HEP C lunch at Dixie Crossroads 10/6/07

[susan400]

Okay, everybody.  Who ever is definitely coming, I'm going to make that phone call to Dixie Crossroads on Thurs. Sept. 20th.  Here's the names that have responded to me.  If you need to cancel, or if someone else wants to come, I need to have you reply.  Those of you who are coming, please reply anyway so that I can verify this with you.

Dixie Crossroads
In Titusville/Mims area off of Exit #406, one exit north of Hwy.50 + I-95.   See their web site for better directions.  

Oct. 6th  - Sat. - at 2:00 pm.   Check in with the hostess and tell her that you are meeting with a group of people for MedHPC   (to keep from having to say hepatitis if you aren't comfortable with that).    I figured just saying MedHPC would suffice.

Here's my list:

Amirtracy1  ?
Sparkle Girl & Hubby
Dperry  ?
Florida Mouse & Hubby
SJL - Sandy ?    
Lady Lauri
Seabean & a friend
Pasoperson?
Me

[susan400]

This is just a reminder...checking in...etc.   I hope all of you who decided to go, will be able to make it next Sat. 10/6 at 2 pm.   Remember the reservation is under MedHPC.    

I went to my last Prove 3 appt. yesterday.  I heard that the Vertex people are discussing offering rollover to the Group C people - which would mean a change in protocol, but nothing is certain yet, they are just discussing it.  I'm totally undecided if I even want to attempt to do it again.  I don't know if I want to deal with the rash again and also, if I can't use the Neupogen and Procrit, I doubt that I'll be able to even stay on it.  It's been 12 weeks since being pulled out of the study and my white cells are still low.  Study nurse told me that I'll need to have my regular doctor continue to check this and that if it gets any lower to contact them right away.  If I wasn't able to get my white cells higher prior to restarting the drugs then it would be obvious to me that being on the drugs would just aggravate the problem.  I'm hoping that they get back into the normal range so that if I did decide to treat again with something that it would even be an option for me.  I really need to have the Neupogen.  Right now, the WBC and neutro's are low, but not low enough to add in Neupogen (since I'm not on the trial, I could conceivably use it, if I dropped low enough to need it), but I'm hoping that it will just come back up on it's own.  I get sort of paranoid about the WBC thing because my cousin died of AML Leukemia exactly one year ago and he was 47.  I realize that leukemia doesn't usually happen in a 'family history' type of thing, but it does make me feel more vigilant about it, I suppose.  He was the same blood line as me because his father and my father are brothers and his mother and my mother are sisters.  We were double-first cousins.  

Anyway, I kind of am rambling.  I'm still up in North Florida.  I get back home on Thurs. and I thought I should check in with everyone.

Susan

[GrandmaA]

Have a great luncheon. Wish I could be there. I'm about 2500 miles away in Calif.

[Andiamo1]

Good idea!  Nygirl might complain when she sees the size of our suitcase though - LOL.

[susan400]

I got a great idea-Andiamo.....  you and Mafaida stuff NYGirl in your suitcase and bring her down here with you!!    Please!!!     Come on, she's small, she's not that heavy....bring her down here!   :)    I am thinking that maybe we could have another one in the first week of Dec.  Somebody else could plan it though next time and coordinate everybody!  Just pick it in the 1st week of Dec. and I'll be there.  

I won't be here in the 1st part of Nov., but somebody want to plan a Dec. gettogether?

Susan

[Lady Lauri]

Oop's, just saw this and forgot ya! (and no brain fog YET!)
David R. Nelson
352-392-7353

his assistant (PA-C)
Thomas C Kinsland
352-392-9300
800-749-7424 Ext. 29300
kinsltc@medicine,ufl.edu

Susie Archer is my trial nurse/coordinator and they have several trials going on now.
Let me know if you get through.                                                Lauri

[Andiamo1]

I am lucky too!