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my mum seems to be very confused all of a sudden and hallucinating.

hello,
my mother suffers from depression and anxiety. lately she has been hallucinating. she had some episodes last summer during away at our summer place but we didnt do anything as they stopped when we returned home. Actually she took antidepressants, Seropram and Xanax. but we stopped them after six months.Also she has very poor eyesight. so its easy to confuse shapes and shadows. She does not hear voices. Now the images have come back. she was seeing fires and waking me up to leave the flat or seeing people in the house. Her psychiatrist prescribed her now with Respidral for the hallucinations which does help a lot and Bespar for anxiety, both in very mild doses. It been about a month that she takes them and they help. but still she talks to poeple who arent there or me even tho im in another room. She dreams at night and wakes up but is in a total dream world state of mind.  so she couldnt find the bathroom. and used the tub or the floor. also she suddenly bends a lot and walks in small steps. she never did that before. she dresses still and is ok in general but she does strange things and has very little energy. takes long to describe things sometimes they dont make sense and even she get tored to get her point across. she walked out of our flat in her underwear and the dog, said she left the door open cos she has trouble using the key so the door shut and she was left outside in the hall. she didnt go out of the building she thought better not. the neighbour helped as i was away for some hours. But now they think in the building she has alzheimers.
Last year we did a ct scan and there was nothing wrong apart form normal age depletion, could that have changed so fast towards dementia in one year? she also did blood tests a few weeks ago and they are all good. nothing there to worry about. but she is terribly absent minded specially as she gets tired throughout the day.
i am very worried about her and dont know if i should believe that this is dementia. i ask her if shes lost her mind and she says no. At first the doctor said it was depression with temporary psychotic effects. but now he told me it may well be the early satges of dementia. My mum was never a genius at following instructions they make her nervous, or anything to do with electrical appliances. shes quite cut off from practicalities as she is living in a foreign country from her native and chose not to learn the language very well. all this is due to personal experiences from withing her life. She is Australian but married a Greek and lives in Athens for over thirty years.
I dont know how to respond to all this. could it be something temporary? i hope so but maybe not.. any good advice anything that can help.
thank you


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Avatar universal
hello, i found out froma friend whos family member suufers from the vascular dimentia that they have seen some positive reaction by the use these natural remedies. i post the protocol here and ask what your opinion may be if you do believe in natural form of healing.


2-4 tablespoons organic coconut oil-helps regen blood vessels
1-4 drops cayenne tincture i have had my mum on cayenne capsules before and i thought they helped her, i will start very low as it will increase heart rate, it generaly strengthen blood vessels - excellant first aid to stop internal bleeding large dose!
1-4 teasspoons satruated himalayen rock salt solution (local tack shop) in whatever
plenty of good water
raw fruit veg"

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Avatar universal
Thank you for your reply....

i spoke to our psychiatrist today and he told me to be prepared. Will i see awful things? My mum said that she thinks people with alzheimers or dementia are not too sad because they are unaware of what is going on. I felt relief whe she said that. at least the peson doesnt suffer physically.. i do hope that anyway...
She also said today.. "when is this going to go away, it shoudl have gone by now..
she askes me and i dont know what to answer. she askes me why she keeps sleeping.
What do you tell her when shes asks she is still not that far off from reality. and gets depressed.

thank you ...






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547368 tn?1440541785
There are others that should be reading. They don't always respond. We more readers then we have responders. Hang in you should get more responses. I am just the Community Leader.

Your info is NOT correct. Ppl with Alzheimer’s can and do hallucinate. However seeing a neurologist should provide with with better answers. Hallucinations are sensory experiences that seem real to people with Alzheimer's disease, yet they are not really happening. The most common hallucinations are visual (seeing something that isn't really there) and auditory (hearing something that isn't really there), but hallucinations can also occur in regard to taste, smell, and touch. They usually are unable to be brought back to reality, at least in most instances... these hallucinations are real to ppl with Alzheimer's disease. It's best not to argue with them but comfort them and try to distract them with more pleasant thoughts or activities.

Here's some information:
Alzheimer’s disease is the most common form of dementia, a serious brain disorder that impacts daily living through memory loss and cognitive changes. Although not all memory loss indicates Alzheimer’s disease, one in ten people over 65 years of age, and over half of those over 85 have Alzheimer’s disease.

10 Signs of Alzheimer's per Alzheimer's Association:
Memory loss that disrupts daily life
Challenges in planning or solving problems
Difficulty completing familiar tasks at home, at work or at leisure
Confusion with time or place
Trouble understanding visual images and spatial relationships
New problems with words in speaking or writing
Misplacing things and losing the ability to retrace steps
Decreased or poor judgment
Withdrawal from work or social activities
Changes in mood and personality

....And they feel the cold more the other ppl in their age range.

