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Post Triple Therapy Side Effects: Joint Pain/Stiffness
Finished triple therapy Jan 28, 13. (early) due to side effects and now I am experiencing joint pain, stiffnes that
started a couple months after treatment.
When I sit for any period of time, my hips are so stiff and my feet are stiff too. My feet feel like they can't hold me up. Ambulation is not so easy. After a few moments of being up on my feet and walking the discomfort and stiffness goes away. I am also experiencing wrist pain, carpel tunnel type symptoms in one hand that I dont use much for writing or anything. Wakes me up at night. I am not over weight and I am very active. I don't understand what is going on. I was checked for autoimmun diseases and that was negative. My hep doctor denies any knowledge of such side effects post treatment and tells me this is what happens when we age. No way. No Way! I have worked out my whole life and am very active, before treatment I did kick boxing, zumba, weight lifting, pilates and yoga. No I can't do those things yet to the degree that I was before, but I am working on getting my strength and endurance back. I understand it take time, but...
Is any one else experiencing joint problems after treatment? What have you done to treat and did you get back to normal? I started taking supplemts: glucosamine, chrondroitin and msm to try and help but not so far. Triple therapy turned my body inside out and although I am feeling much better then I did when I was on treatment, these side effects are new to my body. I feel like an 80 year old instead of an active 50 something.. Thank you for any advice or sharing of your post treatment new side effects.
started a couple months after treatment.
When I sit for any period of time, my hips are so stiff and my feet are stiff too. My feet feel like they can't hold me up. Ambulation is not so easy. After a few moments of being up on my feet and walking the discomfort and stiffness goes away. I am also experiencing wrist pain, carpel tunnel type symptoms in one hand that I dont use much for writing or anything. Wakes me up at night. I am not over weight and I am very active. I don't understand what is going on. I was checked for autoimmun diseases and that was negative. My hep doctor denies any knowledge of such side effects post treatment and tells me this is what happens when we age. No way. No Way! I have worked out my whole life and am very active, before treatment I did kick boxing, zumba, weight lifting, pilates and yoga. No I can't do those things yet to the degree that I was before, but I am working on getting my strength and endurance back. I understand it take time, but...
Is any one else experiencing joint problems after treatment? What have you done to treat and did you get back to normal? I started taking supplemts: glucosamine, chrondroitin and msm to try and help but not so far. Triple therapy turned my body inside out and although I am feeling much better then I did when I was on treatment, these side effects are new to my body. I feel like an 80 year old instead of an active 50 something.. Thank you for any advice or sharing of your post treatment new side effects.
I am glad pooh you found something that is working. Your suggestion of a rheumatologist is excellant! These are deffinately disorders that need to be identified or ruled out if post symptoms persist of this nature.
I was tested for autoimmine disorders and a couple other diseases, none were positive. I believe the medications brought my symptoms on or were a precurser to what ever it is I am experiencing. I am hopeful they will go away in time.
Hope you & all continue to feel better.
I was tested for autoimmine disorders and a couple other diseases, none were positive. I believe the medications brought my symptoms on or were a precurser to what ever it is I am experiencing. I am hopeful they will go away in time.
Hope you & all continue to feel better.
I am sorry that you are having these problems.
Most regular doctors really have no clue when it comes to Hepatitis C, extrahepatic manifestations of Hepatitis C, or post treatment issues related to treatment for Hepatitis C.
Both Hepatitis C and Interferon can trigger autoimmune disorders. Joint pains are frequently symptoms of autoimmune disorders. Have you seen a good Rheumatologist at a large medical facility, such as a university medical center? A competent Rheumatologist should thoroughly examine you and test you for all autoimmune disorders as well as other rheumatological disorders. Perhaps the Rheumatologist would also refer you to other appropriate specialists.
I recently saw a Rheumatologist who examined me and tested me for multiple autoimmune disorders. I was diagnosed with Sjogren's Disease, which I actually had before Hep C treatment but did not know it. I am now on Plaquenil and am already seeing an improvement in my symptoms.
