Aa
HEP C free, yippee
I realize this won't effect some, although reading it may be an eye opener.
I have now had 3 negative PCR's. This after 3 years of treatments.
Congrats ?????
Well thank you!!!!
Most in here won't remember me...I left this forum for my own sanity.
Some folks like to learn, others like to criticize those who try to. Who has time for that!
So why sans doc advice?
What your docs don't tell you can kill you, that’s why. Mine, for instance told me to eat plenty of protein.....ha ha ha ha ha ha ha hah ahhhhhhhhh!
OH, and gave me killer drugs..
Oh and opps killed a few folks. : (
So no matter what you are taking, read on.
I did standard tx 1st time, Rib and INF...2 yrs, neg during tx after 6 mo. relapse immediate after tx. Then I started doing my own research as to why I failed…since I did everything they said to do to the letter.
2nd tx...did Riba, INF, and Incivek
DID NOT listen to docs because both they and the drug companies failed to inform.
Inform about what?? GLAD YOU ASKED !!!!!!
1. you cannot make interferon in an insulin rich environment, therefore your natural inf, or man-made, either will be destroyed by a normal diet...diet must be no sugar, no fast carbs.
There is so much research that Cowriter and I posted on this, it boggles that folks never accepted it.
2. you cannot absorb riba without fat. Riba will not dissolve, it is hydophobic...for absorption one must stimulate bile, and eating fat does this...20 grams per riba dose is essential.
Read my threads on riba absorption, or which ever protease inhibitor they put you on. Fortunately this one discovery seems to have now caught on. It was the only bit of research my docs believed when I took it in.
3. You CAN NOT NOT NOT eat protein at the same time you eat your protease inhibitor, regardless of type.
The brush border membrane cells (in your intestines) prefer natural protein and will leave 90% of your meds unabsorbed if you eat them together.
http://www.medhelp.org/posts/Hepatitis-C/Ribavirin-absorption-fats-and-PURINEs/show/1446708
4. Some of the new drugs, Incivex as an example, applify other drugs...up to 75 fold...meaning some of the side effect drugs you may be given will get rid of your side effects...because they will KILL you. Any drug which hogs all the bandwidth as some of these chemo drugs do, can cause other drugs to not clear, or be applified to the point of one dose being fatal.
http://www.medhelp.org/user_journals/show/315468/Drug-interactions-in-the-liver-101
http://www.medhelp.org/posts/Hepatitis-C/triple-tx--drug-interactions70x-stronger/show/1568051
How do I know all this?? PUB med...etc. Why did my clinic not accept but 1 in 4 stacks of research…guess because Stanford (them) doesn’t think MIT (me) know anything!
Bottom line..
Do your homework, don't expect docs to know it all...or care to know.
I took all my research in to them, all done by their fellow docs, all done using scientific method, and they still ignored the research on all but the fat.
How did it work for me???
Well, they had to lower my riba to 200 mg, I was absorbing it so well they had to.
too much riba can hurt kidneys, but not enough and you won't be cured, ergo learning how to eat for optimal absorption IS key.
This is true regardless of which meds we discuss. It will be true in the future, regardless of meds.
In this country, they don't even bother to check to see what your blood level of the various meds are!!!
Whereas in Sweden, K. Lindhal checked levels, and got ALL patients to clear the virus by making sure levels were right!!!
Which is why I did the research. That was my 1st clue.
I figured there had to be an absorption issue this country (USA) doctors were not addressing.
Low and behold, the research was there, and the drug companies even KNEW all that, especially about the fat...and did not inform the physicians!!!!
So much for shooting for efficacy...looking for repeat customers sound more like it!
In any case, I am HEp C free....thank GOD.
Oh and BTW...the little tidbits I took them regarding not to RX certain side effect meds with the current tx???
they ignored...
and killed several people. Now the clinic tells me they won't be treating any more folks with that combo...too dangerous!!
Yeah, well maybe if they had bothered to learn before they prescribed those folks wouldn't be.
My advice to all.
Learn to boolean. What you don't know can kill you.
examples: Riba and liver damage, riba and absorption, (Drug name) and liver damage, Drug name and absorption, drug name and interaction with other drugs....
