Hi Omar,
How you doing? I couldn't post in the other page. Respect to the ideas or theories I have another ones.
Im trying to forget this following doctors recomendations but its impossible. It's too obvious to me that this is not something related to my mind because it appear as a acute illness and it was strong with strong symptoms, I felt like I was close to die and is still bothering me.
Ok, after that I have to say that I think this is something more usual than we think, and I think that some kind of people (like us) are more susceptible than others... specially thinking that most of us had just one risk exposure and was enough. I believe that we had an inmune reaction for differents agents that we caught and our body is still crazy and trying to erradicate and return to normality. Or definitively we have an enormous mind power and we are able to have any symptoms we read, even changing our nodes, skin, etc and for so many time (I dont believe this).
Thats my opinion, tell us if you have find something or if another ideas.. Its difficult to live with constant pain, neck nodes, stomachaches, inapetite, fatigue, etc, I dont know how to face it and I feel like there is no doctor able to help us, Im just fighting cause I have faith in myself.. ok, and please recommend if you know some alternative medicine able to remove some symptoms.. I read about GcMAF in your post, whats that?
Some ideas of patient from different countries and its mostly there doctors opinions :
1) A new virus
2) A known virus that became more aggressive and they are talking about Herpes viruses.
3) A known Bacterial infection that became super bug, Staph and other bacterial infection were mentioned.
4) Its something related to HIV, this virus working mechanism is still not known yet and every thing about it is still under study after 30 years from they consider it the AIDS cause, this virus was never isolated by it self from any patient beside after reading some papers and if we put the denialism ideas away and think of the co factors that became under more study we could see soon they could figure that this virus have so many components and that you can have some of those microbes and develop AIDS symptoms without needing the HIV virus and as example of co factors ( HHV6 and Mycoplasma fermentans that is 80% there with HIV virus )
5) It could be a similar virus to HIV that share some proteins with it and this remind me with every study of Retro viral in CFS/ME patient as when they always found something they talked about similarities of sequencing with HIV or HTLV !
I would like to have a WB test not a PCR and thats because of the proteins result that i would take one by one !
HIV testing is weird do you know that you could be positive in a country negative in the other one by WB ?!
the virus and the tests are not that accurate, dont believe anything else !
they still dont know how the virus works and thousand of cases like us are not known what is the cause of it !!
HIV is the only virus that was never isolated from the body by it self there is always number of microbes with it and was never isolated from plasma except with special chemicals !! the only virus with this story
By the way, there are too many post in this topic. I would advice everyone to open a new topic with her/his case here:
http://www.medhelp.org/forums/HIV-like-illness--/show/1436
It will be easy to follow.
In another post you said you have a positive WB, this would be rare with several negative ELISA. I am sure it's a false positive. All the best.
what were the results of your CD4/C8 tests?
for HIV, have you had other tests (e.g. PCR RNA) besides the classic antibody tests?
all the best.