Aa
Found Doctor in Ct.
I was on a plane yesterday, (coming back from a cruise to Carribean, lucky me!!!) and sitting next to me was GI doc..from where I live....how ironic. He started the conversation, which again was ironic.
Anyway, bottom line, he told me about himself, a GI doc who does work with hepc patients, He is in Bloomfield CT.
Dr. Richard Stone, he also works in St. Francis Hospital,
and he also referred me to a Dr. Polio, who is a hepatologist, and he specializes in Hep c treatment.
He is also through St.Francis hospital in Hartford Ct. I guess that would be the way to get to him, is through the hospital.
I know I had a hard time finding doctors around this area.
This Dr. Stone was one of the nicest Dr.s I have ever met!
Imagine a doc on a plane, pretty much giving me his time and advice for free, and he was such a pleasant and caring man...he seemed to really care so much about his patients...
so I hope this may help someone in this area.
Pitter
Anyway, bottom line, he told me about himself, a GI doc who does work with hepc patients, He is in Bloomfield CT.
Dr. Richard Stone, he also works in St. Francis Hospital,
and he also referred me to a Dr. Polio, who is a hepatologist, and he specializes in Hep c treatment.
He is also through St.Francis hospital in Hartford Ct. I guess that would be the way to get to him, is through the hospital.
I know I had a hard time finding doctors around this area.
This Dr. Stone was one of the nicest Dr.s I have ever met!
Imagine a doc on a plane, pretty much giving me his time and advice for free, and he was such a pleasant and caring man...he seemed to really care so much about his patients...
so I hope this may help someone in this area.
Pitter
Thanks all for your input.
I am monitoring right now, so I guess it doesn't matter who I see like you say.
For the bloodwork monitoring, etc. But I do want to be confident with whom I do consider to be my doctor, and I want to be treated like a human being.
I haven't had alot of luck with doc's the last few years. I had a bad experience last summer.
anyhow...
thanks :~)
I am monitoring right now, so I guess it doesn't matter who I see like you say.
For the bloodwork monitoring, etc. But I do want to be confident with whom I do consider to be my doctor, and I want to be treated like a human being.
I haven't had alot of luck with doc's the last few years. I had a bad experience last summer.
anyhow...
thanks :~)
Pitter, you've pretty much stated that you don't want to treat your Hep C with the current drugs and the reality is, these drugs will continue to be used long into the future even with the new drugs on the horizon."
I agree - if you aren't going to be doing anything about the hep anytime soon pretty much you can go to any doctor to get a biopsy or blood work. Really don't need a specialist for that however I did treat with my regular GI doc but go to Dr. Jacobson in NYC because he was one of the top at the top for a second opinion to make sure my treatment plan was in order.
He was willing to work with my doctor up in Westchester and advise him so that I didn't have to travel to the city all the time.
But I was treating ultra-aggressively. If I was just going to watch and wait I would have just gone to anybody as it really didn't make any difference.
CWAR -
The more I think about it the more I am thinking that vitamins and herbs may not be strong enough to combat this virus however I wish there was something other than the interferon and riberviron. "
Unfortunately the ONLY current cure contains interferon and ribavirin nothing else will cure him or do much of anything, NOTHING. Also when he does begin treatment you need to stop the milk thistle before hand it is one of the supplements that will render the combo meds ineffective.
I agree - if you aren't going to be doing anything about the hep anytime soon pretty much you can go to any doctor to get a biopsy or blood work. Really don't need a specialist for that however I did treat with my regular GI doc but go to Dr. Jacobson in NYC because he was one of the top at the top for a second opinion to make sure my treatment plan was in order.
He was willing to work with my doctor up in Westchester and advise him so that I didn't have to travel to the city all the time.
But I was treating ultra-aggressively. If I was just going to watch and wait I would have just gone to anybody as it really didn't make any difference.
CWAR -
The more I think about it the more I am thinking that vitamins and herbs may not be strong enough to combat this virus however I wish there was something other than the interferon and riberviron. "
Unfortunately the ONLY current cure contains interferon and ribavirin nothing else will cure him or do much of anything, NOTHING. Also when he does begin treatment you need to stop the milk thistle before hand it is one of the supplements that will render the combo meds ineffective.
I'm doing pretty well. Had to have a MRI because of constant headache and to exclude a sinus infection. My brain is fine so its just a side from the meds. Yeah, my platelets have really gone up since starting tx. I have been in the 40s range for over 5 years and now I'm over 150 which is almost normal. Go figure! Neither Dr. Wu nor my hematologist can figure it out. Usually people's platelets go down (sometimes dangerously) on tx.
