Aa
Calling all heppers...
I am thinking of writing a screenplay about having hep-c; how I got it and how I am currently dealing/living with it. I have no idea if anyone (independent film makers, etc) would have any interest in making a movie like this, but I'm going to write it anyway. I feel the need to tell this story so badly that sometimes it physically hurts. Or maybe thats just the hep-c.
The basis of the screenplay will be 4 or more separate stories that I am going to entwine in one common thread which is, of course, having hepatitis C. Each sub-story will have its own beginning, middle and end, and all the stories and charactors will link together both at the beginning and at the end.
If you want to share your hep-c experience, please reply to my journal entry which should be up shortly. I don't intend on using any real names or places; this screenplay will be an autobiographical work of fiction based on true stories, if that makes any sense. That's how I'm going to pitch it anyway.
Please keep it as short as possible; how you got it, how you found out you had it, reaction of co-workers, friends, loved ones, etc or if you didn't tell anyone, and whether you treated or not and the outcome. I am just going to try and fictionally expanded on these ideas.
Thanks for any help.
The basis of the screenplay will be 4 or more separate stories that I am going to entwine in one common thread which is, of course, having hepatitis C. Each sub-story will have its own beginning, middle and end, and all the stories and charactors will link together both at the beginning and at the end.
If you want to share your hep-c experience, please reply to my journal entry which should be up shortly. I don't intend on using any real names or places; this screenplay will be an autobiographical work of fiction based on true stories, if that makes any sense. That's how I'm going to pitch it anyway.
Please keep it as short as possible; how you got it, how you found out you had it, reaction of co-workers, friends, loved ones, etc or if you didn't tell anyone, and whether you treated or not and the outcome. I am just going to try and fictionally expanded on these ideas.
Thanks for any help.
its a great idea writing a screenplay . there should be a movie on this. 4 million people caught hepc in us alone and millions more around the world. 200000 in australia with hepc im one of them the promblem is which
story of hepc are you going to follow.?
The minority that clear the virus without any help, the ones that live with with HepC without treatment for 17 years like me or the ones that go on ************** and clear the virus then its like a victory story, or do you tell the story of the ones that get liver transplants or the ones that fail after treatment. There is many hep C paths which one is the right one for a movie?
story of hepc are you going to follow.?
The minority that clear the virus without any help, the ones that live with with HepC without treatment for 17 years like me or the ones that go on ************** and clear the virus then its like a victory story, or do you tell the story of the ones that get liver transplants or the ones that fail after treatment. There is many hep C paths which one is the right one for a movie?
Hi - just read in your last comment that you don't want it all to be drug users - well I've got an unusual one for you then - My ex-boyfriend became a IV user so I dumped him - shortly after he called me up one night to talk - me being an idiot agreed to meet him - all he did was try to convince me to give him money for more drugs - I refused - so he asked me for a ride home - I said sure - as I was waiting for him to get out of the car I noticed that he had his hand in my purse trying to steal my bank card - we struggled over it - meanwhile I had my foot on the brake pedal - the car was still running and in gear - he let go of the purse and grabbed my hands and pinned them above my head - my automatic survival instincts kicked in and since I couldn't use my feet or hands to fight him off I bit him - almost tore his whole bottom lip off - and as a result I am now undergoing treatment for hep c. This was in January of 2007.
In August of 2007 I started getting migraines again - went to a Dr. who actually took the time to read over my file - he noticed that I have polycystic ovarian syndrome and asked me when tha last time I had my glucose levels checked - it had been about a year so he sent me for full blood tests including a renal panel - my liver enzymes were elevated - so more tests - came back positive for hep c - found out in November of 2007 - told my ex - he told me I didn't get it from him and that there was no way he had it - 100% sure I didn't get it anywhere else - as far as I know he has still not been tested - but I don't speak to him anymore.
When I found out I cried and my kids cried - then i thought ,"I can fight this - there is treatment now - I can beat it." Was sent to a GI, had a biopsy done, had all the preliminary blood tests done - and in September of 2008 I started treatment.
I no longer have the job I had when I found out. I'm the type of person that believes I have nothing to be ashamed of and since my job involved the public I decided to tell my immediate co-workers just in case something happened where I was unconscious and bleeding they would know not to touch me - we would get a lot of homeless people and people suffering from mental complications where I worked and it was always possible that one of them may have an episode and attack someone - so I wanted to iform my co-workers - well, I am no longer working there. They told me it was because I don't fit in - a nice way of saying stay away from me. Most of my "friends" are sick of hearing me talk about blood tests and side effects so I don't see much of anyone. They also don't want to get infected - like I'm gonna intentionally cut myself and bleed all over them - gotta love ignorant people. My kids try - my son runs away from me cuz he doesn't like to see me sick and he's so mad about how I got this - I think he is having a difficult time dealing with it. My daughter makes me laugh but at the same time I think she tries to ignore the fact that I'm sick (side effects). My mom has been great - she has been the most supportive and hep c has actually made our relationship stronger.
I think your idea is a great one - we need more people telling their stories to open people's eyes and raise awareness - the city I live doesn't even have one single support group cuz nobody wants to talk about it because of the negative stigma.
Thanks!!
