i as well have been experiencing these symptoms for more than 3 years now, these are the symptoms to be exact:
- head pressure
- lack of vision focus and concentration (lasting every single minute throughout the day)
- eye sensitiveness to light
- head pressure increases under bright lights or a sunny day
- extreme tiredness and numbness when i wake up early
- i sleep about 13 hours if i dont have to wake up early and always wake up feeling horrible
- sometimes the pressure can cause light pain in the head, sometimes it encreses during aerobic exersice
- the inside of my nose swells up
- i feel extrememly dumb, as if my brain is swollen and its lost most of its capasity
ive done so many test and all turned out to be fine, i do have a back injure (herniated **** between l4 and l5) ive had this also for a few years and it hasnt healed, ive also taken tetracycline for a few years.... just like everyone else here, im lokking for an answer because this is fully destroying every single part of my life. im also glad to know that im not alone, im starting group to see if we can work together, my name is Franco Semidey, anyone whos interested can add me on facebook and heres my email as well, ***@****
apparantly I cant give my email address on here, but if you need help, email sommersmatt at yahoo dot com
Its been awhile since the last post on this thread, but when I was sick, I was reading all of these symptoms and realized that they were very similar to the problems I was having. I am not a doctor, but "helium head" as well as many of the other symptoms mentioned, are classic symptoms of Candida overgrowth. If you were taking antibiotics and/or steroids like asthma inhalers or Flonase, during or before you got sick, it is likely that you have Candida. I suffered without knowing it for over 10 years and I would be more than happy to help anyone who is suffering as well. I am not selling anything, just trying to help. You can email me at ***@****
Bama: You are right in thinking that perhaps we all have some-
thing in common. I believe what we have is like an anomaly. I've
researched anatomy & spoke w/ a physiologist & he truly thinks
the 'response' is due to inflammatory pressure brought on by
different things 'triggers' w/ different people or illness or
lack of. I've suffered yrs. w/ varied degrees & learned some
management. I'm the orig. 'Helium Head'. That was the only way I could explain to MD's. It started slight & progressed to
massive over yrs. triggering new symptoms. Some severe due to
the brain getting/receiving mixed msgs. Long ago after much
upset of dismissal, a Dr. gave me 1mg Xanax to calm dwn. In 20
min. I was prssr-free? Something wk'd! I went to some very top-
docs too. My Internal MD gave me a rx to take only when I felt
it coming on. Same relief! I discovered it's not what med but
'sedate the spot', head deflates, or sinus/ears open. Body wks. by msgs between spine to brain. Think this way. #1-outside
world, 2-the body/skin, 3-organs/nerves/vessels, 4-brain/spine
is control room. Weather/Touch triggers skin like poison ivy
causes hives. Hives swell outside & inside. Swelling pushes on
spine/brain & says react & go for it! The sympathetic nerves
kick in. Same thing can happen w/ a cut, trauma, infection. If
you sit long, you can slow spine fluid or kink it to not allow
it to circulate up to brain. Read a book w/ neck bent too long
& it kinks till you walk around. The neck is the merging of the
fluid & msgs from the spine 'the bundle'. No one seems to have
read much of my posts or it's too technical. I'm so much better now that I know the physiology. I'm in control. No, docs can't
know everything, don't believe me now, but I believe my PhD dr. that knows the 'why stuff could happen'. The prssr is 'inside'
the hard skull w/ swelling vessels. This eventually makes the
scalp skin sensitive like an injury/bruising. The small vessels
are through-out body. In head, they cut off nerves & block
sinuses, cause headaches/full ears. A cold-med can slightly
sedate & 'msg' may be sent to relax vessels. Read past posts of 8/31, 10/19?, 1/10, 1/13. See if anything applies. Hyper-
tension is a big part of this & no one has given any feedback
on it. Acetazolamide can lower CSF for mountain climbers. It's a diuretic that opens vessels & pulls out edema to keep their
head from prssr. I'm getting long but cardio, etc. are all
working because of the spinal fluid in us. I'll check back to
see if anyone has addressed their BP or has thoughts. I woke at 3:00am when it was windy outside also. Stand up & gravity helps csf flow. Ck BP & post. Maybe that will help this puzzle.
Panic City, mine too started out as a cold - back in Sept. - and has NEVER felt the way it did those first two weeks - it just slowly got better and better BUT when the weather is weird(I am guess the barometer drops) it get's worse again - like today, I woke up at 2:00 kind of with that scared feeling because my baby was crying and it startled me out of my sleep and when I was going back to sleep it was there - and I was up for a couple of hours. They have told me to take Loritab for it, but because it is a persistent condition that comes usually at night and then goes away in the morning, I don't want to take something so strong. I have found that advil cold and sinus does help and yes, my lymph's are swollen too - but usually only the very very back ones at the top of my neck and they aren't huge - just a little swollen and tender to the touch - especially if I turn my head and can really feel them. The thing with the mess is: it is such a STRANGE feeling. Everyone here has head headaches and a cold and every virus probably out there - but this all strikes us as different.
Ever since my first episode, I usually do have some sort of sinus thing going on when I get them again, and it's way worse if the weather is bad. But, I get panicky easily - seriously, especially where my kids are concerned - and if I feel a weird flutter or anything, then I freak out. So, sometimes, if I let myself think about it, I could work myself up into a good old fashion panic attack and then my pulse if racing and my breathing gets faster - BUT, if I take a minute and just calm down and say, ok, what made it come on this time - were there any triggers? Weather, maybe some slight sinus mess, or like waking up from a nightmare or getting startled out of sleep. Maybe it's a pillow - I have had to change my sleeping position often and it relieves you know, back pain, or neck pain, so, maybe that could cause the pressure. I have no clue. It's just that we have all had the same tests and the same results. That'
s what I try to think about at 2:00 a.m. when it will come out of nowhere. Some people have to live with migraines and I guess this is my "thing". No one here has had it for YEARS though, and that is comforting - maybe it will go away. I know, you have only had it a few weeks - and I know you are thinking, YEARS??? - But, it does seem to get farther apart and weaker. SLIGHTLY weaker but a little less it seems - I could be wrong. Again, the advil cold and sinus does seem to help some too. Although, I have found myself taking that ALOT just to make sure I don't get one.
This is in response to ksquezl - I have the exact same thing (including the response to cardio, the strange, fairly infrequent palps)! have you found anything out about your symptoms? Have they increased, decreased? any info would be appreciated!
This thread is great and I've been freaking out over this "helium head" (I describe mine as a tiny person in my head with their arms straight out trying to push out my temples - not painful at all but completely and totally mind consuming, no pun intended, as it is the most bizarre, distracting feeling!).