My daughter has been suffering for several years and we have seen specialist after specialist all saying she is fine but she is SICK! She has purple cold feet upon standing, rapid heart beat upon standing, digestive problems, sleep problems, no energy, etc. etc....it is debilitating. We have recently read about POTS but she is afraid to be turned away by yet another doctor. I was with her when she saw the gastro specialist...he yelled at her and told her he has done the colonoscopy and endoscopy and there is nothing wrong so now she will get better. She left crying and saying she'd never see another doctor again.
I am convinced it is POTS - she is very tall (5' 11.5", an over-achiever, slight mitral valve prolapse, rheumatologist sent her to a geneticist because she is so tall and has very flexible joints, cardiologist looked at her purple feet and said she was a heart doctor not a foot doctor).
Does anyone know of a doctor/specialist in Edmonton, Alberta, who is familiar with this disease or how do you go about finding a doctor who is familiar with POTS? I can't take the chance of taking her to another doctor who makes her feel it is in her head. She can't take much more.
Thank you so much!