Robin Forman Rose - she took excellent care of me and her office staff was excellent. Good luck.
jd
jd
speaking of "lost" looks like my post got lost!
Pitter, you've pretty much stated that you don't want to treat your Hep C with the current drugs and the reality is, these drugs will continue to be used long into the future even with the new drugs on the horizon. So I guess the question begs, what are you looking for in a doctor, if it's not treatment, do you just want a doc to monitor your HCV's progression?
If you live in Ct. you are surrounded by world class doctors, NY city, Beantown, Yale in New Haven, imo, if you're looking for a cure, a few hour drive wouldn't kill you. Many here have traveled long distances for treatment, myself included with a 4 hr roundtrip. I understand the hardships involved, whether they be financial or other, sometimes it just comes down to, how bad do you want it..
Best of luck in whatever you decide, pro
Pitter, you've pretty much stated that you don't want to treat your Hep C with the current drugs and the reality is, these drugs will continue to be used long into the future even with the new drugs on the horizon. So I guess the question begs, what are you looking for in a doctor, if it's not treatment, do you just want a doc to monitor your HCV's progression?
If you live in Ct. you are surrounded by world class doctors, NY city, Beantown, Yale in New Haven, imo, if you're looking for a cure, a few hour drive wouldn't kill you. Many here have traveled long distances for treatment, myself included with a 4 hr roundtrip. I understand the hardships involved, whether they be financial or other, sometimes it just comes down to, how bad do you want it..
Best of luck in whatever you decide, pro
is that why they call you GOOFY?
I was joking, I hope you were too! :)
hi jd, thanks, Danbury is quite a hike form here, but what is his name anyway, just in case?
I was joking, I hope you were too! :)
hi jd, thanks, Danbury is quite a hike form here, but what is his name anyway, just in case?
Yes I saw Dr. Wu and his intern. I think the only reason he was interested in me is because my platelets have gone up on tx instead of down.
Hi Kathy,
That kind of slack you had at Hartford was crazy....I hope Wu. does better for you...like I said, he is knowledgable. and when I did see him for hepc, the intern that saw me seemed very good., altho he didn't follow up on doing some things he said he was going to do, like contacting my GP , and sending her my records.. But I qiut there mostly bcz of the incident w/ the colonoscopy mistreatment.
You are right, nothing is perfect I know.
Do you see WU himself?
Best wishes.:)
That kind of slack you had at Hartford was crazy....I hope Wu. does better for you...like I said, he is knowledgable. and when I did see him for hepc, the intern that saw me seemed very good., altho he didn't follow up on doing some things he said he was going to do, like contacting my GP , and sending her my records.. But I qiut there mostly bcz of the incident w/ the colonoscopy mistreatment.
You are right, nothing is perfect I know.
Do you see WU himself?
Best wishes.:)
There are good doctors and substandard doctors. I was going to another hepatologist whose office, PA and himself screwed up every phase of my treatment. I would go to an appointment just to have the PA not be there. Pre-authorization screw ups, medication screw ups, stress upon stress upon more stress. It got to the point where I was fighting to get someone there to do there job every week. They induced stress instead of alleviating it. When I couldn't take it anymore I went to Dr. Wu. He asked me why I wanted to switch doctors mid-treatment and I told him because I couldn't stand the incompetence any more. His answer was that there is incompetence in Hartford too! Be that as it may, there are even levels of incompetence and I'll exchange for a smaller amount.
ps. I believe in excellence and integrity, in what ever you commit to doing in life.
And expecting others to pick up your short fall is not right.
And expecting others to pick up your short fall is not right.
yes I think he probably is a good doctor. In knowledge.
But there are lots of good doctors.
I do want someone who does care at least a little.
But there are lots of good doctors.
I do want someone who does care at least a little.
Hi.
No it is Dr. Wien de Ren from China whom is practicing in New York, NY. Do you know of him? He is at the University at Union Square in New York City. Apparently he studies your blood levels, viral load, biobsy etc and then puts together a specific herb/vitamin pill just for you to combat this virus? Does anyone know about this?
The more I think about it the more I am thinking that vitamins and herbs may not be strong enough to combat this virus however I wish there was something other than the interferon and riberviron.
WE ARE NOT SURE HOW PROGRESSED HIS CASE IS. IS THERE A DOCTOR ON HERE THAT CAN LOOK AT THESE NUMBERS FOR ME AND LET ME KNOW?
