HOW CAN I DO IT

[Nana434]

I'm really down since i saw the Rhemmy i had been told by my PCP i had Fibro but i think the reality of it hit me
when the Rhemmy said,Chronic Pain Syndrome, Nice word for Fibro.
He also want's me to do more PT, I think he forgot i have chronic back PAIN, Then he gave me Tramadol!
I can't take it,I just feel so isolated right now i have the worst pain ever, The cold is killing me!
I'ts almost like there's no HOPE for Fibro just feel so alone with this thing.
Sorry guy's but you guy's are the only one's who can relate with me, I know i'm not alone when i chat with you guy's.
Thank you all!

[ladydragonflyluv40]

i spent 12 long years suffering with these problems. I think that it is so hard to describe every pain we have. my family doesn't understand why i hurt as much as i do. sometimes i feel so very alone. my husband and sons help me as much as they can. it hurts that i can't hardly do anything anymore. I did things like work on our cars to being a very very neat person to not being able to do anything. I hurt so much that i just want sometimes i just want to cry out and scream. my pain is my body not my mind. it is like being in abodyof pain wanting out.

[VaBreeze]

dai3symae you are so trusting, lol.  That's a cute story and it's great that he would help you out.

You ladies are the ones who are "awesome"...I too am blessed because of all of you!

((huge hug))

[dai3symae]

I've had fibro a long time and wanted to share one of my experiences with you......

It started when I felt a lump in my armpit....that the doc said was a "pad of fat" (but wasn't).  Every day I felt worse and my arm (with the fat armpit) was less flexible.....until the day I couldn't lift my arm to get dressed.  This went on for months.  I had PT, took painkillers, used heat, streatched, etc....but it just kept getting worse.  When I shopped for clothes one day the sales girl had to help me out of a shirt I had tried on.  Finally an old-fashioned PT found the muscle spasms in my back and (you guessed it....armpit) and told me to relax....it would get better - eventually.  Well, when the weather turned hot and I wore a sleeveless shirt I discovered that I couldn't reach to shave.  So....

.....I called my husband and asked him to shave under my arms.  He laughed so hard the whole time I thought for sure he would amputate my whole arm!!!    :)

You are certainly not alone!!!  I hope you feel better soon.

Sandy

[Nana434]

With you guy's helping it's hard not to get it together,Yes Va Breeze is amazing and so are you my dear, BIG HUG!

[selmaS]

I am sooooooooooo glad u got a hold on this, before it drug u under!!!...like I said that's y med help is here!! I am very grateful to all that have been there for me...Va Breeze is a big part in helping me too!!
Nana....I pray u can keep up that fighting spirit!!! : )

"selma"

[Nana434]

You hit the nail on the head! I have been unemployed for almost 2yrs fighting ssd and i get so frustrated when the docs say You need a spych doc I'M NOT CRAZY!
I already have one.This new Rhemmy asked how do you do it you have so much going on,Well i know that.
OMG your so right i'm letting this take control of my life,I have to get myself stonger and except everything along with not being able to work in nursing anymore.
You guy's are awsome, i'm so blessed.
Love you guy's!

[VaBreeze]

Chronic Pain Syndrome...well YEAH!  That description itself makes one feel helpless, just by the sound of it (even though it's head-on).  This doesn't mean we give up though.  To me, that would mean the illness has won and I won't allow it to have complete control of my life, no matter how hard it tries.  There is always hope for a cure for Cancer, MS, RA, ALS and so many other illnesses/diseases.  It may take away our ability to stay employed, to function at home some days, to get a good nights rest, but the one thing it can't take away is our power to have faith and hope.  

I also have that 'cycle'...we are entitled to it.  We are still trying to get legitimate recognition and respect, putting up with looks of disbelief, struggling to get through each day with pain that others can't begin to understand and have had our world up-ended...and we don't know why.  We don't know what caused it, or what to do about it.  We are entitled to be frustrated, tearful and angry.  We have certainly earned that right.

I feel isolated too sometimes.  Then I come here and I know that i'm not alone at all and I feel so blessed.  Like Selma stated...we take it one day at a time.  I pray you take comfort in knowing we will be here for you Nana and we truly understand.  It's ok - because together we will make it through one more day.

You're in my prayers.

[Nana434]

Don't know how to thank you enough, I really needed someone that is dealing with the same thing i am, You have made me feel so much better.
I hope your doing ok i get so wraped up with my own Pain i didn't even ask
Thank'e again. BIG HUG!
                                      God Bless you

[selmaS]

that's y we r here.....support...vent...whatever else we need...and we have someone going thru the exact same thing!!....not that I'd wish this on someone else, but it feels soooooooooooo good to know the person really understands.

take care,
"selma"

[Nana434]

Thank you! Your so right everything is meds meds and more meds, Luckuly my PCP said NO you  can't take tramadol.P.T Forget it!
Your cycle sounds so similar to mine Cry,laugh,Vent ect,ect
Thank's again for the support spmetimes i can feel so alone just me and the Pain
that is when my brain is here.

[selmaS]

...u r not alone, and at times we all feel that way...I know I do.....I hear u on the PT....one dr tells me no activities...sitting only, the next says ...u need to exercise......oh yeah, and loose weight....I'd love to.....tell me what I can do......it's a visciuos cycle.....some days I laugh at it...others I cry...other's I get really mad.....one of my drs gave me meds that messed up my IBS treatments and I have to start all over...one didn't consider the others treatments....but I have to deal with the pain....
Nana, lets  just do one day at a time.....and vent here!!

Godspeed
"selma"