long term after effects post interferon

[jem43]

My last interferon injection was 12 months ago. I feel tired, lethargic, my bones ache in the morning esp in my feet. I'm in bed asleep by 10-30....and now i've developed a fissula, a perenanal abcess. My doctor thinks it may be because since the interfeon my immune system is v.low to warding off infections.
Are these symptoms shared by others.

[Sioux]

You should get tested for fibro. It seems that there are alot of us who developed it. Your pcp may not know enough about it.

[Bt56]

I have been under the assumption that I had fibromyalgia ever since my treatment for hep c in 1995, but recently I ran  across a post talking about post interferon syndrome and the lists of symptoms  for that condition more closely resembles the hell I have been going through ever since my treatment. I was taking 5 million units of Interferon Alpha 1A by intermuscular injection 3 times a week for an entire year.  
Since then I have battled chronic fatigue, severe bone pain, chills and sweats. I have been diagnosed with two autoimmune disease, Giant cell Arteritis and polymyalgia rheumatica. I  also have thyroid issues and heart disease. Additionally the list of issues includes trouble with my eyesight, headaches and memory problems. I also have gastrointestinal issues and sleep problems. I have  swollen  Joints that come and go, and wake up with numb arms and feet. I  also have raynauds  and God knows what I am forgetting to list.  What I am trying to find out now is does anyone know if Post Interferon Syndrome a recognized illness?

[flyinlynn]

You have added a comment to a thread originally started in 2004. You might be better served to start your own thread. But in any event I seem to be one of the few hanging around to comment these days since the new DAA meds like harvoni have come out and many are now being cured.

I was able to find this information

https://www.healthline.com/health/hepatitis-c/interferons-long-term-effects

But the best thing I can suggest is to work with your doctors. I’m not aware of an officially recognized post interferon syndrome per say. As for myself I treated 3 separate times with interferon based treatments each one was 6 months in duration but unfortunately I was a null responder to those treatments. I was finally cured 4 years ago after having hep c for 37 years and developing cirrhosis 11 years ago as a result of my at the time 30 years of hep c infection.

Best of luck to you I hope you can find relief from your symptoms.

[Bt56]

Thank you, I have been on so many web sites looking for information that I lost track of this one. I will try to start a knee thread but not quite sure how to do that so if you have any suggestions  on how to copy this and repost it as a new question I would be grateful

[Bt56]

Thank you, I have been on so many web sites looking for information that I lost track of this one. I will try to start a knee thread but not quite sure how to do that so if you have any suggestions  on how to copy this and repost it as a new question I would be grateful

[flyinlynn]

On my phone I see a red bar that has a link in white background with red lettering that says “Ask a Question”

So however you are accessing this site look for a link that says ask a question and ask your question there.

[hellolove228]

Hi everyone, i need advice  
Chronic hepb female 30yrs, weight 128lbs , 5ft7  . am starting vemlidy next month, have  noncancerous cyst on my kidney, my viral load is 157000.000 ml and fibrosis stage 2 (8.9kp) is it really bad ? Does vemlidy has side effects on any of you ?  Am confuse and just learned about my hepatitis b, hope i can get answers here

[flyinlynn]

You have added a comment to a thread related to post interferon treatment problems which was a treatment for hepatitis C. This thread was originally started fifteen years ago in 2004 and unrelated to your situation.

[jem43]

Thanks for your words. Seems like there's so much more support in the statas(I'm in london). The most positive thing i'm doing is psychoanalysis. Funny thing is tho...having had hcv for 20 years before doing anything about it, it's only post tx that i feel so old.am 43

[oldhippiechick67]

I talked with my pain doctor again today, she said I will probably be diagnosed with FM (fibromy)...not lupus.  My face does get that weird redness every evening though.  I hope you find out what is ailing you, I know I have had to keep getting checked cuz I too didnt get all better after stopping the meds on tx.

[DoubleDose]

But they really don't know much about FM either, and many researchers believe it may be due to the reaction to a virus  (HCV???, maybe), or a related autoimmune type reaction.  Just because they have a name for the set of symptoms (FM), does not mean that they have a clue about what it is!  For all we know, Lupus, and FM, and CFS, RA, etc, may ALL be related variations of an autoimmune process.  In our cases, the FM , which is common to HCV sufferers, could be a vaguely lupus-like affliction caused by the immune system's reaction to the virus, and later, to the interferon that we pound the virus with!

I am not sure that all the labels they put on the various syndromes, (lupus, FM, etc) do much to help us understand why and how they do what they do to us. Ask your doctor if FM is an autoimmune disease...and I bet you do not get a direct answer.
I do not think the answer is known.  We just know that we (most of us) HAVE it.

[spike_]

has anyone else had a dry cough to deal with? and how long did it take to cease post treatment? to be honest its the only side effect ive had to deal with during the 6 months ive been taking it, now that im finished im wondering how long ill have to continue with the lozenges

[cflags]

What is trigger point injections? Been on the treatment 2 tx for 6 mos and 1 tx for 18 mos and i hurt most of the time joint pn mostly and never sure about anything. feel like I need to work this out before they want to try another type of treatment on me. What do you advise?
CFLAGS