Anger is useless in your situation though I understand how frustrating it can be to care for a loved one day in and day out, especially with they may have a form of dementia. Do you and your mom a favor and get some outside help. It doesn't make you less of a person, or weak or anything of that nature. Caregiving is a very difficult thing to do. You need to get away from the situation and challenges of a Caregiver for a little while at least.... and not lock yourself up with your mom. It can be just an afternoon or a week of respite. Please ask for help. It's out there.

You are brave and you are strong, don't ever forget that fact. Not many can do what you are doing. I'll look forward to your continued updates.

~Tuck
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2 Comments
Hi,

Somehow I found my way to this site (a long time later on  Jan 2019)  Reading all the comments make so much sense to me.

I care for my mom part time as she has aides to help with showering/dressing and the like.  She has been doing fairly well with all that; eating and daily exercising too.  

Over the past couple of weeks her energy level has dropped to near zero and was almost falling asleep in the shower and was falling asleep while eating.  Also cold all the time.

Finally this past Saturday she was transported to the Emergency Room by ambulance and core temperature was almost 10F below what it should be and her pulse was running as low as 46.  She was tended to in the ER and admitted for testing.  She suffered a seizure the first night there and was given Ativan and has been intubated since.
It is very hard to visit her in the ICU with all the tubes, etc. connected to her and no movement and her eyes closed tight.  They say people in this state can still here voices, so I try to talk with her about how much I want her better, miss her at home, and my love.  I try not to stay more than 30 minutes or so as it is flu season and am sure visitors staying too long are not appreciated.  I will repeat my visit again tomorrow afternoon after doing a few things that must get done even if mom is not at home.

My concern is  know how much my mom does not want any part of a nursing home, yet  depending on how all this plays out, may not have any choice.  

After getting divorced, my mom took me in eventually coming up with a rent amount I would pay to stay here and do more over and above especially after her drivers license was taken away.  This arrangement has worked out well, but has taken me away of finding any female companionship given my living situation.  Even if I am going out with friends to a baseball game or something, I must arrange for age coverage as I don't feel good about leaving her alone.  My concern at this point is how Ativan has affected her and when she will come out of her "coma-like" state.

I am bookmarking this location and will be back soon to read more.

Ernie
Hi Ernie,  I am so sorry to read about your mom!  How old is she if I may ask?  And did the doctors ever find a reason for her sudden health change?  Did they give you any sort of prognosis?  Such a hard time for you and we are here to support you in any way we can.  hugs
Avatar universal
Dear Tuck,
Thank you for your kind message, and compliment to my name, i understand about yr father i had the same in a way. I took care of hm for six months. i used to work in the uk but when i found out he was ill i had to quit and stay in athens to care for him and i dont regret a minute. He was the person that always gave me the right advice and i miss him so much.
I took a while to reply as im stil tryng to make sense of what is going on. I was told we should see a neurologist. My mum feels her flat is not hers in a way but she knows it is. but then again she has eye problems with long sighted, i was told this can cause imges being created by the brain and eyes being tired and unfocused.
i didnt know dementia is not a specific desease, i didnt know it is a cause of several symptoms. i thought its one thing. someone told me that having hallucinaitons is not lazheimers therefor a neurologist would be best.
Should we do a brain scan? she does still have a shower dress and put her make up on. these have always been her rituals and she keeps them up. I noticed that she doesnt make as small steps as she did and talks better. though very absent minded in her thinking. and panicky if she is alone. I 'm wondering if she will get over this and come back to normality or if we have entered a one way route.
I try totake care of myself but im afrad ive lost the touch with what that means. i dont have interest in seeing people other than my closest friends a couple of peolple. She is so alone here that im her only person. I lose my temper a lot as each day i wake up i know what im faced with so it really puts a damper on my life. its really hard trying to make make sense of the world again. like how to use the key to open the door. It obviously helps to wear her glasses and turn on the light but she seems to not find that being the solution.

You said i should post to get support is there anyone else reading my post or am i writing directly to you.

Thank you once again for your time and long post. i read it all with care.

isabelle






















Helpful - 0
547368 tn?1440541785
Hi Isabelle, what a beautiful name! Everyone calls me Tuck, even my family. So though it's a nickname it truly is what most ppl call me. That is unless they are angry at me!  :o)  Nice to meet you.

I tried to respond to you last night but my new laptop decided to act up... so sorry I am tardy to your post.

