Aa
Another bomb dropped
Thought I was doing great after finishing the 48 weeks for 1a with an undetectable.
Yesterday I went to the pain clinic to deal with the RSD or neuropathy I had for years prior to treatmemnt and they dropped the big bomb on me MS, the right side of the body is hyper while the left is nonresponsive. They advised me to quit treatment ASAP, told them i'm done.
So... it's real bad according to these guys to treat hep c if'n ya gots da MS cuze it's an autoimmune disease.
Miles and miles of tests lined up now the best is the spinal tap, can't wait.
Don't think this dragon has a death mode, like Hep c does.
Whish me luck and prayers all around will help.
Harry
Yesterday I went to the pain clinic to deal with the RSD or neuropathy I had for years prior to treatmemnt and they dropped the big bomb on me MS, the right side of the body is hyper while the left is nonresponsive. They advised me to quit treatment ASAP, told them i'm done.
So... it's real bad according to these guys to treat hep c if'n ya gots da MS cuze it's an autoimmune disease.
Miles and miles of tests lined up now the best is the spinal tap, can't wait.
Don't think this dragon has a death mode, like Hep c does.
Whish me luck and prayers all around will help.
Harry
So sorry to hear your bad news...but do keep an open mind if it is not a done deal yet.
Medical conditions that can mimic MS include metabolic or vitamin deficiencies, unusual infections, inflammation of the blood vessels of the brain, degenerative disorders of the nervous system or cancers that have spread to the brain. This is why blood tests, X-rays, brain and spine MRIs, and spinal taps to analyze cerebrospinal fluid may be required before a diagnosis of MS can be made with certainty.
A diagnosis of MS is based upon an evaluation of your symptoms along with the results of your physical exam and tests....as stated by UCSF
Your statement "So... it's real bad according to these guys to treat hep c if'n ya gots da MS cuze it's an autoimmune disease." I also have an autoimune disease RA, and have been told I can still tx and use my Enbrel - this makes me really want to get a second opinion...I'll be seeing your doc forseegood
Medical conditions that can mimic MS include metabolic or vitamin deficiencies, unusual infections, inflammation of the blood vessels of the brain, degenerative disorders of the nervous system or cancers that have spread to the brain. This is why blood tests, X-rays, brain and spine MRIs, and spinal taps to analyze cerebrospinal fluid may be required before a diagnosis of MS can be made with certainty.
A diagnosis of MS is based upon an evaluation of your symptoms along with the results of your physical exam and tests....as stated by UCSF
Your statement "So... it's real bad according to these guys to treat hep c if'n ya gots da MS cuze it's an autoimmune disease." I also have an autoimune disease RA, and have been told I can still tx and use my Enbrel - this makes me really want to get a second opinion...I'll be seeing your doc forseegood
Wow! And you haven't posted back yet!!
Really hope it's a mistake! My biological mother had it, and they say it is not hereditary but now a 1/2 sister has it??
Glad cjacks came in here (and hello cjacks!) and hoping it's a wrong dx. Not fair :(
Let us know.
LL
Really hope it's a mistake! My biological mother had it, and they say it is not hereditary but now a 1/2 sister has it??
Glad cjacks came in here (and hello cjacks!) and hoping it's a wrong dx. Not fair :(
Let us know.
LL
Hi Harry,
OH man it sucks the bombs keep dropping hope you've got a reliable bomb shelter."Life is what happens to you while your busy making other plans" as John Lennon used to sing.
I haven't been here a while I'm sorting out some stuff tho-(O: I seem to be coming out of one of the heaviest depressions I've ever experienced whew.
I've been finding out heaps about nutrients that help our bodies in chemical shock after and during tx from a great site in OZ it's at www.hepcaustralia.com.au
go to the community forums and read what George has to say about different symptoms and remedies to help I seem to of finally found some thing that seems to be working for me there, in the way of what to take how much etc.
The forum wasn't as easy to get around for me as this one is but I'm pretty computer illiterate still and now I'm fine.
I hope you do better Harry. May you have many maple syrup trees to tap and much syrup to consume(O;
OH man it sucks the bombs keep dropping hope you've got a reliable bomb shelter."Life is what happens to you while your busy making other plans" as John Lennon used to sing.
I haven't been here a while I'm sorting out some stuff tho-(O: I seem to be coming out of one of the heaviest depressions I've ever experienced whew.
I've been finding out heaps about nutrients that help our bodies in chemical shock after and during tx from a great site in OZ it's at www.hepcaustralia.com.au
go to the community forums and read what George has to say about different symptoms and remedies to help I seem to of finally found some thing that seems to be working for me there, in the way of what to take how much etc.
The forum wasn't as easy to get around for me as this one is but I'm pretty computer illiterate still and now I'm fine.
