Hello, thank you so much for sharing your husband's journey. The tx is very harsh for some, It made me realize I was stronger than I ever knew
My doctor said I had a rough time because I was in to cirrhosis by the time I was diagnosed.. I was couch bound and am impressed by your husband being able to continue on.
I continued to eat a smaller amount of fat for the last few weeks. I saw evidence of the Incivek for about 2 weeks. You have a good idea. It is very hard to be so weak, tired and sick. Please tell your husband he is doing a really good job and that he will feel relief when he finishes the Incivek though it may take a day or two.
About the rash, if you go on Vertex's site they now have pictures of what is mild, moderate and severe. They put that up after I had finished tx.
I think it was because doctors were not prepared for the side effects of Incivek, at least mine wasn't. At least this way people could look it up to see how bad they were. Some on here had to stop the Incivek early due to the rash and they are still UND over 6 months later.
Best wishes to your husband. Hang in there.
Thanks Dee. Yeah, his rash is "severe". Trying a new ointment now. Fingers crossed. Hang in there yourself. We'll be thinking of you.