Aa
Party Ride… Roll Call!
Lets all help put this here together in the coming days,
The Party Ride… Roll Call!, why might you ask? Well we’ve been here on the Hepc Party Ride for some time over the past months and as with any party ride many people jump in and others jump out (kind of like the hokey pokey, remember that one?) to make way for the new people coming in on the line to find info, share stories, support and help pull all of us together and keep us moving forward in the journey, so it might be fun for everyone to share in this party ride once again and let everyone know where we started and where we are at in treatment or have past treatment and are SVR, waiting for SVR or have relapsed if so inclined.
Might see some TX similarities here
http://www.youtube.com/watch?v=QmMQfTJ3gYk&feature=related
Genotype 1b
Diagnosed 2004
Started tx: 03-12-07 / 48wks SOC
Ended tx: 03-15-08 / tapered off meds 4 additional weeks
TX”ed 52 weeks
Baseline vl 4.7M ml
UND week at 8, 12, through EOT
Carried 33 yrs
Liver: Stage 2 Grade 2
First: 01-31-07 AST 52 / ALT 96
Last: 09-13-08 AST 21 / ALT 20
Six months post – SVR
Worst sx weeks 1 through 12
So, come’ on join the ride and add to it and lets geterdone!
jasper
diagnosed 97 1b stage 1 treated 3 times 1998 48 weeks 2004 72 weeks and 2007 prove 3 telapavir arm a placebo relapsed all times started treatment rollover study 5 days ago
Click my profile if you wanna know !!!!!
Geno 3a Grade 2 Stage 1 borderline 2
Dxd 1986 with nonAB, dxd 1992 with HCV
1st TX Nov 2003 - non responder to 24 Weeks SOC 180Peg/800Riba
2nd TX May 2008 - enrolled PI trial for non responders with study drug RO5024048/180Peg/1200Riba. Not sure how long tx'ing - 24, 36 or 48 weeks TBC
Base VL 1.72M
Wk 4 UND below 15IU/mL
Wk 8 29IU/mL
Wk 12 UND
Wk 20 - still waiting to hear
Many and varied sx the enduring ones being anemia and neutropenia with a nasty cough and some wicked itchy skin. On ADs. Managing to work full time most of the time. Don't care what it takes but determined to kick this thing's A$$! Hear me roar!!!
Michele :)
Dxd 1986 with nonAB, dxd 1992 with HCV
1st TX Nov 2003 - non responder to 24 Weeks SOC 180Peg/800Riba
2nd TX May 2008 - enrolled PI trial for non responders with study drug RO5024048/180Peg/1200Riba. Not sure how long tx'ing - 24, 36 or 48 weeks TBC
Base VL 1.72M
Wk 4 UND below 15IU/mL
Wk 8 29IU/mL
Wk 12 UND
Wk 20 - still waiting to hear
Many and varied sx the enduring ones being anemia and neutropenia with a nasty cough and some wicked itchy skin. On ADs. Managing to work full time most of the time. Don't care what it takes but determined to kick this thing's A$$! Hear me roar!!!
Michele :)
diagnosed in 1992 as 1a
waiting to get in the Boceprevir trial, had initial bloods done already
extreme osteo pain
fatigue and forgetfullness are unbelievable= pre-tx
I think I've pushed off the inevitable tx, long enough and I'll be glad when I start...
All you ppl on here// support other's thru their pain and suffering while txing are da bomb!! It was a Godsend when I found this place to hang my hat...
waiting to get in the Boceprevir trial, had initial bloods done already
extreme osteo pain
fatigue and forgetfullness are unbelievable= pre-tx
I think I've pushed off the inevitable tx, long enough and I'll be glad when I start...
All you ppl on here// support other's thru their pain and suffering while txing are da bomb!! It was a Godsend when I found this place to hang my hat...
Gen 1b
Diagnosed sometime in 2001
started tx 1/4/08 1000 riba and 180 interferon cut riba to 800 about week 30
Stage 2 fibrosis
UND at 12 weeks
might i add just the love my tx, with a side of sides!!!!
Diagnosed sometime in 2001
started tx 1/4/08 1000 riba and 180 interferon cut riba to 800 about week 30
Stage 2 fibrosis
UND at 12 weeks
might i add just the love my tx, with a side of sides!!!!
Genotype: Originally was 1A/1B, now testing as 1A only.
Infected in 1983, tested positive for non-A/non-B in 1985 - which was turned into Hep C in 1994.
First treatment (TX) was in 1997. I have treated 10 times now, but I've never cleared - just dropped 1B is all.
I've already tried Telaprevir (VX-950) during Prove 3, but got the unlucky draw of the hat and was randomized into the non-Riba group and did not clear (most likely because of no Riba).
Stage 2 Grade 3 (but according to liver doctors - borderline Stage 3) after 7 years of bridging fibrosis.
I have no prospects of treatments on the horizon, any time soon, but I have faith in God and I know that he is in charge of me and whatever happens to my health is no surprise to Him.
Basically, my only symptoms- off of TX- are just that I'm super-duper tired, and I have right upper quadrant pain quite frequently.
Susan400
Infected in 1983, tested positive for non-A/non-B in 1985 - which was turned into Hep C in 1994.
First treatment (TX) was in 1997. I have treated 10 times now, but I've never cleared - just dropped 1B is all.
I've already tried Telaprevir (VX-950) during Prove 3, but got the unlucky draw of the hat and was randomized into the non-Riba group and did not clear (most likely because of no Riba).
Stage 2 Grade 3 (but according to liver doctors - borderline Stage 3) after 7 years of bridging fibrosis.
I have no prospects of treatments on the horizon, any time soon, but I have faith in God and I know that he is in charge of me and whatever happens to my health is no surprise to Him.
Basically, my only symptoms- off of TX- are just that I'm super-duper tired, and I have right upper quadrant pain quite frequently.
Susan400
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