In August of 2007 I started getting migraines again - went to a Dr. who actually took the time to read over my file - he noticed that I have polycystic ovarian syndrome and asked me when tha last time I had my glucose levels checked - it had been about a year so he sent me for full blood tests including a renal panel - my liver enzymes were elevated - so more tests - came back positive for hep c - found out in November of 2007 - told my ex - he told me I didn't get it from him and that there was no way he had it - 100% sure I didn't get it anywhere else - as far as I know he has still not been tested - but I don't speak to him anymore.
When I found out I cried and my kids cried - then i thought ,"I can fight this - there is treatment now - I can beat it." Was sent to a GI, had a biopsy done, had all the preliminary blood tests done - and in September of 2008 I started treatment.
I no longer have the job I had when I found out. I'm the type of person that believes I have nothing to be ashamed of and since my job involved the public I decided to tell my immediate co-workers just in case something happened where I was unconscious and bleeding they would know not to touch me - we would get a lot of homeless people and people suffering from mental complications where I worked and it was always possible that one of them may have an episode and attack someone - so I wanted to iform my co-workers - well, I am no longer working there. They told me it was because I don't fit in - a nice way of saying stay away from me. Most of my "friends" are sick of hearing me talk about blood tests and side effects so I don't see much of anyone. They also don't want to get infected - like I'm gonna intentionally cut myself and bleed all over them - gotta love ignorant people. My kids try - my son runs away from me cuz he doesn't like to see me sick and he's so mad about how I got this - I think he is having a difficult time dealing with it. My daughter makes me laugh but at the same time I think she tries to ignore the fact that I'm sick (side effects). My mom has been great - she has been the most supportive and hep c has actually made our relationship stronger.
I think your idea is a great one - we need more people telling their stories to open people's eyes and raise awareness - the city I live doesn't even have one single support group cuz nobody wants to talk about it because of the negative stigma.
Thanks!!
my friend chaz cleared on the combo theraby back in the mid-90's ... he spent half the year in the hospital...
i used iv drugs (heroin, coke, meth, mostly heroin) from 1980 to 84 also ...
how stupid we all were back than, i remember being worried about aids and joking about hep --- are my eyes yellow yet??? ha ha ha we thought no big deal they can treat it...
little did we know ...
i think the title is just going to be HEPPERS .....i dont want the whole thing iv drug users but dammmmmmmmmm there are alot of us arent there ????
i used iv drugs (heroin, coke, meth, mostly heroin) from 1980 to 84 also ...
how stupid we all were back than, i remember being worried about aids and joking about hep --- are my eyes yellow yet??? ha ha ha we thought no big deal they can treat it...
little did we know ...
i think the title is just going to be HEPPERS .....i dont want the whole thing iv drug users but dammmmmmmmmm there are alot of us arent there ????
How about this one, "To Liv er or Die?'' No pun intended. I got it from I.V. drug use. I was stupid in my early 20's and for a very short period of time, I experimented with I.V. drugs in the 80's during the cocaine days. All total it was less than a year's worth of time, but I have suffered with 10 treatments over the past 11 yrs and still have not obtained viral clearance, SVR, or what have you. I've been clean of all the I.V. drug use since last 1983 and haven't drank since 1994. I had gone to a walk-in clinic in 1985 and at that time, they didn't have a test for HCV, just non-A,non-B. The doctor ran a hepatitis panel and I came back as positive for non-A,non-B, but he told me that, "it looks like you had some kind of hepatitis in the past, but don't worry about it because it wasn't A or B". No warning about alcohol, etc. In 1994, I was having right upper quadrant pain and my then, family doctor noticed that I had very high liver enzymes, so he ran a hepatitis panel A,B, & C and at that time, I was given the diagnosis as having Hep C. He then, followed up with a RIBA (not the drug)..., test. It's a blood test to determine whether it's an active infection, false positive, or whatever. The RIBA showed that I was definitely active and positive. From there, I was referred to a gastroenterologist. This guy was sort of a jerk. Anyhow, he said I needed a liver biopsy. So, I got that done and at that time, it just showed mild inflammation and mild fibrosis. It wasn't graded or staged. He said, "all we have to offer you is 18 mon. of interferon and it only works in about 30% of patients". He said that he didn't recommend it because of the side effects. So, that was that. I continued on having periodic Right UQ pain. By 1997, I went to a new gastro doc. At this time that were into the tail end of the last stage of Interferon/Ribavirin trials. It came in a kit and was affectionately known by us heppers as "the combo treatment". It was 3 x a week of Intron-A injections plus, 4 or 5 Ribavirins a day. I was started on that as treatment #1. To sum this up, that didn't work and since then, came many more treatments, clinical trials, combinations of drugs, double dosing, etc., etc., until I ended up here in 2009 with no clearance, no cure and no trial. I've had 4 biopsies now. The past 2 biopsies have shown bridging fibrosis Stage 2 Grade 3. I was originally given the genotype test showing me to have a double genotype of 1A and 1B. Now, I'm testing as genotype 1A. So, I suppose that at some point in time, I was healed of genotype 1B.
That's about it.
Susan400
That's about it.
Susan400
"A QUIVER IN MY LIVER" or maybe "I TOLD YOU I DIDN'T FEEL GOOD" or maybe just " GET INSURANCE, GET HEALED"
You are all too funny, thanks for makiing me laugh, I'm going to have to try to keep up.
Panic in Liver Park? good titles, I think you should go with "Liver Dance". Sounds like a great idea, good luck
How about "Hep C or not Hep C, that is the question..." Or...The Happy Hepper's House of Horrors...Or...The Riba Rash Boogie...Or "Liver Dance" LOL ~Melinda
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