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After treatment - Lichen Planus
After approx. 1 month of completing 24 weeks of (Abbvie) Holkira + Ribo combo I have joint pains, muscle pains and Lichen Planus. Never had these symptoms while on Tx or before that other than the odd joint pain. I guess Hep C has come back and has given me some new autoimmune health problems ?
See doc in 2 months.
See doc in 2 months.
WOW! Frank, I am just reading this, I'm shocked, I thought we were cured with the newer treatments! Years ago I had read that the tx gets the virus down to a level the body can supress. But if that is true then why didn't it "handle" it when we first had the viral load
Do you know your hep c has come back or are you just assuming it has?
What is happening to you isn't unusual for after treatment. I personally had lots of joint pain and other odd health issues after treatment. It takes 6 months for ribavirin to leave your system. These are strong drug treatments.
treatment does have some side effects that go away with time. There are a few who have lasting effects. But many more who don't. I'm sorry your
feeling this way. Don't assume. Odd joint pain happens right after treatment. Your body is run down from the heavy drug treatment.
Hang in there. Rest!!
What is happening to you isn't unusual for after treatment. I personally had lots of joint pain and other odd health issues after treatment. It takes 6 months for ribavirin to leave your system. These are strong drug treatments.
treatment does have some side effects that go away with time. There are a few who have lasting effects. But many more who don't. I'm sorry your
feeling this way. Don't assume. Odd joint pain happens right after treatment. Your body is run down from the heavy drug treatment.
Hang in there. Rest!!
and what drugs / radiation did you take for your NH lymphoma and what drugs do you take at the moment?
thank you!
thank you!
hello zarmar,
are you treatment experienced with Interferon?
how long were you infected?
how old are you?
are you treatment experienced with Interferon?
how long were you infected?
how old are you?
Hello All - I have not posted for a while addressing one or another of the bundle of health problems I have since SVR last year. 12 wks of S/O achieved UNDE. A really good thing. However, as some of you mentioned, not without post TX woes. I am have persistent granulomas, shingles (I was vaccinated but probably more likely to happen after TX) chronic dry eye, and painful joints from Sjogrens. The brain fog is noticeable to me and people who know me well. I hope it doesn't get worse. I also have NH lymphoma, in remission, but the immunotherapy that I take when it flares suppresses the immune system. It is hard to get ahead - rebuilding immune system is one step forward, two back.
a life is destroyed by a drug that should prolong life?
It sounds to me after cancer therapeutics such as 5-flourouracil. I do not know if it has the same effect as IFN on the brain but it defenetly is disastrous on the brain and wipes out many cells. each drug that prolonges life, but attacks the brain should have much higher barriers to prescribe by a physician.
It sounds to me after cancer therapeutics such as 5-flourouracil. I do not know if it has the same effect as IFN on the brain but it defenetly is disastrous on the brain and wipes out many cells. each drug that prolonges life, but attacks the brain should have much higher barriers to prescribe by a physician.
You are welcome but no need to thank me.
I treated at the University of Pittsburgh Liver Center (UPMC Liver Center). I later learned that they are suppose to be one of the top research centers in the world! They take cases that no one will touch, from around the world.
While the head of the Center is a S*umBag the hard working Drs ***but mostly the NURSES were very compassionate and laid it out very honestly. They never used the word cure. Always UNDetectable.
I was told by multiple nurses that the blood test was NOT sensitive enough to detect the small amount left by INF Riba treatment (they did not say that Big Pharma was unable to develop such a test but what do you think?).
I dont know why anyone would argue anyways. It has always been basic science that a virus cannot be cured! Just do a search for what happened in the past to companies that have attempted to cure the cold!
Lastly, my first post at MedHelp, so many years ago, was after my visit to the top nurse two years after UND. After hearing of all the horrors I was suffering from, this nurse apologized for Destroying My Life! She said over and over again: We are Sorry We Destroyed Your LIfe! At first I was very angry then I was so happy that this woman finally told the truth.
That afternoon she shared many things with me and I was writing notes all over my pages. INF changed a gene she told me! I wrote this all down and when I had the second appt with her and asked for more details she forgot everything she told me!
I treated at the University of Pittsburgh Liver Center (UPMC Liver Center). I later learned that they are suppose to be one of the top research centers in the world! They take cases that no one will touch, from around the world.
While the head of the Center is a S*umBag the hard working Drs ***but mostly the NURSES were very compassionate and laid it out very honestly. They never used the word cure. Always UNDetectable.