If you take these treatments, I am assuming you are doing it to get well, not to get overdosed or dead...
so do your own homework, doctors are too busy to be as well informed oh each chemo as they should be...and even pharmacist are as well..
I took one helper drug, one time, and almost died...and this only because I only took a half dose, having read the research, and it STILL almost killed me. So learn to be a little wary when they say, oh that won't hurt you.
IT may not...and then again.......
OH, and it was not a rarely used transplant drug (in case Mike still wander these halls and wonders) that cause the overdose, it was ½ of the smallest dose of antihistamine, given for the skin rash, which then caused my very low dose pain med to amplify. Thank God I was on a low dose or you would not be reading this.
P450 cytochromes...flockhart charts...get the picture doc?
http://www.medhelp.org/user_journals/show/315468/Drug-interactions-in-the-liver-101
the point to this post was 2 fold…
a. to let whatever few people still remember me know I am free at last!!
b. To let the rest of you know that the only thing scarier than the truth….is to be afraid of the truth.
Please forgive me if I am not around for discussions, I’ve said my piece…this forum helped me once, and I tried to help a few myself…but have moved on.
Final thoughts: Whatever treatments we find ourselves accepting, we need to remember that doctors are human, and human beings have failings, staying informed when hundreds of new tx's come out each year is not something even most "specialists" can keep up with…if you want to survive chemo therapies know what you are taking, and why, and how to take it, and how to help it work.
Do not assume that the powers that be know or will share with you everything that pertains to YOUR health. Be proactive and your odds get much better, or play roulette by assuming the docs know as much as they should..your choice.
Nuf said.
MB out.
I have now had 3 negative PCR's. This after 3 years of treatments.
Congrats ?????
Well thank you!!!!
Most in here won't remember me...I left this forum for my own sanity.
Some folks like to learn, others like to criticize those who try to. Who has time for that!
So why sans doc advice?
What your docs don't tell you can kill you, that’s why. Mine, for instance told me to eat plenty of protein.....ha ha ha ha ha ha ha hah ahhhhhhhhh!
OH, and gave me killer drugs..
Oh and opps killed a few folks. : (
So no matter what you are taking, read on.
I did standard tx 1st time, Rib and INF...2 yrs, neg during tx after 6 mo. relapse immediate after tx. Then I started doing my own research as to why I failed…since I did everything they said to do to the letter.
2nd tx...did Riba, INF, and Incivek
DID NOT listen to docs because both they and the drug companies failed to inform.
Inform about what?? GLAD YOU ASKED !!!!!!
1. you cannot make interferon in an insulin rich environment, therefore your natural inf, or man-made, either will be destroyed by a normal diet...diet must be no sugar, no fast carbs.
There is so much research that Cowriter and I posted on this, it boggles that folks never accepted it.
2. you cannot absorb riba without fat. Riba will not dissolve, it is hydophobic...for absorption one must stimulate bile, and eating fat does this...20 grams per riba dose is essential.
Read my threads on riba absorption, or which ever protease inhibitor they put you on. Fortunately this one discovery seems to have now caught on. It was the only bit of research my docs believed when I took it in.
3. You CAN NOT NOT NOT eat protein at the same time you eat your protease inhibitor, regardless of type.
The brush border membrane cells (in your intestines) prefer natural protein and will leave 90% of your meds unabsorbed if you eat them together.
http://www.medhelp.org/posts/Hepatitis-C/Ribavirin-absorption-fats-and-PURINEs/show/1446708
4. Some of the new drugs, Incivex as an example, applify other drugs...up to 75 fold...meaning some of the side effect drugs you may be given will get rid of your side effects...because they will KILL you. Any drug which hogs all the bandwidth as some of these chemo drugs do, can cause other drugs to not clear, or be applified to the point of one dose being fatal.
http://www.medhelp.org/user_journals/show/315468/Drug-interactions-in-the-liver-101
http://www.medhelp.org/posts/Hepatitis-C/triple-tx--drug-interactions70x-stronger/show/1568051
How do I know all this?? PUB med...etc. Why did my clinic not accept but 1 in 4 stacks of research…guess because Stanford (them) doesn’t think MIT (me) know anything!
Bottom line..
Do your homework, don't expect docs to know it all...or care to know.
I took all my research in to them, all done by their fellow docs, all done using scientific method, and they still ignored the research on all but the fat.