Most regular doctors really have no clue when it comes to Hepatitis C, extrahepatic manifestations of Hepatitis C, or post treatment issues related to treatment for Hepatitis C.
Both Hepatitis C and Interferon can trigger autoimmune disorders. Joint pains are frequently symptoms of autoimmune disorders. Have you seen a good Rheumatologist at a large medical facility, such as a university medical center? A competent Rheumatologist should thoroughly examine you and test you for all autoimmune disorders as well as other rheumatological disorders. Perhaps the Rheumatologist would also refer you to other appropriate specialists.
I recently saw a Rheumatologist who examined me and tested me for multiple autoimmune disorders. I was diagnosed with Sjogren's Disease, which I actually had before Hep C treatment but did not know it. I am now on Plaquenil and am already seeing an improvement in my symptoms.
Brandi I don't know what the damage or condition is for our post joint & muscle condition. I hope you have improvement and please know that it happens over time. I am almost 9 months post treatment and some days are better then others. I feel my feet painfully collapse like melting putty when I get out of bed and walk first thing in the morning, my spine and shoulders still crunch & grind with any kind of movement but worst in am. My hands and feet don't swell but fingers still do. My knees hurt occasionally. Hip stiffness after sitting for any amount of time. I found yoga first thing out of bed in the am is helping. I take magnesium and I walk every day. I know no one in the medical community is acknowledging this post side effect. I don't know why. I can only say, I am hep c negative at this point thanks to the therapy. I would do it all over again to have my life back. Now my life is not as it was but I am positive and each day post treatment I am blessed. We have to give ourselves the best nutrition, exercise, positive attitude, a strong belief in our bodies that we will heal. Remember we had therapy that was the worst of the worst in chemo and it took a huge toll on us, it had to too kill the virus. Our bodies need a lot of time to heal. 6 months to get the chemo out after therapy and at least a year to heal, for a lot of us longer. I refuse to believe I will not be physically back to what I was..... Stay strong! Sending healthful wishes to all!
Hi everyone -
We moved this to the Post Treatment Issues because Floridian7 has been off treatment for 6 months+. Others that have added their comments haven't yet been off that long, and we'd suggest posting in the Hep C Community, as it could still be from the meds that have yet to entirely clear from your body.
Thanks!
Emily
We moved this to the Post Treatment Issues because Floridian7 has been off treatment for 6 months+. Others that have added their comments haven't yet been off that long, and we'd suggest posting in the Hep C Community, as it could still be from the meds that have yet to entirely clear from your body.
Thanks!
Emily
I have severe joint pain that came on aproximately 3 months post triple therapy. I am only 37 years old but I feel like I am 90. I was active and sporty b4 treatment but I can not even run now. My knees are the most affected and it is very painful. :( my doctors also act as if they never see this side effect but without a doubt treatment caused it 100%!!!!!! I am stiff all over now like an old person :( bums me out.
Thank you so much for all of these articles! I really appreciate, I have been looking for some relation ship between the pain and HCVdamage, liver damage and then interferon.
I am having some bad tendon problems, muscle problems.
I just bought some magnesium oil in the hope that will help, I am also on my way to the doctor now.
Thanks again
Dee
Great thread, thank you all for your input
I am having some bad tendon problems, muscle problems.
I just bought some magnesium oil in the hope that will help, I am also on my way to the doctor now.
Thanks again
Dee
Great thread, thank you all for your input
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It really does take time and if you were once an active person I am sure you feel impatient.
I believe my joint pain which was severe was a result of HCV. However, I felt so bad during treatment I was barely mobile which I believe worsened my condition.
I have found gentle or restorative yoga to be helpful. My joints had hurt so bad I as afraid to exercise them for a long time. I began to swim and when I found the movement to be pain free, it gave me the confidence to try the yoga moves. It is helping.
Like I have been told countless times, be patient and just stay with it, when you find the that exercises work for you.
I believe in time you will improve.
I wish you all the best.