Finished treatment S/O

[gibsongal]

Last night was my last dose of Sov/Oly!

I had blood work done last Thursday and will call them on Friday if they do not call me first. Very excited to hear of my results.
will let you all know..

I go back in 3 months for follow up tests.

I feel that i had no side effects to speak of , depression and fatigue but that is a piece of cake compared to some meds!

I gained 7 pounds, (i am 111 now and was 104 in May) which i needed and hope if i continue to gain some more weight and muscle and fat perhaps my muscle joint pain will subside.i was so thin..
Odd that i was trying to gain weight for almost 2 years… Had c.diff  Dec 2012, and was down to 101!
Seemed i couldn't gain anything. Now all of a sudden i am on the re bound with that!

I thank my doctors for getting me on this treatment with out Ribavirin..and Uncle Sam and my state for paying for it. I should write to my politicians and thank them.

[Dbzc2]

Yay you!  Now just a wait that is not so bad for the SVL undetected stuff!  Why not so bad...well you might start thinking clearer, you might actually feel different in a good kind of way...that's what I've been doing. My last dose was June 27th. I had my blood work done last Friday for my official three months post S&O.  Week 9.5 I was still undetected, (little emergency and weirdness that ended up being a horrific tummy flu), so I'm hoping it's just a confirmation of a successful S&O treatment!  I gained 10 pounds on S&O and have lost about five of those pounds now.

This past week, for those who know me was a first! The damn vertigo is finally easing up! Now I really only feel it at its worst after I hit my fatigue brick wall.  Fatigue is really my only one "thing" I hope to make a bit better, (I started raw protein shakes this week).

Other than that, each month really I have felt different.  I did have a lot of nasty hep c liver cirhossis symptoms. So really, the stuff I am trying to get used to is how to live with a liver that has portal hypertension. I only got that right before I began the treatment.

So, that was meant to be yay, you finished the treatment and now you are into phase 2--the wait!  Are you going to wait to the end for a final test, or are you going to be tested regularly?  Do report those milestones because we have a genuine mix of patients who are genuinely interested. Like me, I've followed everyone else to try to get a feel on what to expect and most importantly, what to not worry about!

To end, for those of you guys that are SVR with cirhossis, do you still have liver pain?  I didn't know if that was the portal hypertension or what?  I see my doc in a week and like I said before, I hope I'll get some good info to share! My liver pain, however, is today. : (

Congrats again and feel free to ask me any of the post treatment waiting questions.  I am officially 12.5 weeks post S&O!  Best wishes to all!
Dbz

[wizard327]

I so hope the meds kill the HCV I did well while taking O/S treatment except for the sun. Unfortunately it came back after 6 weeks. I'm pre opt transplant with cancer meld is 31 going to 33 end of September. Lonely Ness ***** I have the same problem had to move away from SF area to Fresno to be close to my support person.  Most the time I'm by myself with nothing but music and TV. I miss visiting and being around people but its hard when you can't think straight and feel shity. Good luck with your treatment.  

[smittlap]

I began S/O TX on 7/19 which coincided with my 9th anniversary of transplant.
Most TP guys expire because of HCV continuing to eat at their liver and my HCV, although tame compared to most, was killing me.
I am sitting next to the ocean in beautiful Hawaii, but fear going out and exposing myself to the raging sun we have here. So I isolate and deal with all the sides you all know about already.
Gratitude is my only hope because I have been shot at and missed and (you know the saying) and HIT.
Meanwhile I have much to be grateful for. At week 4 I was UD and my #'s are all improving fast. My liver is no longer as hard as a rock

I was interested in everyone talking meds to ameliorate the sides. My arsenal consists of Codeine, Xanax and 2 antidepressants plus  sweets. I gained 6 lb. so far, but now feel good enough to start swimming again early in the morning.
My biggest side ,if you can call it that is, loneliness.

No G/F, No wife and the people I knew in AA have dropped me after 25 yrs sober. They say I am not sober an doing those dreaded "goofballs". Fair weather friends indeed.
So, I'm growing and praying and meditating and counting down to this latest
miracle.

