Oh I know.....knowing what we know now....ugh....I want to know y the Drs then did not know this???? huh?
What a bunch of u know what....sigh
I find it weird that the pains were so bad and they said oh growing pains...I had them when I was 20. My daughters Dr told me growing pains were not normal and to take vitamins....(years ago). Now knowing what we know....
B4 surgery I would get those electric shocks in my toes, I thought it was static electricity and was the shoe I was trying to wear.. a pair of pigskin boots....lol...every time I put them on I would get zaps...
What I find weird is that my mom had 4 kids and I was the only one dx'd with growing pains.....
Oh the growing pains were horrible even when I was 20! I also get a weird nerve pan between my toes in some shoes.
I had orthodics for in my shoes, could not sit with them in my shoe let alone stand up and walk....I had shin splints and all, growing pains as a kid that I now know was EDS pains...ugh
I also had issues finding shoes, did u have that problem too, always felt like a rock was in them when it was a strong arch support and they hurt my feet and certain style shoes just would not fit as I have a high instep I think it is called....
Yeah my whole leg hurt too...really she confirmed by my history and my asking. Research said it is often diagnosed that way and sometimes X-ray. She ordered custom orthotics for me too but I may insist on seeing orthopedic dr...
Hi Mel, I have issues with all those areas, but have not gotten ne of the dx's...how didu, or should I say what testing was done to determine these?
I learned a long time ago not to even try and tap my toe to music, as my whole leg would stiffen up till I was not able to keep the beat, and I looked like a spaz, and my leg would hurt....