In May one lot of Risperidone 2mg Tablets, marketed by Patriot Pharmaceuticals, LLC, a wholly owned subsidiary of Janssen Pharmaceuticals was recalled. Risperidone is a second generation or atypical antipsychotic, sold under the trade name Risperdal. It is used to treat schizophrenia , even in adolescent schizophrenia, schizoaffective disorder, the mixed and manic states associated with bipolar disorder, and irritability in people with autism.

I am not fond of Risperdal in ppl over 65. As stated above it is an antipsychotic. Your
Physicians know far more then I do and I am not saying that it's the wrong medication. There are just a few things you need to be aware of when taking it.

Many sites list warnings on the use in suspected dementia patients or elderly patients.  Indeed all sites that I have researched have this or a similar warning,
Begin Quote: " Risperdal is not for use in psychotic conditions related to dementia. Risperidone may cause heart failure, sudden death, or pneumonia in older adults with dementia-related conditions." End Quote. This came from a trusted and often used medication site.

Another trusted site has this to say, Begin Quote: "There may be a slightly increased risk of serious, possibly fatal side effects (such as stroke, heart failure) when this medication is used in elderly patients with dementia. Discuss the risks and benefits of this medication, as well as other effective and possibly safer treatments for dementia-related behavior problems, with your doctor."  End Quote

I can tell you that I have seen great results/reduction of symptoms from this medication. Please be aware of the side effects of any antipsychotic medication which include Tardive Dyskinesia which can be irreversible. A Goggle search will list all side effects for you please make sure you know these side effects and any side effects of medications that are prescribed for your mum. This is a must for all of us.... know the side effects of all the medications your physician prescribes.  

At first I thought you misspelled Buspar but when I searched I found the it also spelled as Bespar. It's basically the same as our Buspar. So Bespar or Buspirone hydrochloride (a derivative of Buspirone) is reported as an ingredient of Bespar in Greece. It's just a different brand name from what is used in the US. It is used primarily as an anxiolytic, specifically for generalized anxiety disorder. Her dose is relatively low. However among other side effects this drug can also induce Parkinson-like symptoms as I mentioned above when I wrote, Tardive Dyskinesia.

You are correct, your mum's vivid dreams is most likely a side effect of one or both of the meds she is being prescribed.

I would never substitute a Gerontologist for a Psychiatrist. However the two can make a great team and deliver a better, total overall plan of care for our seniors. They can help you recognize the physical symptoms of Dementia.

Remember that Dementia is not a specific disease it's actually a group of symptoms, Often physical symptoms are few early on, other then the obvious memory loss, inability to learn new information and personality changes. What's really happening is the deterioration of nerve cells. It's later on in the disease process that the physical complications appear, such as bowel and bladder function, muscle impairment and difficultly chewing and swallowing. Dementia is a cruel, insidious disease.

Her fatigue is probably a combination of the medications and her disease condition. I believe a Gerontologist will have more answers and suggestions for you and your mum.

Last but not least Isabelle you need to take good care of you! I was a Caregiver for the most wonderful, kind and loving man I have ever met, my father. I cared for him in my home for almost eight years. I had days I thought I would lose my sanity. It was the hardest thing I ever did in my life... but I wouldn't take back a second. I am not sorry for giving up my life the last two years of his.... I have no guilt, no second guesses, I did my best.... and when he left this world last year with me at his side he took a huge piece of me and my heart. Gone is the unconditional love that he gave so freely. But he left me so much more then he took. I call it gifts of the heart that only a father can leave their daughter.... or perhaps a mother can leave her daughter.

That said I too needed respites... breaks. I had to take care of me too. It's tough to balance their needs with yours. Don't be afraid to reach out for help. You will need it. The last nine-ten months I had the assistance of Hospice. They were God sent!  

We are here for you. I encourage you to take any support that is offered. We (MedHelp) also have a Caregiver Forum. I am the CL on that Forum also. It's not near as active as I would like it to be... but it is a great community. If you have a Faith it will help you now. My faith was and continues to be a great source of comfort.

I hope you will be active in our community. Please continue to respond to posts and feel free to post again. Sometimes when caring for my father I posted just for support, vents and chats. It helped.... and I confident it will be beneficial for you too.

Please excuse my tardy but a bit long response. I'll look forward to hearing from you again soon. And again...Don't forget to Take Care of Yourself too!!!

Peace,
~Tuck
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Avatar universal
one more question, my mum never used to dream now she has these vivid dreams every night. could this be a reaction from the drugs or can it be a characteristic observed in dementia. She also feels like a rag doll, meaning she has no energy at all. i thnk this comes on from her endless searching around the house for her bits and pieces. ( watch, note books eye drops, etc). or is it the drugs. or is it characteristic in dementia. I have no idea what the physical symptoms are indementia. i understand the memory loss and confusion but what are the physical symptoms.
thanks you once again
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