ASPARTATE TRASAMINAASE (AST) 189
WHITE BLLOD CELL COUNT 3.7
LYMPH .9
PLATELET COUNT 70
RDW 16
ALANINE TRANSAMINASE (ALT) 239
AFP ONCOLOGY 6.5
ALBUMIN 41
RED BLOOD CELL COUNT 4.57
HEMOGLOBIN 140
THYROTROPIN 1.53
He has been taking Milk Thistle daily, Vitamin K1 and K2, Selenium and Serrapeptase.
Thank you,
cwar
No it is Dr. Wien de Ren from China whom is practicing in New York, NY. Do you know of him? He is at the University at Union Square in New York City. Apparently he studies your blood levels, viral load, biobsy etc and then puts together a specific herb/vitamin pill just for you to combat this virus? Does anyone know about this?
The more I think about it the more I am thinking that vitamins and herbs may not be strong enough to combat this virus however I wish there was something other than the interferon and riberviron.
WE ARE NOT SURE HOW PROGRESSED HIS CASE IS. IS THERE A DOCTOR ON HERE THAT CAN LOOK AT THESE NUMBERS FOR ME AND LET ME KNOW?
ASPARTATE TRASAMINAASE (AST) 189
WHITE BLLOD CELL COUNT 3.7
LYMPH .9
PLATELET COUNT 70
RDW 16
ALANINE TRANSAMINASE (ALT) 239
AFP ONCOLOGY 6.5
ALBUMIN 41
RED BLOOD CELL COUNT 4.57
HEMOGLOBIN 140
THYROTROPIN 1.53
He has been taking Milk Thistle daily, Vitamin K1 and K2, Selenium and Serrapeptase.
Thank you,
cwar
I understand this doctor has a bedside manner issue however is he a good doctor? this brings me back to ER when you had Dr.Green, whom had a great personality and Dr. Benson, who lacked the warmth and understanding that Green had yet was a surgical genious. Which one would I want treating me? The genious.
What medicine do they practice the interferon/pegatron? Or do they have alternate meds they use on Hep C?
thank you,
cwar
What medicine do they practice the interferon/pegatron? Or do they have alternate meds they use on Hep C?
thank you,
cwar
I'm curious why you wouldn't seek a doc out at Uconn? If you're going to go to Bloomfield, why not go to Farmington, only another hop skip and a jump..I see this doc was involved in the Halt-C study, and I'm a firm believer in getting tied into a teaching hospital
Dr. Herbert L. Bonkovsky, University of Connecticut Health Center, Farmington
"Herbert L. Bonkovsky, M.D., Professor of Medicine and Molecular, Microbial, and Structural Biology, and Director of The Liver-Biliary-Pancreatic Center, at The University of CT Health Center, is known nationally and internationally as a clinical hepatologist, teacher, mentor, and clinical investigator. Dr. Bonkovsky is a graduate of Earlham College and Case Western Reserve University School of Medicine. His Post-graduate training was at Duke University, Case Western Reserve University School of Medicine, The U.S. National Institutes of Health, Dartmouth Medical School, and Yale University. Dr. Bonkovsky has served as Director of the Division of Digestive Disease and Nutrition at the University of Massachusetts Medical School and as Director of the Office of Clinical Research and the General Clinical Research Center at the University of Connecticut Health Center. His currently funded research is in porphyria and heme metabolism, chronic viral hepatitis, and the drug-induced liver injury. For the past twelve consecutive years, Dr. Bonkovsky has been selected by his peers as one of America’s Top Doctors."
Dr. Herbert L. Bonkovsky, University of Connecticut Health Center, Farmington
"Herbert L. Bonkovsky, M.D., Professor of Medicine and Molecular, Microbial, and Structural Biology, and Director of The Liver-Biliary-Pancreatic Center, at The University of CT Health Center, is known nationally and internationally as a clinical hepatologist, teacher, mentor, and clinical investigator. Dr. Bonkovsky is a graduate of Earlham College and Case Western Reserve University School of Medicine. His Post-graduate training was at Duke University, Case Western Reserve University School of Medicine, The U.S. National Institutes of Health, Dartmouth Medical School, and Yale University. Dr. Bonkovsky has served as Director of the Division of Digestive Disease and Nutrition at the University of Massachusetts Medical School and as Director of the Office of Clinical Research and the General Clinical Research Center at the University of Connecticut Health Center. His currently funded research is in porphyria and heme metabolism, chronic viral hepatitis, and the drug-induced liver injury. For the past twelve consecutive years, Dr. Bonkovsky has been selected by his peers as one of America’s Top Doctors."
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