Hi all! Haven't been on much. Trying to get back to work, life after tx, etc.
I have been briefing thru post, checking in on here, keeping in touch with a few posters a bit.
Waiting on a VL test any day now. Did an extra one as I was there for the pneum. last week.
Shands doing more test on my lungs as pneumonia not clearing, but that’s good news as no signs of anything worse in there in all the test. More good news is still all free thru trial, except ER. I am, however, feeling MUCH better now, into week 10 post, even with the pneum.!
To brief newbies….Geno 2b, 24 weeks tx. 80% down thru it, stopped work week 5.
Muscle pain/fatigue was intense the whole tx. My bed and I have a new relationship now, my mattress has had it with me on it full time, lol. While 24 weeks is the Hep lotto, it still isn’t easy!! But thankful it was shorter!
Just getting back to work (the physical job) P/T. Did do paperwork area’s of jobs thru tx, not to well tho -deciphering 150 posty notes all over the house got difficult! First 3 weeks off of tx were some of my worst! Emotions were just all over the board! All has slowly gotten better. With no sugar coating, I was quite surprised how coming off of these drugs went, has been. Your just chomping at the bit to get out there again, get back to normal. Than it doesn’t happen that way! While geno 2, 24 weeks, UND week 4, all test and chances are great and intensely grateful of all that, it is still frustrating in different ways for each. 3 weeks post, abscess tooth, sick, 8 weeks post got pneumonia, very sick. Muscle pain still bad, tho much better. Dr. insist it can be 6-12 mths, before ‘back to normal’ and to stop trying to go back to my normal pace, which was quite busy, hyper, non-stop. (A friend went with me last week, ‘told’ on me,lol! He said ‘knock it off’!)
For any coming off of tx….don’t expect to just jump back into routine. Some can, but if you can’t, go with it and heal up! Over doing kept putting me back to bad shape. I learned! (same as on tx) When your emotions go haywire, it’ll pass. Just don’t get discouraged as our bodies have been thru hell and have a lot of healing, adjusting to do. Be prepared for that and to give it more time.
All on tx now…..I am soooooooooo rooting for you. Hang in there, hold on, TLC yourself as much as you can and if your ever ready to quit, come here to the forum. They (we) will all push you on. In comfort ways and ‘buck up’ ways. I needed them both! You’ll get thru this. Your 'last dose day' will come and it’s a great feeling!
All deciding on tx, just starting with bx or the news……ask everything, learn everything and make your choices for YOU after that. All views and opinions on tx are here to help you decide. I wish you the best in however you decide for yourself. It is so devastating, scary at first, the more you learn, ‘talk’ here, trust me, the easier it’ll get to handle all this. There IS life with Hep and after Hep.
There’s a few that are finished and decided to get back to life, far away from Hep C, tx, the whole ordeal and that’s what they need for themselves. Everyone here whether it be thru tx and gone, or before tx, on tx and here to stay gives a lot to the forum and others in however long they are here.
And last on this long post …..so much thanks to all you wonderful, caring, knowledgeable, funny, giving people that help sooooo much. All the many different personalities, opinions, even debates makes this a great place to be sick :)
While this sounds like a ‘good bye’ post…it’s not! All on tx usually post more, on here more. I will continue to lurk within med help!
Best to all, coming, going, lurking, on tx, off tx, thinking about tx and also those here supporting their loved one thru tx,
LL