interferon mediated fatigue

[otterwatcher]

found this link today
http://onlinelibrary.wiley.com/doi/10.1002/1097-0142(20010915)92:6+%3C1664::AID-CNCR1494%3E3.0.CO;2-9/full

[otterwatcher]

old bean is a term of endearment used by posh English folk! ooh new teeth-how exciting! all the best with the appointment-hope it doesn't wipe you out too much
xxx

[Frank J. Perrotta]

welcome as always "old bean".

I sometimes watch Prime Minister's Questions and hear them call women "Old Ladies" or something like that and it is a compliment?!? right?

Anyways, dream of a call in to my gp or how about a skype? They have all this technology *my docs office all have PC laptops but I don't think they have a digital camera! I showed up with a rash and it would have been smart to take a pic for the record to see what it looks like next month for comparisons but??? - anyways, off to bed for a long sleep-in with a holiday tomorrow! Then a special dental appt with new replacements for all the lost teeth from tx! Got some sort of new flex technology so...

Happy dreams back at ya xxx

[otterwatcher]

thanks Frank,any of the 3 would be great! Over here we just have to call through our repeat prescriptions whenever we need the meds-much more sensible.I try to do GP  appointments by phone if at all possible to save energy-how can such small activities take so much recovery time! I also hope the new drugs have less sides but as you say these are Powerful drugs. Thanks for your response old bean,hope you have a good day xxx

[Frank J. Perrotta]

My last GP was of the same thought... he refilled my scripts without seeing me for 6 months or whatever! Why waste my time or his.

Things changed with politics and medicaid *how insane is that! So now I have to meet monthly to pick up certain scripts! Not only that but there is a limit of 6 scripts per month no matter your issue - heart, bloodpressure, life threatening issues all within the 6/month. Your doc can get a pass for you but it takes time and the phone lines are over whelmed. Madness! Someone forgot they are dealing with the very ill.

THEN some crazies make my appts in the morning knowing I have chronic fatigue AND insomnia! AND transport want me available an hour before my appt time! I am so exhausted by the end of it all I need 24 hours to recoup!

I do hope that these new treatments do not have the lasting effects on people that they have on us! But they seem to be such powerful drugs! And what a push to TREAT TREAT TREAT like it is Halloween without the Trick!?!?!

I do wish you and all with PIS that level of energy to walk, cycle or just wake up and feel good... f

[otterwatcher]

I also thought I was a good candidate to wait.I only had to complete 24 weeks but I think some of us are genetically predisposed to suffer side effects and the duration makes little difference.I think I've given up with drs now,it all takes too much energy and is a complete waste of everybody's time.I get a repeat prescription for nitrazepam and dihydrocodeine and that has been my total contact with them for the last year or so. I can't see anything improving either.If I could get my energy levels up to do a bit of walking I'd be happy.

[Frank J. Perrotta]

I totally agree... I was sure that I was NOT a candidate for tx and that I would be told to come back in a year to see how things were but instead was told to start immediately. Who knows if reduction would have changed things... I treated for 72 weeks! Was it strength, length or type of person? I was like you - very active, ran my own business etc.

I hated taking even an aspirin so was pretty pure but whatever...

... this has been the thought for some time with my docs - to mask the symptoms. best of luck to you. f

[otterwatcher]

so we're back to square one! if there's no cure for ME/CFS there's nothing they can do for us other that treat some of the symptoms.I wish they'd reduced my dosage when I started to struggle around week 11.Hindsight is a wonderful thing!

[otterwatcher]

it was an article about post interferon fatigue too. I have had no thyroid problems but was diagnosed first with post viral fatigue syndrome then post interferon syndrome when there was no improvement after 5 years-this article seemed relevant for those with fatigue related lingering issues post treatment. I was healthy and active pre treatment,now I am now housebound despite attaining SVR.Have you spoken to your hep c specialist about your fatigue issues? and are they disabling?

[frijole]

I didn't read the whole article but it appears to be a function of what happens while you are on interferon.  Do you read it to say that this is a post treatment issue?  I did go hypo thyroid during treatment the second time, but my thyroid panel was fine after I finished treatment.  However, - and I have been done since August 2012 - I still feel sluggish and have gained much weight.  Still the thyroid panel says that is not the problem.
frijole

[Frank J. Perrotta]

Really great info.

Thanks for the find. f

[otterwatcher]

sorry-if you google interferon mediated fatigue you'll find the article.