bursitis

[Rylanesmom]

I just went to see my rheum Dr.  I haven't seen him since January and it was preop for Chiari Surgery.  Really I left the appointment feeling hopeless and thought he was mean.  He had said that the chiari surgery would not fix everything and I was still going to be in pain.  Based on his letter my NS had cancelled my surgery which ended up being a big misunderstanding and rheum Dr. said no you need the surgery it is not going to fix everything.  So long story short I have been in a lot of pain from EDS and fell really hopeless as nothing helps.  I recently went to NL...nightmare she basically told me to exercise and didn't feel problems were neurological and when I tried to explain anything was EDS she would tell me to quit talking about it that EDS means nothing to her.  I left there crying and more hopeless.  I have been on celebrex by PCP for the last month due to bursitis in hips and heels and it is not helping.  Today after laying in bed for 2 days decided what do I have to lose I will call rheum and make an appointment.  I thought maybe he did not want to treat me preop as I was on so many meds and getting ready for brain surgery and after all he was right the surgery did help but did not fix my overall pain.  Today I saw my rhem and he was very nice.  He said quit the celebrex it is not working.  He put me on tramadol and said take 2 extra strength tylenol with it and he feels it will be better for my overall pain.  He took xrays of ankles and said that heels have spurs, bursitis, and tendonitis.  He said that we need to try shoes that stabilize the heels (said my dress shoes are bad for work and really need to wear high tennis shoes and gave me a note) and tramadol and if it does not improve I will need to see orthopedic foot surgeon.  He said often they will cast ankles to improve this issue but we need to try this other route first.  He injected my hip with steroids and pain meds to see if that will help the bursitis pain in hip.  He did a large enough injection (actually multiple in the hip) that he could only do one today.  He said if it works I should know in 2-3 days and then it would be okay to do the other in 2 weeks.  The injections can be done every 3 months.  He said he could not inject my heels as it would cause the achilles to rupture.  (ouch)  So here we go at least with something else to try:)

[Rylanesmom]

Oh and I failed to mention that rheumatologist told me exercise will make me feel worse as my joints are unstable and unlike NL told me not to stretch!  Thank you because when I am told to exercise I want to cry because if I could exercise I would not be at the Dr.  My husband keeps telling me I need to sell my bike and I keep saying no I want to ride it LOL.