothering me I rubbed it and the keratin popped out and now it is gone....I still have others but this was the largest and longest one I had had.....glad it is gone now...just wonder about the others....
Selma I get weird bumps on my hands too...I have sent you pictures before. I think the EDS is worse than the chiari! crazy stuff:( Not that you want either. Now that I know what my eye muscles are doing they are driving me nuts too!
Mel ...I have something I read was from EDS as well,.....I can not remember what it is called when I locate it I will post it in this thread....I know it is not the same as what ur DD has, but I think it is similar in how it fills with a substance....weird,....and I do not like at all as all r on my face in and around my eyelids and nose area....ugh