I hope you do better Harry. May you have many maple syrup trees to tap and much syrup to consume(O;
sorry to hear yr pain issues are manifestly magnified..what are symptoms? any news yet as to diagnosis?.....my friends,john&sherry,drive a baby blue classic thunderbird coupe-perhaps you know the car,if not the drivers?...my best&GOODLUCK..
So sorry to hear you may have an autoimmune issue. I tx'd for HCV & I had AIH prior to it. Many doctors won't do that because of the chemical treatment affecting the autoimmune disease. Mine did & I still have everything under control on this end for yr & half now so I wish you only the best & hopefully you will be able to get this under control. Jody
just want you to wish you the best and a soft landing after all of this...hopefully, even though the docs tell you one thing, sometimes the oddest things clear up after some time of being done with tx....seen it so many times it ain't funny...hope this is the case with you....
I had that hyper reflexive thing. I told the doctor its just how I am and he insisted on the spinal tap (this was years ago) and he did it with NO numbing or anesthesia and it wasn't that bad. It also wasn't MS. So keep your chin up and we'll send prayers and positive feelings in your direction.
Hell, I did a bone marrow biopsy with absolutely no anesthesia a few week ago and it was survivable, although I don't recommend the no anesthesia version.
Hell, I did a bone marrow biopsy with absolutely no anesthesia a few week ago and it was survivable, although I don't recommend the no anesthesia version.
Yuck! I sure wouldn't jump off tx until the you have to and the fat lady sings! had 9 Dr's telling me to stop tx and I wouldn't. Only when the hepatologist I trusted and called said to stop, did I stop. Get those tests and make sure. I am so sorry you are going through this. As if Neuropathy isn't enough! Interferon does exaserbate this, but cause MS? Dunno, I sure hope not for your sake. Get second and third opinions.
Best wishes!
Linda
Best wishes!
Linda
I pray for you in the name of Jesus Christ Gods onlybegotten Son that a miracle will acquire and you will be completely healed from that MS. Please Jesus make that happen
I'm sorry you're going through this, Harry. I'm thinking this has to be a mistake. Is this a suspicion or a fully accurate diagnosis on their part?
I don't know what to say, Harry. I'm having a hard time accepting this for your sake. I don't pray much.....but I do believe in a higher power....and I'm praying now, Harry.
Please...keep us informed if you don't mind. And...if it IS so....well.....all I can say is that I have a friend with MS and he does alright for himself....and another guy I know doesn't...and the only difference between them from what I can see....is attitude.
And you, Harry...have attitude in spades. I'm hoping for you, Harry.
Hang in there.
Trish
I don't know what to say, Harry. I'm having a hard time accepting this for your sake. I don't pray much.....but I do believe in a higher power....and I'm praying now, Harry.
Please...keep us informed if you don't mind. And...if it IS so....well.....all I can say is that I have a friend with MS and he does alright for himself....and another guy I know doesn't...and the only difference between them from what I can see....is attitude.
And you, Harry...have attitude in spades. I'm hoping for you, Harry.
Hang in there.
Trish
Hi Harry
Why did they say MS ... I think its too early to say if you haven't had MRI , LP and many other tests ruling in / out other dx.s. Don't fret the LP , I just had mine last week , it was a piece of cake . Ask for it with fluoroscopy. I didn't feel much . I have tons of info about all of this . I have been in the MS forum for a few months .. What a great group of supportive people. Come on over and learn everything you wanted to know about MS :)..
I'm sorry you have had this scare but it is what it is , so now you need to get as informed as you possibly can .
I have posted a couple of times in hepc forum because I had it , tx.d x2 And am now going through the MS testing . If you look I wrote one asking who has ms and hepc . the other posts are on MO's post that she just bumped for you .
Hope to chat with you soon . Jo
Why did they say MS ... I think its too early to say if you haven't had MRI , LP and many other tests ruling in / out other dx.s. Don't fret the LP , I just had mine last week , it was a piece of cake . Ask for it with fluoroscopy. I didn't feel much . I have tons of info about all of this . I have been in the MS forum for a few months .. What a great group of supportive people. Come on over and learn everything you wanted to know about MS :)..
I'm sorry you have had this scare but it is what it is , so now you need to get as informed as you possibly can .
I have posted a couple of times in hepc forum because I had it , tx.d x2 And am now going through the MS testing . If you look I wrote one asking who has ms and hepc . the other posts are on MO's post that she just bumped for you .
Hope to chat with you soon . Jo
I popped a thread that I started back up to the top on the other side...please read it.
MO
MO
Well dang! Hang in there, do the test, spinal taps they will numb up for, they aren't as brutal as they used to be.
Maybe the test will show neg as ALA says.
Will keep you in prayers and Best of luck!
Deb
Maybe the test will show neg as ALA says.
Will keep you in prayers and Best of luck!
Deb
Harry, are they positive you have MS, or are they suspicious of it and scheduling the tests at this point? It is an autoimmune disorder and I've heard others say they were diagnosed after having received interferon, but if you haven't received a final diagnosis yet, then here's hoping you won't have it.
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