How did it work for me???
Well, they had to lower my riba to 200 mg, I was absorbing it so well they had to.
too much riba can hurt kidneys, but not enough and you won't be cured, ergo learning how to eat for optimal absorption IS key.
This is true regardless of which meds we discuss. It will be true in the future, regardless of meds.
In this country, they don't even bother to check to see what your blood level of the various meds are!!!
Whereas in Sweden, K. Lindhal checked levels, and got ALL patients to clear the virus by making sure levels were right!!!
Which is why I did the research. That was my 1st clue.
I figured there had to be an absorption issue this country (USA) doctors were not addressing.
Low and behold, the research was there, and the drug companies even KNEW all that, especially about the fat...and did not inform the physicians!!!!
So much for shooting for efficacy...looking for repeat customers sound more like it!
In any case, I am HEp C free....thank GOD.
Oh and BTW...the little tidbits I took them regarding not to RX certain side effect meds with the current tx???
they ignored...
and killed several people. Now the clinic tells me they won't be treating any more folks with that combo...too dangerous!!
Yeah, well maybe if they had bothered to learn before they prescribed those folks wouldn't be.
My advice to all.
Learn to boolean. What you don't know can kill you.
examples: Riba and liver damage, riba and absorption, (Drug name) and liver damage, Drug name and absorption, drug name and interaction with other drugs....
If you take these treatments, I am assuming you are doing it to get well, not to get overdosed or dead...
so do your own homework, doctors are too busy to be as well informed oh each chemo as they should be...and even pharmacist are as well..
I took one helper drug, one time, and almost died...and this only because I only took a half dose, having read the research, and it STILL almost killed me. So learn to be a little wary when they say, oh that won't hurt you.
IT may not...and then again.......
OH, and it was not a rarely used transplant drug (in case Mike still wander these halls and wonders) that cause the overdose, it was ½ of the smallest dose of antihistamine, given for the skin rash, which then caused my very low dose pain med to amplify. Thank God I was on a low dose or you would not be reading this.
P450 cytochromes...flockhart charts...get the picture doc?
http://www.medhelp.org/user_journals/show/315468/Drug-interactions-in-the-liver-101
the point to this post was 2 fold…
a. to let whatever few people still remember me know I am free at last!!
b. To let the rest of you know that the only thing scarier than the truth….is to be afraid of the truth.
Please forgive me if I am not around for discussions, I’ve said my piece…this forum helped me once, and I tried to help a few myself…but have moved on.
Final thoughts: Whatever treatments we find ourselves accepting, we need to remember that doctors are human, and human beings have failings, staying informed when hundreds of new tx's come out each year is not something even most "specialists" can keep up with…if you want to survive chemo therapies know what you are taking, and why, and how to take it, and how to help it work.
Do not assume that the powers that be know or will share with you everything that pertains to YOUR health. Be proactive and your odds get much better, or play roulette by assuming the docs know as much as they should..your choice.
Nuf said.
MB out.
Hi Robin, I just saw your msg, so sorry, I have been off line. I feel better.
Time seems to be what is needed for some of us
Take Care
D
Time seems to be what is needed for some of us
Take Care
D
Merrybe!! Oh my gosh I just sent you a message this past week. I was thinking of you and wondering how you were. What a coincidence though I have heard that coincidence is God's way of being anonymous.
I am so happy to hear your news! You an Cowriter, Willing etc, helped get me to SVR. I relapsed after first tx of peg riba and polymerase inhibitor. After that I started reading your posts about IR resistance and I believed that my using the metformin faithfully to keep my sugar level low I could get to UND, SVR and now cured two years after finishing tx. I was never told to eat fat with my Riba though after I finished I saw many people mentioning that. I am so happy to see your name. I have thought of you often over the years.
I am so happy to hear your news! You an Cowriter, Willing etc, helped get me to SVR. I relapsed after first tx of peg riba and polymerase inhibitor. After that I started reading your posts about IR resistance and I believed that my using the metformin faithfully to keep my sugar level low I could get to UND, SVR and now cured two years after finishing tx. I was never told to eat fat with my Riba though after I finished I saw many people mentioning that. I am so happy to see your name. I have thought of you often over the years.
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