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374652 tn?1494811435

Still waiting

I'm still waiting to hear from anyone about any kind of study in my area.  Feeling pretty run down today.... My job is so weird, but for now I'm still getting a pay check.  Funny, I am kind of counting on the new health care system (ha!)  I would just try to get the drugs but I'm a geno 1 and I really want to do the PI and then there is the SOC during.  
I"m all set up in the system for any studies that come to our area, but no call yet.  
i should call them again.  I've had the dreaded diarrhea for a week now, but I really think its due to constant stress at work, home, etc.  
just venting...  
Ma4now
7 Responses
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374652 tn?1494811435
Thanks for caring,,
XXXX OOOO  
M4now
Helpful - 0
971268 tn?1253200799
Sorry to hear there aren't any trial sites near you.  I hope you find something good very soon!
Helpful - 0
250084 tn?1303307435
  Just wanted to say the same, hang in there! PI's are the way to go for Geno 1's and really hope you get into a study soon.

Have you ever considered getting into a study a bit further then your area? It can be done, tho difficult. Just a thought,

Hope you feel better, and get rid of the dreaded diarrhea.

LL
Helpful - 0
374652 tn?1494811435
Thank you for the response, I was so busy I forgot to check in for some support,, thats one way of beating the blues.  
WriteItDown,, I did check the site you offered and New Mexico wasn't even on it, all I can do for now is wait.  one foot in front of the other.  I'm feeling a bit run down but I dont know if I can fully attribute it to the HepC I'm a bit discouraged, and totally caught up in Samsara.  The only way to go is to try to let go in each moment not getting to caught up in the past or the future.  Because if you think about it none of it really exists the present is gone before you know it, the past only exists in our memory and the future is  total imagination.  
Good luck and good health
M4now
Helpful - 0
971268 tn?1253200799
Where do you live Mary?  My husband is on a trial of protease inhibitor TMC435 -- it's been good to us so far.  They have a lot of study locations.  If you're interested, check it out:

http://clinicaltrials.gov/ct2/show/NCT00882908
Helpful - 0
220090 tn?1379167187
Hang in there!  I hope you feel better soon.
Eric
Helpful - 0
Avatar universal
I know there are better routes but I've found the CDC helpful to find testing in all areas.
Just look them up-get the # and call.  Best wishes
Helpful - 0
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