I was told by multiple nurses that the blood test was NOT sensitive enough to detect the small amount left by INF Riba treatment (they did not say that Big Pharma was unable to develop such a test but what do you think?).
I dont know why anyone would argue anyways. It has always been basic science that a virus cannot be cured! Just do a search for what happened in the past to companies that have attempted to cure the cold!
Lastly, my first post at MedHelp, so many years ago, was after my visit to the top nurse two years after UND. After hearing of all the horrors I was suffering from, this nurse apologized for Destroying My Life! She said over and over again: We are Sorry We Destroyed Your LIfe! At first I was very angry then I was so happy that this woman finally told the truth.
That afternoon she shared many things with me and I was writing notes all over my pages. INF changed a gene she told me! I wrote this all down and when I had the second appt with her and asked for more details she forgot everything she told me!
1 Comments
WOW! Frank, I am just reading this, I'm shocked, I thought we were cured with the newer treatments! Years ago I had read that the tx gets the virus down to a level the body can supress. But if that is true then why didn't it "handle" it when we first had the viral load
exactly.
do people really fall for the bull about "cure"? Try to pull that one on another virus like the common cold virus and see what happens to that company! Fact is that the test to determine a "cure" are not sensitive enough and that is the way Big Pharma wants it.
After being "cured" my GP and I decided to test that and did a biopsy which found a small amount of live virus. Very small amount but live virus in a biopsy. Blood test are not going to find it but the gold standard will.
do people really fall for the bull about "cure"? Try to pull that one on another virus like the common cold virus and see what happens to that company! Fact is that the test to determine a "cure" are not sensitive enough and that is the way Big Pharma wants it.
After being "cured" my GP and I decided to test that and did a biopsy which found a small amount of live virus. Very small amount but live virus in a biopsy. Blood test are not going to find it but the gold standard will.
Ooops I forgot to say that I don't think you relapsed, just that Riba side effects last a long time. 24 weeks of Kira has a 95+% success rate, I just wanted to point out that Riba and INF side effects can take years to resolve.
Once you get your SVR confirmed, take some time to just rest and heal.
Once you get your SVR confirmed, take some time to just rest and heal.
I also have autoimmune issues. I personally believe that they are a side effect caused by our immune systems attempting to fight off the virus. I have noticed that when I am undetected during treatment, my psoriasis subsides except for one or 2 "master patches", which never improve.
If you are on a Ribavirin regimen, it is often due to low platelets and anemia. My psoriatic arthritis got really bad during my Incivek regimen, and stayed that way for 2 years. After 24 weeks of Harvoni, the arthritis has completely gone away. I still had joint pain 12 weeks into treatment, at week 18 it stopped and I have had no joint pain at all up until now, 4 weeks EOT.
I believe that if you rid the body of the virus, your immune system can learn to stop being "overactive"
I think that the virus is the root cause of the autoimmune syndrome. If you get rid of it, and give your body rest, good food, and stress relief, your autoimmune issues will improve dramatically.
This is just based upon my personal experience. Good luck and best wishes.
If you are on a Ribavirin regimen, it is often due to low platelets and anemia. My psoriatic arthritis got really bad during my Incivek regimen, and stayed that way for 2 years. After 24 weeks of Harvoni, the arthritis has completely gone away. I still had joint pain 12 weeks into treatment, at week 18 it stopped and I have had no joint pain at all up until now, 4 weeks EOT.
I believe that if you rid the body of the virus, your immune system can learn to stop being "overactive"
I think that the virus is the root cause of the autoimmune syndrome. If you get rid of it, and give your body rest, good food, and stress relief, your autoimmune issues will improve dramatically.
This is just based upon my personal experience. Good luck and best wishes.
i believe that your past ifn treatment(s) are the cause and that the actual tx opened old wounds?
I believe we are just beginning to understand that there are post-treatment side effects even with the new regimens
I got something that looked like little bumps on my face and my doc prescribed an acne type medication. It works but prob because it removes bacteria
I think we should make a list of post-treatment sx that people are experiencing. I don't feel like the medical industry is very focused on that issue
I got something that looked like little bumps on my face and my doc prescribed an acne type medication. It works but prob because it removes bacteria
I think we should make a list of post-treatment sx that people are experiencing. I don't feel like the medical industry is very focused on that issue
I doubt it. The drugs are powerful immune system modulators with poorly understood long-term effects and they have likely affected your immune system.
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