Anyone else have joint problems 10 year post Hep C treament?

[bs1111]

I was on "experimental" Interferron and riboviron treatment for 2 years in 1999-2001 and now have no cartilage in my shoulders and have chronic joint pain.  I need bilateral shoulder and hip replacements and have acute lower spine pain which causes bilateral sciatica. It seems strange all my joints are breaking down at once.  At 55 years old, my Dr's comment I am young to need joint replacements.  My Doctors don't seem to know what has caused this condition and one said it was probably congenital???  I think it is related to my Hep C treament because that made all my cartilage and skin hurt at the time.  Has anyone else had these symptoms?  FYI no evidence of virus for 10 years now even tho my chemo treatment was called a "failure"

[desrt]

"The translation of "kumbaya" is "come by here".) "
http://www.proz.com/kudoz/English/religion/1278567-kumbaya.html

"Kum ba yah") — is an African-American spiritual song from the 1930s........
The song was originally associated with human and spiritual unity, closeness and compassion, and it still is, but more recently it is also cited or alluded to in satirical or cynical ways which suggest false moralizing, hypocrisy, or naively optimistic views of the world and human nature."
http://en.wikipedia.org/wiki/Kumbaya

[gene53]

Ya Double D its kind of a damned if you do or don't deal sometimes.
I'm not digging the personal attacks from any direction cause I think ultimately everyone is trying to help each other out.
It is just crazy how these treatments effect each of us so differently, even after treatment is over.

anyway, Kumbiya ( what ever that means )
Gene  

[DoubleDose]

Thanks for the excellent posts.  Both are well worth reading several times.  Willy, you do have a way of finding the balance on an issue, and standing back from the 'fray' to bring a succinct synopsis to bear on an issue or thread.   Thanks for your reasoned comments, and unemotional explanation of what we are trying to deal with...and the complexities attached.  I couldn't agree more!

DoubleDose

[DoubleDose]

First let me apologize for being somewhat inflammatory in my reply to Hector's post about my comments.  I had no real idea that you had been through so much, and are dealing with extreme circumstances.  Had I been up to speed, I would likely not replied at all.  At the same time, if you re-read your post, I think its pretty apparent that you are 'calling me out' in no uncertain terms, and questioning my honesty as relates to my statements.  I am not going to get into the content and substance issue again, other than to say that everything I have stated is as open and honest as I can possibly be.  I do understand your difficult history, and the circumstances you are dealing with...but I don't think that I should be subject to sarcasm, and ridicule for my comments without any reply.  Granted I fell into the trap of returning the sarcasm, and being a bit 'offensive...so I do apologize for that...I guess I reacted to the nastiness that I felt in your words.  I should have just remained silent and let it ride.

I agree that we ALL need to be respectful of each others opinions and comments. I will keep that at the forefront of my mind in my future posts on the forum.  But I do believe its a two way street.   I don't wish to spend time on a forum where you get skewered by a small group for voicing a perfectly straight forward opinion ,(which, by the way, is shared by other forum members too) and for making comments on my experiences.  I would rather just dis-engage than to have to deal with that constantly.

DoubleDose

[gene53]

Ditto what Pooh just said.

I know everyone has a different take on treatments but for me having stage 4 cirrhosis currently on treatment Hector I can't thank you enough for the advice and support you have given me not only on my private messages to you answering my questions, but also advice via links and other methods you have generously taken the time to help others on this site, despite your own heavy duty health issues.

again ditto what pooh said, thanks for all you do and have done for the rest of us
Gene

[pooh55811]

I usually steer clear of posts and threads when they start to get personal, but I need to say this.  Hector is one of the most knowledgeable people, perhaps THE most knowledgeable on this forum. In addition, Hector spends hours writing extremely caring, informative, detailed, and helpful responses to people who are very ill, desperate to find treatment, and no idea where to look or how to proceed, especially those with cirrhosis and those with ESLD (but others too). Few other people on this forum (if any) have given the same amount of detailed information Hector includes in his responses (medical centers and phone numbers, doctors and phone numbers, financial help, insurance help, constructive advice, county services and phone numbers, and much, much more). He does not have to sit on this forum responding to people's requests for help, but he does. And he does this even though he has decompensated ESLD, hepatic carcinomama, is on and off chemo, and is waiting for a transplant. My hat is off to Hector. I have the utmost respect and admiration for him. We are extremely fortunate to have him as a member and even more fortunate that he is willing to help so many people when he is so sick.

(I am not overlooking the other extremely knowledgeable and helpful people on the forum, of which there are several, or the others who are ill with cirrhosis, but Hector is the one who really goes out of his way to help the sickest people who come on the forum seeking help and I think it is important that people remember that.)

Thanks, Hector, for all you do for the rest of us.