Never say die

[gibsongal]

congrats Lynn…
i couldn't get out of bed with fatigue and pain..and i only had a million VL and stage 2 fibrosis…needless to say i have not had a job..

so now I feel really good!  i feel like i do not want to waste any more time , like doing things i prefer not to do, be everyones maid and cook and bottle washer. f*^$ the housework!
try not to  take this new life for granted…
now that i have recovered..it is an epiphany so to speak...

best

[flyinlynn]

Congrats on being undetectable at end of treatment that is fantastic news.

Next Wednesday is my 12 week post treatment viral load so obviously hoping I am still undetectable and cured of hep c. I also maybe feel a bit more energy and less tired. Before I could go to work normally but every couple of weeks or so I would just crash and sleep a good part of the weekend away. That is the main difference I have noticed was I haven't had the need yo do my occasional lost to sleep weekend so that is a good thing.

Best to all hope everyone beats the dragon
Lynn

[gibsongal]

checking in here friends..

docs think i am cured.! that i should stay UD..
i will have tests done in november.

the last  VL  was done a few days before my last dose of meds.
all my other labs are in normal range again! my kidney function is still off but that was due to meds in the past the docs (i no longer have) missed and kept me on meds that did damage, but even those kidney labs are the best in 6 years..!!!! yippeeeee

so i have more energy and can think clearer.
i think my pain syndrome is fading too. every day i feel better.
i gained weight i desperately needed and feel my food is being utilized better..odd but it was like no matter what i ate i couldn't gain and always lost weight…now i feel "normal" like the food is really giving me energy and nutrition..i feel like my body is rebuilding al that lost muscle and fat..perhaps that was the root of the muscle joint pain..i was wasting..

anyway.. i have been on light doses of pain meds for 2 years and want to go off now...see how i am doing pain wise…
i am not mentally addicted as i hate the feeling…
when i was in severe pain and they upped my dose a little  or i took an extra to stop crying from pain, i hated the "high" feeling..

but i am sure my body is addicted.

so i guess i will wean myself slow..since Tuesday... i took a half pill in the morning..and was ok with no pain and energy and was fine and happy…..and then started getting really tired and "sick" in the afternoons..like my stomach was in a knot..

so i will stick to half pills as far apart as i can stand it and get used to that..

any discontinuation of pain meds / oxycodone experience here?

I will try to take the lorazapam 2x a day as prescribed (i was just taking one usually when upset or when not sleeping when that fear "record"  was playing over and over and couldn't sleep..

and smoke some medical mary jane..lots of  water, OJ and sleep when needed..
anything else?

i can't believe i am cured..i sure feel like it..especially since my energy is up and pain down..

best to everyone here!

[Dbzc2]

Congrats on the big finish! I felt the same way and I too gained weight! I think b/c my activity level went to zip!  My 3 month test is Sep 27th for the big reveal! In the meantime I start part time teaching next week and hopefully slowly but surely more activity.

Congrats! Are you going to wait until the final test, or are you going to do the weekly or monthly test?  I did a post 2 week test which was non detected, and am now just going to wait.

Good luck!  Best, dbzc

[gibsongal]

I have more energy!
My mind is clearer.
I think my pain is better now that i gained weight. I think the food I eat is being metabolized better now. Eating just a little more, but not much but it is making a difference the way my body holds it better and I am not wasting. Before I could burn calories just sitting still..

Not taking naps every day. Still sleep late, but then i am up late..
I can do more things around the house. went to the woods and river on the back of the ATV with hubby and wasn't totally worn out, just a little.

Say it is so!!!

[Idyllic]

I am so glad this all worked out for you!
I am especially glad you were spared side effects :)

Best of luck as you move on to the next chapter of your life

[Dee1956]

Congratulations! I am so happy for you, this is great news!

Oh Cdiff, that is awful, my sister had that, ugh, so sorry