I have had a heller myotomy and fundiplication in 06. I have had acalasia since 94. I am 36 years old.
I get gastric distention that puts my pain at a 10 and puts me on the floor.About once a week for the past 6 months, about once a month prior to that, I go to the ER to have an NG tube placed and get decompressed, which brings me to a tolerable 6.
My problem is now, with all my scarring and strictures, etc. I can no longer tolerate the NG tube. So, now I'm just going in to the ER, getting Dilaudid to calm me down in my pain, but of course it doesn't make it go away. My doc doesn't want to give me narcotics regularly since they can be constipating and I already have an issue with gas being unable to pass.
So, I recommended to my primary care provider, that we try a PEG to get access to my stomach.The VA has denied me this for years because I'm "too young" and risk of infection, etc. But since they have no treatment or pain medication for me, she's willing to ask the GI doctor to consider it. Ever hear of this method, or have an educated opinion?
Thanks,
Lana